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Peta

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Peta

  1. Peta
    Took my 15 year old son to the doctor again today. He is still very low in iron and is awaiting a biopsy (hopefully in the next few months). He has had the HLA DQ2/DQ8 genotyping for Coeliac. The results were: HLA DQ2 Alleles DQA1 *05 Positive DQB1 *02 Positive HLA DQ8 Alleles DQa1 *0301 Positive DQB1 *0302 Positive ...
  2. Peta
    Thank you. I respect all opinions.
  3. Peta
    Thank you for your replies. I didn't realise that false negative results were so common? Thanks for the advice about asking for extra samples when they do the biopsy. I will certainly ask for that. I won't trial a gluten free diet as I want the biopsy done first. The Gluten-free diet is so restrictive that I don't want to just 'presume' he's Celiac...
  4. Peta
    Hi, I would really appreciate any opinions on this. My son is 15 years old. He is 6'2" but only 60kgs... he is very thin but eats plenty. HISTORY: We suspected Celiac a few years ago. In 2003 the doctor ran a gene test for HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302. It came back all positive for all four. Considering his symptoms (nausea...
  5. Peta
    Rumbles, Thankyou for taking the time to answer my post. I feel the more informed I am when we approach all of these tests the more I will understand about the results. I will certainly make note of your advice as I have heard of that before. Add to my list... dental problems (teeth growing above teeth...and bits breaking off!?) I feel satisifed...
  6. Peta
    Hi to all. I just want to run a few things by you all and see what you think. My 11 year old son has suffered GERD since he was born...he has tried many things and was referred to a specialist 4-5 years ago who did a biopsy for celiac whilst testing for GERD. The test was clear. Fast forward 4 years and his GERD remains... plus he has a new problem...
  7. Peta
    I, like you, did not understand why everybody suspected of Celiac did not have a gene test taken automatically. I thought surely this would removed the need to be periodically tested for some people (those without the genes)? But after visiting a specialist I now have a better understanding why the gene test is not standard. My local GP referred my son...
  8. Peta
    Yes, she used that word in amongst all the talking she did? Do you know anything about it? Peta
  9. Peta
    Hi All, Took my son for his appointment with the specialist. She assured me that my son does NOT have celiac, and proceeded to check for other causes for his symptoms. She was a specialist and is very informed on celiac. She said that although he may develop celiac at some later stage (or may not) that he definitely did not have it at present. She...
  10. Peta
    My son's tTg (which I presume is Tissue Transglutaminase IgG and IgA) was <20. The normal range was <20 so he appears normal there too! Yet she still said he needs a biopsy. Our local doctor pointed to the gene results on the screen and said "it looks like he is celiac" so in other words, not really sure she knows what she is looking for. I am...
  11. Peta
    I don't think even the doctor knows if they are borderline because other than '<20' there were no other figures printed, so we only know they were under 20 (which is normal) His blood test shows low white cell count, low lymphocytes and a low ferritin level. The doctor may have taken these into consideration but from what she said I think she is...
  12. Peta
    Just curious. My 10yr old son had the Celiac Panel done (5 tests). The normal range stated <20...... my sons results on these test was <20 but did not give the actual figures. Are the figures relevant if they are considered in normal range... how would I know if he was IgA deficient (or would this have shown up in the other parts of the test...
  13. Peta
    Thanks. Knowledge is power, and the more I know the more I want to know. Peta.
  14. Peta
    I did have a ridiculously long post written but then deleted it because I realise that I would be better off just asking the questions I needed to know (instead of a life story ).... 10 yr old boys FERRITIN level 19 (normal range 7-150). Although he is classed in 'normal range' could he still be considered Anemic? His white cell count and lymphocytes...
  15. Peta
    I feel this is such an ongoing drama... but when I read the amount of time it took some of you to get a diagnosis I feel it perhaps isn't so long afterall. My 10 yr old son is awaiting a biopsy, which was ordered by his doctor who announced 'It looks like your son does have celiac'. After asking for a copy of his blood test and celiac panel I realised...
  16. Peta
    Thankyou all so much for your valuable information. I am surprised that if gene testing can, in most cases, rule out the need for regular testing (provided it is negative) then why isn't it used more commonly? When my nephew and sister were diagnosed with celiac their families were also blood tested but were told they may have to be re-tested at other...
  17. Peta
    To all you KNOWLEDGEABLE people!!! Firstly, forgive me if I don't make sense? This question comes from someone who is trying hard to learn! I have just spent 3 hours searching the net for information on what it means to have BOTH HLA DQ2 Alleles (DQA1*05 and DQB1*02) AND HLA DQ8 Alleles (DQA1*0301 and DQB1*0302) I can find lots of information on...
  18. Peta
    Glad you said that.... because I feel like a pest. I thought I would just add to this post rather than start a new one because my question is the same? I tried to post last night and yet my post has showed up nowhere? How long does it take to be 'pinned' because I wrote the post about 18 hours ago. Does it usually take that long? I am not nagging...
  19. Peta
    My 10 year old is due to have a biopsy in Feb in early Feb. I am feeling doubtful they will diagnose him as Celiac because his antibodies all returned negative, however he blood test had irregularities (slightly low WCC and low Lymphocytes) and has 2 DQ2 Alleles and 2 DQ8 Alleles which certainly puts him at risk. My son has some of the usual symptoms...
  20. Peta
    Thankyou for the information. I looked up information on Alleles on the internet and it has enabled me to understand a little better. When I say he has symptoms off and on I mean that sometimes he is lethargic, sometimes not, sometimes he has stomach pains, sometimes not, sometimes ulcers, etc. I am going to follow through with the biopsy just to make...
  21. Peta
    The gene test reads ... HLA DQ2 Alleles DQA1 *05 Positive DQB1 *02 Positive HLA DQ8 Alleles DQA1 *0301 Positive DQB1 *0302 Positive Doesn't this mean he has both of DQ2 and DQ8? What does that mean? Peta
  22. Peta
    I took my 10 year old son to be tested for Celiac as he was underweight and had symptoms off and on. Plus both my sister and nephew have Diagnosed Celiac, and my father is being tested. My doctor did a Celiac Panel test and a full blood count. The Celiac test came back negative for Gliadin IgG & IgA, and negative for Tissue transglutaminase IgG...
  23. Peta
    Found this interesting article about "CELIAC DISEASE WITH NEGATIVE ENDOMYSIAL" Thought it may be of interest to some people who recieve negative bloodwork but feel that they still have celiac. Not sure how to do a link so you may have to cut and paste...sorry! Open Original Shared Link
  24. Peta
    Thankyou for your responses. I have SOOOO many questions that I wish I could connect my computer directly into your brains and extract all that wonderful information....as I'm hesitant to drive you all mad on this site by asking my hundreds of mindless questions! Peta
  25. Peta
    I have been trying to look up a question on the internet but cannot get an answer. The people on this site seem to have more knowledge of celiac than anywhere else you hopefully you can help. Does it make a difference to the likelihood of having celiac if you have certain combinations of the DQ2 and DQ8 genes? If my son has both DQ8 genes and both...
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