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Nikki2003

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Everything posted by Nikki2003

  1. Nikki2003
    Nicole went for her follow up. Here are some levels Tell me if u think they are high or not. IgE- 272 units/ml normal value= 0-30 TTG- 80 normal value= <20 Bilirubin,Total- 0.1 mg/dl normal value= 0.3-1.2 AST- 42 unit/L ...
  2. Nikki2003
    She is seeing the GI dr for the first time since she had her blood draw and had the endoscopy done. I am also asking for a copy of her tests to keep for records. I keep wondering how off the celiac is. Also to ask him about this malar rash she has on her face. It has been a few weeks now. Some times more apparent than others. Not from the sun either,although...
  3. Nikki2003
    I definetely understand where your coming from to try and have an MD listen. But our ped will now. We were always bringing nicole in the office or to the ER with high fevers and very bloated stomache. Her ped just keep assuring me it was either gas or her stomach muscles havn't come in yet. He didn't do any blood work eith to rule anything out. It was the...
  4. Nikki2003
    Hi there everyone. I am sure a few of the children here are on this as well. Nikki has been on this since June 16th 2006. It say 1/2 cap full once a day. I did that for a while but if I give her the 1/2 cap full she had diahhrea like 3-6 times a day. But even a pinch less and she is constipated for 2-3 days. I emailed her GI dr about this,He said try and...
  5. Nikki2003
    Hi there, I just wanted to say that when the dr did nicole's biopsy she said she didn't see any thing with the naked eye also. But when the results came back,She had it.
  6. Nikki2003
    Sorry I didn't introduce my self. My name is celina and my daughters is nikki. Sorry about that. We live in Massachusetts. She is seeing a pediatric GI doctor out of Children's Hospital in Boston,ma. Thank you all for the great tips. I was wondering how likely is it that she can get other autoimmune disorders? A few weird things have happened in the...
  7. Nikki2003
    I called the pediasure company and they said that it is safe for kids with Celiac Disease. But not carnation instant breakfast.
  8. Nikki2003
    I know there are glutn free chocolate chip cookies and some jar baby foods,they don't say gluten free on them. Just look at the ingredients. I did find something interesting though. If you compare gerber infant rice cereal to the rice cereal from beechnut. Beechnut has gluten containing ingredients. I just noticed that the other day. Just a heads up.
  9. Nikki2003
    That is great. Can I ask you how long she was on the diet before she started gaining and doing better? THanks for any answers
  10. Nikki2003
    Hi everyone, My 2 yr old daughter was just diagnosed last week with Celiac disease via biopsy. When the dr did the endoscopy she said she didn't see anything abnormal but you have to wait for the results. But it came back that she does have it. So we started her on the gluten free diet last saturday. It is tough findind stores here that have a good selection...
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