Alice-in-Nederland
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Scott Adams reacted to a post in a topic:
Gluten free for many years but still struggle with anemia
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Hello everyone! Just wanted to post some updates. My colonoscopy and endoscopy went well and doctor said that everything looked normal. The biopsy results just came and they are normal too! So relieved! No signs of refractory celiac disease. For the past several weeks I have been taking floradix every other day and I added more red meat to my diet. In addition...
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weight gain
Alice-in-Nederland replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Madmom I had similar experience! I also gained ~10lbs within first 6 months, and then 10lbs more until my weight stabilized. I had same weight for almost 9 years now. I took it as a good sign, I was finally absorbing all nutrients. I would like to lose some weight now (bikini issue as well :D), low carb diet is the only thing that works for me. And I also... -
Hi Posterboy! Thank you for all this information! I have been using vitamin B complex for many years and it really helps with my brain fog. Recently I stopped with it because I was getting random muscle twitches on a daily basis and I wasn't sure what was causing it, so I started to eliminate my supplements. Now that I know that these twitches are caused...
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Hi HLM! Thank you for letting me know about your experience! I eliminated dairy from my diet for several weeks now - it is too early to tell if it has any effect on my iron level, but at least my digestion has improved. Can you tell me how did you get tested for egg and dairy sensitivity? Is there some test for food sensitivity or was it simply by eliminating...
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You are completely right, there are two versions of Floradix, also here in Europe, and they look identical! I read label 5x to make sure I had gluten-free one. They could have invested a bit more effort into packaging
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Hi HappyPlace! Thank you for your response! I never heard of hepcidin before and that it has such important role in iron absorption. I will discuss this with my doctor. It really helps to gather all this information before my appointment so I discuss different options with my doctor. So far focus was on bleeding somewhere in my stomach and many invasive test...
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GFinDC reacted to a post in a topic:
Gluten free for many years but still struggle with anemia
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I guessed as much, but it's better than nothing 😔
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Thanks! So far I have been taking a glass of fresh orange juice every day and I add strawberries and blackcurrant to my breakfast. And Floradix also contains some vit C but not sure in what amount. I hope it all helps...
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I am taking iron already in liquid form (Floradix), I started 3 days ago. My endoscopy showed healing of the villi quite quickly on the gluten-free diet but it took 3 years before my anemia improved a bit on its own. However 6.8 was the highest I could reach, whereas normal level is 7.5-10 for women. Anemia also runs in my family, but I am the only one ever...
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Hi madmom! Thanks for your reply. My antibody levels went down when I started gluten-free diet and they have been down ever since. Some articles say it is possible to have refractory celiac disease even when antibody levels are down, which is what frightens me 😬. I do have my periods but they are mild, and I don't think they could explain such low iron. I...
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In two weeks I will do several blood tests, and I noticed one of them is for b12 level. But I don't think I was ever tested for it before. I wonder what results will show.
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Hi! I never heard of that cooking tool! looks really interesting! I will try to order one lucky fish. Thanks for that info! I have been tested for blood in stool several years ago but the test was negative. I don't want to sound gross, but I always check my stool and I never saw anything unusual.
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I would sometimes by accident get box of gluten-free cookies and only see at home that they contain gluten-free oats. So apart from these accidents, which are rare I do not eat oats. Dairy is another story Indeed hard to avoid that in the Netherlands. But I have now kicked that out of my diet too (in the last week or so, but I plan to stick to it). Over the...
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Hi trents, and thanks for your reply! I am on a strict gluten free diet and I never cheat. That means I only use fresh food or products marked by gluten free symbol and I cook my own meals. However, I do occasionally (~once a month) go to a restaurant, where I would call in advance and explain that I am celiac and I need absolutely gluten free meal. I cannot...
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Hello everyone! I am new to this forum and I am really happy that I have found such large and supportive gluten-free community. I have been reading previous content and it was most helpful. I am writing here to get more insight into people's experience with gluten-free diet and anemia. I have been diagnosed with celiac disease 8 years ago, and...