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    Angelo z
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    • 60% of those with DH test false negative on the celiac serum panel.  http://www.cureceliacdisease.org/faq/what-is-dermatitis-herpetiformis-dh/ A positive dh biopsy is a dx of celiac disease, no further testing is needed. The dh biopsy alone is definitive. http://www.cureceliacdisease.org/faq/how-is-dermatitis-herpetiformis-dh-diagnosed/ http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Now, I want to talk a little bit about Dapsone. It's not a magic potion. It carries a lot of risks. It has some real negative points. There are a lot of potential side effects of Dapsone, including a (gulp) skin rash. Lots of people who have come through this forum have tried Dapsone & many had to quit it b/c of side effects. Some do okay on it but many more do not.  https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/side-effects/drg-20063327   You need to have labs done periodically to make sure Dapsone is not interfering with your platelets or liver as it can do such, also your iron needs to be monitored as Dapsone can cause anemia. NOTES: Do not share this medication with others.Laboratory and/or medical tests (e.g., complete blood counts/platelets, liver function tests) should be performed periodically to monitor your progress or check for side effects. Consult your doctor for more details.Iron, folic acid, and vitamin C might reduce the risk of developing a certain serious side effect (anemia). Ask your doctor for more details.If you are using dapsone for dermatitis herpetiformis, a gluten-free diet may improve the condition. Consult your doctor for more information. https://www.medicinenet.com/dapsone_dds-oral/article.htm   Finally, while Dapsone may work to relieve the dh rash, that can fool you into thinking you are doing very well with making sure you are eating completely gluten free. We've actually (I swear!) had one person on here who was on Dapsone for 20 years!!!!!! Since childhood, but their doctor NEVER told them they had to eat gluten free, that they were celiac. So, they ate gluten all those years & the Dapsone kept them from knowing they had a problem b/c the Dapsone kept them from getting the rash. She ended up with lymphoma from the untreated celiac. My point is that you won't know when you're getting glutened or cross contaminated. That carries it's own risk. You will have no canary in the coal mine.       
    • NO. Just like for the serum panel, you have to have been eating a full gluten diet for 3 months prior to testing. The dh biopsy requires the same time frame. http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ And ask me how many times people have thought that because there are lesions, they would still be able to get a positive biopsy. And ask me how many dermatologists don't know either. 
    • Welcome!   The TTG IgA can be elevated due to other Autoimmune disorders, but just slightly.  Your result definitely requires you to be referred to a GI for further evaluation (e.g. small intestinal biopsies).  My guess?  Your odds that you have celiac disease is very high.   I am a TD2, have celiac disease, and have many intolerances and allergies.  The good news is that you many be able to ditch the MAOI diet once your small intestine heals!  
    • I recently started a medication that's known to cause hypothyroidism, and in me, it has. As I increased the dose, my TSH went higher, in an almost lockstep fashion. On the most recent set of blood tests, after my TSH had gone over the threshold, my GP decided to chuck a coeliac test in there since hypothyroidism can be linked to coeliac disease, even though it seems pretty much certain the hypothyroidism is caused by the medication. So essentially this test result was something neither he nor I were in any way prepared for. He's referred me to gastroenterology and ordered the same blood test again to check it wasn't a dodgy result, but what are the chances I don't have coeliac disease, with a tTG-IgA result of 128? I already have to follow a type 2 diabetes diet and an MAOI diet; I don't want to have to be gluten-free too!
    • TDZ, that is interesting that you mention weed-eating as coinciding with the start of your husband's rash, as about 12 years ago I had a possibly similar experience.  It was in the spring (meaning late May here in SC Alaska), and I was cutting the lawn.  Rather than bagging up all the lawn clippings, I would just take the filled bag off the mower, walk into the woods behind the house, and pull out the clippings with my hand and then scatter them around (so that they didn't just all rot and fester in one stinking pile).  Well, the next morning I woke up with (mainly) the thumb and index finger of my right hand, and all the skin in-between, being red and inflamed and VERY itchy.  Soon the itching spread, and turned into tiny red bumps.  Then it became painful and highly sensitive, like a burn, and looked that way, too.  After four or five days, little areas of skin starting loosening up and peeling, and before long pretty much the entire skin of my right hand was peeling off, just like a glove!  I did go to a doctor and had a skin biopsy done, but nothing was determined, and the doctor was stumped. Years after that, I was talking to an acquaintance who was a botanist, and she casually mentioned about how the wild buttercups that are a common weed here are severely poisonous, and caustic, and how their juices can burn the skin to the point of it sloughing off.  And as it happens, those same buttercups were all through my lawn that year when I had my skin incident!  Now, I'm not saying that you might have those same plants in your yard, but there are any number of other plants that could react similarly, especially to somebody whose skin and immune systems are already compromised --- any plants in the carrot/celery family, for example, can play Hell on the skin, and we have at least two such wild plants here in Alaska that have repeatedly caused me great grief.  In fact, I have seen groundskeepers here who while weed-whipping will wear full hazmat suits, as the juices from one of those carrot family plants (Cow parsnip) is well known for causing serious skin burns, rashes and even permanent scarring.
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