Jump to content

elaine33

Advanced Members
 View Profile  See their activity

  • Posts

    47

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by elaine33

  1. elaine33
    OUCH. I don't even know how to respond. I asked for help with a specific situation about my son (who you have no idea about) and everyone has been incredibly helpful. You have no idea about my life. FTR, if it makes you feel better, I have been in counseling for years because of dealing with this illness that no doctor could figure out for me until just...
  2. elaine33
    Oh, that is so helpful. I am not glad that you have fussy eaters, but I am SO glad I'm not alone. Ryan has always, always, always been fussy even with baby food. It was incredible to me because my daughter by 18 months was eating everything - olives out of the jar, escarole soup (I remember her picking the bowl up and drinking the juice from it), salads...
  3. elaine33
    Ryan is majorly fussy about his foods. He only eats about three or four different proteins - my meatballs, Perdue nuggets, grilled cheese, cheeseburgers and hot dogs - and pizza, too. The pizza and grilled cheese are out because of milk, Perdue nuggets are out because of wheat, hamburger can only be eaten on a plate now same with hot dogs. I'm not sure...
  4. elaine33
    We are both casein and gluten free. Thanks so much for the great ideas!!. Nini, I am so hopeful about the Ian's chicken nuggets. Nuggets have been a favorite of his for a while and thinking of taking them away from him has been a major hurdle for me. Are they any good? I looked on their website and it says Acme and Shop-Rite have them so I will have...
  5. elaine33
    Thanks Bill, I don't think tomorrow I will be able to make it possibly the cookie exchange. How long do meetings go? I teach Sunday school and then have church after so Sundays are a bit rough for me for doing things.
  6. elaine33
    Thanks so much for all the wonderful suggestions. I should have mentioned that we have milk problems as well. I did buy Alexias potato wedges to make with steak for dinner tomorrow night. Are all Ore-Ida fries gluten free because we love Crispers but it wasn't on the list that I downloaded from someone's signature in this forum? (I"m sorry, I can't...
  7. elaine33
    Thanks so much. Well it has been about 7 hours and we are still well. I always bought the Aunt Jemima, too, but I wasn't sure if that was gluten free or not that's how I wound up with the pure maple syrup. It was good and no preservatives so I think we'll stick with it, although it is more expensive.
  8. elaine33
    Ryan is SO fussy and this is making things extremely stressful for me in terms of getting him to stick to the diet. We are going full force the following week because it is conference week and he will be at home for lunch so that will make things easier. I am trying to plan and stock up for our elimination week. Any helpful ideas would be SO appreciated...
  9. elaine33
    I've been to local health food store and Whole Foods, but now I'm going regular shopping and hoping to save a lot more money getting as much regular stuff I can at the supermarket. What regular kid-friendly foods can you buy. Rice cakes okay there or do you have to go to the health food store? How about rice crispy treats? Rice cereals?
  10. elaine33
    I went to Whole Foods Thurs and brought real maple syrup. I opened it when I came home to see how it was and put it in the pantry. This morning I made Pamela's gluten-free pancakes for DS and put the syrup on, but when I was putting it away I saw that it was supposed to be refrigerated. Are we going to get sick?
  11. elaine33
    Thanks everyone. Amooliakin, I think that is what I am feeling about knowing for sure. Is the for sure test the biopsy, though? I do have a fear of surgeries because I have major issues with medications and anesthesia (I actually crashed during my c-section delivering him because of the spinal and the narcotics they put in it). I am pretty much sensitive...
  12. elaine33
    Thanks jayhawk, mama and nini, for the input. I guess because of skeptical people in my family I feel like I need some type of proof more so than a diet. I guess I am needing to hear that the diet is a valid diagnostic tool. Mama, my Ryan is 7, but has been 97th percentile since he was about 18 months. He was 8'4" at birth. Besides the belly issues...
  13. elaine33
    Ryan is 7. He has always been a very allergic kid, colicky, gassy, baby eczema, diagnosed with allergies and asthma by age 4, spent three months breaking out in hives a few springs ago, etc and at times can be pretty unfocused and hyper. He allergy skin tested at 4 and was negative for everything. He has also been very fussy eating new foods and has...
  14. elaine33
    It seems most of my reading about celiac disease indicates a major weight loss. My son has no problem with weight gain, but he has asthma, fatigue, crankiness, extreme tummy pains and gas with whole wheat. I haven't decided if I am going to proceed with testing/biopsy or just the elimination diet, yet. My symptoms are more neurologic. When I was at...
  15. elaine33
    That's good news. Thanks so much.
  16. elaine33
    Are the brand name microwave popcorns okay for an occasional snack? My son loves them.
  17. elaine33
    I was taking very high doses (my sister has MS and she takes it this way). Averaging, I think I took 500 mcg every three days for about two weeks, so about 2000 to 2500 mcg? Here is a link to what I was taking - don't know how mcg converts to mg ? Open Original Shared Link
  18. elaine33

    ARCHIVED Infertility

    elaine33 replied to Natlay's topic in Related Issues & Disorders

    I had infertility issues and irregular periods my whole life. I had two late pregnancy losses and saw a reproductive endocrinologist, who diagnosed me with polycystic ovarian syndrome because of the appearance of a lot of small pearl-like cysts on my ovaries. His information was so much more helpful and accurate than my OB's, so I would recommend a reproductive...
  19. elaine33

    ARCHIVED B12 Levels

    elaine33 posted a topic in Related Issues & Disorders

    My mom was diagnosed last winter with a B12 deficiency. She lives 1500 miles from me with her husband so I don't know a lot of her medical history, just what I get from her husband as she has some dementia and she also refuses to talk about a lot of things. She has always had chronic health problems very similar to mine, so I have a lot of fear I am headed...
  20. elaine33
    this place at Jeff sounds great. how did you find your way there? Well my son and I had been to a ton of different purely medical doctors. Some were totally not helpful and some were trying really hard to be helpful but had no real answers for us. My sister has MS (now I'm thinking she's celiac), and she has done totally holistic therapies including...
  21. elaine33
    Hi Judy, I grew up in Media, by the way , graduated from Penncrest, and still live in Delco. The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind...
  22. elaine33
    Thanks for all the information. We are still eating gluten as this is all just now coming to light for us. I have to say I am feeling so frustrated right now as I have had symptoms of this for years, have told numerous doctors about this, have seen specialists, neurologists, cardiologists, endocrinologists for all of my health problems and no one has...
  23. elaine33
    Hi All. My name is Elaine and I am very close to turning 40 years old. I live in Pennsylvania with my husband and two children. My 7 year old son has had allergy issues since he was an infant, with rashes on his face, gas, breast and formula intolerances, terrible colic finally dx with mild asthma not significantly helped with a lot of the coventional...
  24. elaine33
    Hi, I'm new and I'm outside of Philly. I obviously missed the October meeting but would love info about the next one.
  25. elaine33
    Oh my. Hello. This is my first post here. I have no diagnosis yet, but have seen an integrative M.D. and a nutritionist and the nutritionist is convinced without any testing that both me and my 7 year old son have wheat/celiac intolerance/allergy. I am having to start with an intestinal permeability test for leaky gut. I can't even begin to list the...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.