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mari-lyn

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Everything posted by mari-lyn

  1. mari-lyn

    ARCHIVED Professional Dilemma

    mari-lyn replied to mari-lyn's topic in Doctors

    [i totally agree..
  2. mari-lyn

    ARCHIVED Professional Dilemma

    mari-lyn replied to mari-lyn's topic in Doctors

    [i totally agree..
  3. mari-lyn

    ARCHIVED Professional Dilemma

    mari-lyn replied to mari-lyn's topic in Doctors

    Yes, as a dietitian and also as a close family member with celiac disease (actually 4), I am aware of the problems and especially concerned with young people and teens. There support is needed...hope we can meet the challenge. Just an FYI..the patient was referred to counseling ...with the added assurance that the Dx. of celiac disease was part of the...
  4. mari-lyn

    ARCHIVED Professional Dilemma

    mari-lyn posted a topic in Doctors

    Not sure where to post this problem but I am sure there are doctors caving in to patients that refuse to go gluten-free. I am a dietitian working in a Critical Access Hospital ( that means we are a rural hospital with no more than 25 beds - our average patient count is around 8). There is a woman that has repeatedly been admitted with migraines, nausea...
  5. mari-lyn
    I will see if my sister still has an article written by a Mom of a Wisconsin student and how she handled the food service. My niece has celiac disease and Type I DM and just went away to college. Will post if I can get that from her again.
  6. mari-lyn
    Margaret and LaVern? Yes, we also go to church with them. October we are meeting for a potluck on Thurs. Oct 19th at 6:30. Whole foods like fruits and vegetables are a great addition. One fellow is assigned lplain potato chips. The hospital provides a meat and we usually have lots of food. Otherwise our meetings are the second Thursday of each...
  7. mari-lyn
    Our support group in Anamosa has about 20 people on the mailing list with 6 - 8 regulars. If interested please contact. Potluck, Thursday, Oct. 19 at 6:30 at Jones Regional Medical Center. Nov. - 2nd Thursday of the month at 1:00. We take off December and resume 2nd Thursday in Jan. at 1:00. The Annual All Iowa conference is next weekend at the Aegon...
  8. mari-lyn
    Thanks for all of the info - especially the % - etc. Glianid Anibodies (IGA) - 4.1 Reticuluin AB negative (no numbers) Tissue Transgultn 5.6 (range 0 - 30). Anyway, have to run off to church but I sure have appreciated everyone's advice and time. I am the founder of the support group at the hospital where I work so I am not far from celiac...
  9. mari-lyn
    There is a saying that life is too short for regrets and you certainly have helped me to look at that and start a new day. I would like to have the opportunity to share your story with a 50 year that I see as a patient about every 2 months. Here blood work indicates she has celiac disease, however, she is in some denial about it and says that "my doctor...
  10. mari-lyn
    Kraft - American. I haven't looked to see what is in them yet. We stake a few and then either cut or tear. You can sprinkle them with garlic or onion powder.
  11. mari-lyn
    Will search recipes but my weight mgt group came up with a "goldfish cracker" using just processed chesse. Put them on an oiled sheet and they puff and crisp. I made some of the pieces to look like animals...teddy bears mostly. This was to have the protein without the carbs...works for me.
  12. mari-lyn
    Thanks, even though there are lots of people out there, sometimes you feel pretty lonely. Marilyn
  13. mari-lyn
    So, this might be latent Lyme disease?
  14. mari-lyn
    My mother's twin sister was dx. 45 years ago at Mayo, so, I grew up knowing about celiac disease. She had the weight loss and GI problems. The Mayo clinic wanted my mom to come for "tests". She was in Ohio with 4 children and they were not going to reimburse for travel,etc. So, it did not happen. I have a niece (dx at 15, dx with Diabetes at 9). Most...
  15. mari-lyn
    ...or did it come from my computer. Anyone else have this happen? How inappropriate, especially on a weight management message board. Hi, I am new to this board but not to the celiac site. Until this week I visited because of my profession as a dietitian at a Critical Access Hospital (we have 25 beds in a rural area) and my interest because of family...
  16. mari-lyn
    Jeanne, Your message about South Beach diet was interesting as I have been an advocate of it for 3 years. My spouse came home one day and asked me to look at it and get a copy (I am a dietitian). I started a Weight Management Group using his methods..and he was asked to the annual Dietetic Assoc. meeting in St. Louis last year and he signed by book. I...
  17. mari-lyn
    I will try to find a can tomorrow and look at the ingredients. If it is gluten free and you do not have problems with dairy meal replacement products can be used very successfully. Yes, whole foods are better but something is better than nothing. There is a low carb version that might be better all around - the original has too many sugary carbs in my...
  18. mari-lyn
    I am just today having the blood test for screening. My first hint was a rash on my feet and hands. I thought that the scaley stuff on my head was from a new bar soap that a local lady produces - leaves the hair very soft. Now, that I am carefully feeling around, the spots are not big bit scaley. If it was a build up from the "shampoo" I would think...
  19. mari-lyn
    Any help appreciated.
  20. mari-lyn
    ...but to my Dr. credit she FAXed me a lab order (I work in a small rural hospital). I was able to go to the lab and have the blood drawn and out in 10 minutes (and that included registration...I guess there are a few perks). They send it up to Mayo Clinic so I will know in a couple of days. My symptoms have been kind of hard to describe. Twitch itchy...
  21. mari-lyn
    As you read the above replies you might get some answers to your questions. You could have celiac and a sensitivity to wheat (from touching it). But I have known people that use to be able to bake with wheat flour and now cannot. So, it may be a progressive thing...or we are just getting older and nothing works like it use to. good luck Marilyn
  22. mari-lyn
    It is hard to handle when people are in denial about this. I started a support group a couple of years ago. Lots of the members have siblings and children who will not go get tested because "they cannot live like that". Well, knowing that not following a gluten free diet if you do have celiac is setting you up for all sorts of health problems and possibly...
  23. mari-lyn
    I am going to eat gluten (maybe I just had my last pizza) today and tomorrow and then get in for a blood test. I am sure my M.D. will not want to do it based on the rash so I am going to lie and say I have the typical GI symptoms. Given that if I come back with a negative I am going to consider the genetic testing. Thanks for the response - I cannot...
  24. mari-lyn
    I posted this under another forum before I found this... About a month ago I had a blistery rash between a couple of my toes on both feet. Not symetrical but close. It spread on to the top of my foot but not too far. I assumed it was Athlete's foot (confirmed by my son and my doctor ) even though I had never had this before. All the Lotramin and foot...
  25. mari-lyn
    About a month ago I had a blistery rash between a couple of my toes on both feet. It spread on to the top of my foot but not too far. I assumed it was Athlete's foot, even though I had never had this before. All the Lotramin and foot powder in the grocery store did not get rid of it. When I got a rash on the heels of both hands I figured out it was Poison...
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