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2boysmama

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 2boysmama

  1. 2boysmama
    Her best bet is to try to keep it simple with whole foods - meats, veggies, and fruits. When you try to incorporate too many of your "old" foods, it gets entirely too frustrating, I've found.
  2. 2boysmama
    My older son had that "protruberent belly" (as his allergist called it), just like your daughter (she's a cutie, BTW!). He was diagnosed through Enterolabs at 3, and at the age of 5 now has a little washboard belly. My youngest does, too (he's 2.5 and has never had glutens). I'd get her checked out, or do a gluten-free diet trial.
  3. 2boysmama
    Well, if I'm understanding your question correctly....the standard definition of celiac disease is villi damage. BUT, that's a little tough to depend on because it depends on the right section just happening to be biopsied, and enough damage being done to be detectable. However, that doesn't rule OUT celiac, it can rule it IN if they find that type of evidence...
  4. 2boysmama
    Of course the spray would have to be non-toxic, gluten, dairy, egg, nut, soy, corn, etc. free so as not to make anyone with other allergies sick too!
  5. 2boysmama
    The way I look at it, FWIW, isn't that my immune system is weakened - but rather highly sensitive. So I keep things like immunizations to a minimum because of all the garbage in them. I don't immunize my youngest, and none of us gets the flu shot. I prefer my immune system be allowed to do the job it's supposed to do - fight off illness, rather than trying...
  6. 2boysmama
    My older son had negative bloodwork too, but tested positive through EnteroLabs, and also stopped having diarrhea, gas, bloating, stomach aches when we took him off gluten. He was also tested for food allergies, but didn't test positive for soy allergy. Soy milk gave him HORRIBLE diarrhea. According to his allergist, he "couldn't" be allergic to soy since...
  7. 2boysmama
    Oh boy, do I remember having that struggle with my son's GI doctor as well. They sure have a knack for making you feel incompetent, don't they?? For what it's worth (maybe nothing! ), here's what I did. I had my older son tested through Enterolabs (he was my only child at the time). It came back that he did in fact have malabsorption and two genes...
  8. 2boysmama
    Just wanted to throw in my .02. Gluten DEFINITELY passes through breastmilk. We started the gluten-free diet for my older son when my younger was just a couple weeks old. I noticed the younger one (exclusively BF at the time) started having stinky orange poop - definitely not the usual yellow mustard-seed breastfed baby poop. I took glutens out of my diet...
  9. 2boysmama
    We've been gluten-free for three years now, and to be honest, even I have trouble telling still. Complicating matters further for us is my youngest is also allergic to dairy, soy, and eggs, and exposure to those causes diarrhea as well. For me personally, gluten exposure symtpoms are different than flu symptoms, but it's definitely hard to tell with kiddos...
  10. 2boysmama
    It is funny. My son seems to be able to handle whole soybean flour and soy oil, but any other form of soy - forget it. I have high hopes he'll outgrow his allergies (egg and dairy along with the soy), like big brother did when he was 3.
  11. 2boysmama
    Same here. I hate that garbage, it's almost as pervasive as glutens.
  12. 2boysmama
    ohhh I see what you're looking at. I did miss the soybean oil ingredient. For some reason my son doesn't seem to react to soybean oil, and from what I understand some soy-allergic individuals can tolerate soybean oil, but he most definitely reacts to soy lecithin - irritability (MAJOR irritability) diarrhea, diaper rash...the "new" rice bars are new to my...
  13. 2boysmama
    Nope, unless I'm missing something. I even double-checked it online (where they show an "old" box). Here's one: (scroll down for the ingredient list) Open Original Shared Link Here's the new one - unless it's a completely different product (I wasn't the one who went to the store, so that's why I'm not sure) : Open Original Shared Link
  14. 2boysmama
    Recently my DH went to Whole Foods and bought EnviroKidz rice bars (a regular staple at our house). My younger son is allergic to dairy, soy, and eggs along with his gluten intolerance. I noticed the boxes looked different, flipped it over and the berry ones now contain soy lecithin. He had a couple bites of one while I was reading the label....the next...
  15. 2boysmama
    My son has two copies of the DQ1 gene. His results are HLA-DQ 1,1 (subtype 5,5). He was diagnosed at 2.5 years and never had any neurological symptoms - though he did have added food allergies - egg, soy, and dairy, and would react VERY quickly to an exposure with rash/hives around his mouth, and a little later would have diarrhea/diaper rash. I've noticed...
  16. 2boysmama
    Many specialists are very hard to get into in my city, as well. Being celiac yourself, you know that regardless of the "official" diagnosis (celiac vs. gluten intolerance) the treatment is the same. And really - when they're rebellious teens a piece of paper isn't going to make much difference to them. They're going to cheat if they want to cheat - the...
  17. 2boysmama
    Thanks....I need to post a new one, that's a year old! Yup, ITA Vicky.
  18. 2boysmama
    Cool, thanks.
  19. 2boysmama
    I've posted before about how fortunate we were to find a wonderful, supportive pediatrician. Well - I took Aiden (the 19 month old) in for his 18 month checkup on Friday, and he started asking me about Enterolabs for one of his other patients. Evidently after I told him about our experience with trying to get a diagnosis on our older son and using Enterolabs...
  20. 2boysmama
    My 19 month old is getting an upper GI study done on Monday...does anybody know if there's any problem with the barium, as far as it being gluten-free? Our pedi knows all too well our issues, but I didn't think to ask him (not that I would necessarily expect him to know).
  21. 2boysmama
    Your son sounds very much as my older son did when he was around 2. Very tall & thin (off the charts for height, about 30th percentile for weight). Had the "protuberent belly" (as his allergist called it), tested negative for celiac disease via blood/stool....and I was told he didn't "look" like he had celiac. His GI doctor tried telling me him having...
  22. 2boysmama
    Thanks everyone! I ended up finding a liquid vitamin at Wild Oats - I'll have to post the name later since it escapes me at the moment. It's gluten, dairy, soy, artificial anything free. Aiden can be a little tough to please with flavors/textures because he has reflux so he's gotten pretty picky. He seems to be doing ok with the liquid ones so far.
  23. 2boysmama
    I was wondering if I could get some gluten-free/DF vitamin suggestions. My four year old willingly takes the Animal Parade chewables, but my 18 month old just kinda looks at me like I have three heads when I try to hand him one. I know vitamins are important for celiac/gluten intolerant kiddos, particularly calcium & vitamin D. TIA!
  24. 2boysmama
    Same here. My son also had tummy aches and his food allergies cleared up as well.
  25. 2boysmama
    Just wanted to add - I had my older son blood tested through the "traditional" labs at the hospital - he was negative for celiac disease. Testing through Enterolab showed he has gluten sensitivity and has two genes for that, but none for celiac.
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