TheDHhurts

Updating to note that it has been over a month since I initially wrote Prana and they haven't provided a response to my question about what testing limits (ppm) they use now. I've sent them a couple reminder emails but nothing. Booo.

I wrote them back seeking clarification on their testing. The response was that they test to ensure the product is 5 ppm or under. So far no trouble with the product but I hate to see these companies drop the outside certification.

Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...

I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...

I want to order some Azelaic Acid Suspension to add to my daily routine. However, I notice that azelaic acid is derived from grains. On The Ordinary's website they say their azelaic acid suspension is gluten free, but I wanted to see if people here have any experience with this. Any thoughts?

I stopped eating mushrooms post-diagnosis because I was told they were grown on hay/barley/some sort of glutenous substance, and that I would end up getting cross-contaminated. More recently I've seen some people challenge this, saying that modern farming practices do not expose mushrooms to gluten cross-contamination. I'd like to try mushrooms...

I need to purchase a face scrub, and want to make sure I don't end up with one that has hidden gluten. I went to some manufacturer's websites and got confused very quickly ... so many ingredients that I can't identify. Any mainstream (ie easy to find at my local store or Amazon) face scrubs that users can recommend? Thanks!

I don't have any problems with tomatoes -- I eat cherry tomatoes from time to time. I have a feeling that my reaction is to the vinegar and/or spices in this product. I do tend to avoid processed foods altogether but figured a little certified gluten-free ketchup would be okay. Guess I was wrong!

I stopped eating all processed foods a while back, and have been DH-free since September. My food is sooo bland, so I figured I would get some FODY ketchup, which is certified gluten free (and low FODMAPS). Had a small amount with some homefries I made (not processed ... I cut up some potatoes and made them myself). Next morning I see a couple bumps...

I'm so sorry to hear about your issues. It sounds like you're taking the right approach (not a doctor, but suffer from DH). Do say this new rash appears in the same places as you get DH. Do you think this is also DH, or something completely different? If it is DH, are you aware of its connection to iodine? (Iodine causes DH to flare for a lot of us....

I had a similar experience. I decided to try my gluten-free oatmeal, in a small serving, a couple times. I had a small DH reaction, but it came and went very quickly and was hardly noticable. I'm staying away from BRM products as well. I was thinking of trying almond milk again, but it never seemed to sit well with me. The last time I bought it I didn...

How long have you felt you've had DH under control? Since then, have you had any DH breakouts? What you say about being able to consume iodine when you're not in the midst of a DH breakout (not exactly your words...hopefully what I'm saying is accurate) is very interesting. I'm incredibly scared of breaking out in the rash again, having finally gotten...

Thank you for your post! What you said about oats and iodine really makes sense. I've been off the oats and carefully monitoring my iodine intake for over a month. No DH breakouts in that period! This is a record for me, and aside from struggling to figure out what I can actually eat, I'm feeling and looking a lot better. (I was eating Only Oats, which is...

Its been a little over 2 weeks since I posted. I've lowered my iodine intake (I stopped the fish oil and been generally conscientious), and temporarily halted eating my gluten-free oatmeal and the gluten-free Bob's Red Mill products I have. While it is too early to make any declarations, I'm happy to say I haven't broken out in DH bumps in the last couple...

It now seems apparent that iodine is closely connected to my DH outbreaks. But how much iodine is considered too much? The recommended daily intake of iodine for adults is 150 mcg. And deficiencies in iodine are linked to negative health outcomes, which I'd like to avoid. My daily multivitamin contains 60 mcg. I'm not sure how much it contains,...