
sonja69
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by sonja69
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hi all! my test results are back. i made a big food antibody assessment test (IgG) with approx. 100 foods, it is so disappointing. tuna is 'low' (+1) --> okay, I get reflux from that so i eat it only occasionally cane sugar, celery, millet, sole, cantalupe, cherry, mung bean, spinach, carrot, mais gluten, peanut, watermelon, cashew, filbert, rice...
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ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi Jeanna!! thanx for your kind words! it's okay, I feel sad, but I made the decision approx. 6 month ago, so it's okay for me. at least it feels better than thsi disappointing and resultless search to get better physically. argh!! bye, bye, Sonja -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi all! I am back! i was very busy and had not really news on the bloating front. it has been slightly better since glutenfree, but it's always better when i am not eating more than a certain amount of food/day. stool is not better and my scin is only slightly better, but it's spring now, and the hard winter time is over, which is always hard on my face... -
ARCHIVED Fruit Causing Bloating?
sonja69 replied to ReneCox's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
there are several options: i) the fruits you eat cause an allergic reaction (IgE) which sounds plausible since you have the feeling of swelling in your esophagus. ii) you might be fructose intolerant although the symptoms you describe are unusual. if you are fructoseintolerant you cannot take up the fructose via the GLUT transport system in your small intestinal... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora, thanks for the kind words. the test I ordered was a Food Antibody profile assessment from Scandlab, Stockholm. 140 foods and additional spices and veggies will be tested on both IgG and IgE. and pollen and other airborne stuff. it was very expensive but this way I do not have to make an appointment for testing possible IgE issues. I had to... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi Jem123, thanx for your answer! I already had three blood tests and a biopsy, all were negative. I am still searching for answers as you can read in the whole thread if you have time. that dr are useless to ca. 95% seems to be a global problem: I experienced it in germany and sweden, where I live, and read alot of stupid things and bad experineces... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi! back again and bloated as usual yesterday I finally managed to give some blood for my IgE and IgG food antibody testing and now it's waiting, waiting... I begged the nurse to handle the blood samples accurately and send them back to the lab as soon as possible according to their instructions. this test costs almost a 1000 $ so far and I really... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora!! I recently read about the SCD, just by coincidence, but I am not sure, if this is good for me, since there's a lot of fruits & veggies involved. since i get very gassy after them, i am not sure. but i ate rarely fresh fruits and veggies, maybe it's just temporarily, since a lot of people get gasses in the first time. or it's fructose, but... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi CMC, thanks for sharing your experiences. it's so tricky and frustrating. some days I can have fruits or veggie, some days not, pure fruit sugar did not cause any problems in the first 24 hours, and then of course, i ate a lot of other stuff afterwards, so how will I ever know? i do not understand, how other peoples came to conclusions with their... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi Claire! yeah, i am still reading but was soo buisy with all: work, my mother-in-law died, depression and this constantly thinking about what to eat and what not. thought about leaky gut too. but i do not really know where to start. why am i bloated for 25 years only because i am eating? whatever, i ordered a allergy profile test which tests both... -
ARCHIVED The Tuesday Club At Www.foodintol.com
sonja69 replied to hathor's topic in Coping with Celiac Disease
yeah, me too, and then I can't hardly read all the stuff and digest informationen due to less time.... good luck, Sonja -
ARCHIVED The Tuesday Club At Www.foodintol.com
sonja69 replied to hathor's topic in Coping with Celiac Disease
hi hathor, I am not subscribed to the tuesday club, although registered for free. since then i get emails from them every day, sometimes more than one with extremely sensational headlines like 'get rid of the bloating today' and so on. this makes me suspicious. and I find the membership is not really cheap... i bought some books on food intolerance... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora, yeah, of course probiotics not antibiotics (that would be really bad). too much in my head now, sorry. would do you mean by that? what's SCD? I thought about that and if I am abroad I usually tend to eat not much fruit, but at work and home I always eat bananas and sometimes apples (we get it for free at work), it's a good... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
THANKS -
ARCHIVED Answers To Symptoms,dry Skin Ect.
sonja69 replied to Paulr's topic in Coping with Celiac Disease
hi! I think the dry skin is the result of the watery stool. your intestine accumulate a lot of fluids from your body and then your skin becomes dry. the fluids will eventually flushed down the toilet I have the same problem, in my stomach and intestine, water accumulates and I feel very thirsty and 'dry'. I also have dry skin, probably because i have... -
ARCHIVED Other Food Intolerances/allergies
sonja69 replied to katrinamaria's topic in Food Intolerance & Leaky Gut
hi katrinamaria, if you are on the elimination diet you need to be strict! 'a bit of a slip up' can turn all upside down. you really need to plan it and stick to the plan. it's tricky, it's hard but if you're not strict, everything will be useless. you need to rely on food you can eat at least one week or more until your symptoms disappear and if/when... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi you all! thanx for your answers! i started with the elimination diet as recommended in some books: the rare/few food diet, where you can eat things you did not eat often in the past or not at all and cut out the obvious culprits like dairy, corn, soya, nightshades, peanuts etc. this makes sense to me. thus i do not eat rice (and nightshades, milk... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi again! I am on an elimination diet now, a rare/few foods elimination diet. today it's the 3rd day, and I quit diary since last friday. I ate the last days: lamb, porc, beef, sweet potatoes, parsnips, buckwheat, millet, zucchini, cocos milk, sunflower seeds and it's oil foor cooking, pumpkin seeds, hazelnuts, pears, bananas, tea, water. all these... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Nora, I was very busy this week and could not answer or read in the forum. thanks for help and 'congrats' to your test results! now, you are one step further. I thought about that test too, it's possible in sweden but as always more complicated here. and I have to add gluten back if I decide for the test. it's all so confusing, I run through my life... -
ARCHIVED Another Idiot Doctor
sonja69 replied to GlutenWrangler's topic in Coping with Celiac Disease
it's really astonishing that non-knowledge of the 'medicine men' community is so global. whether you're in europe (germany, sweden) or in the US and canada, there are so many that actually have no ideas about medicine, about illnesses, symptoms, treatments and unfortunately so few who knows what they're doing. if I would do my job in the way that dr do,... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi celiacbuzzroom, I am really sorry for you,your life is really hell, mine is a piece of cake against it. have you tried going glutenfree? you may try an allergy test or intolerance (IgG) test (www.yorktest.com , I do not know if this is available in the US) or elimination diet. doctors can be so ignorant or have no knowledge about that. take your faith... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora, thanks for your feedack!! I am really sorry for you that you had to give up school and so on. yeah, it's weird that being away from home has this effect, or I am just distracted from my problems? do not know, I will do some research and see if I can find this medicine. maybe one can order it from the internet. I also know about the... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora, my two days with my friends were very nice. although I had troubles with no bowel movements, I was NOT bloated and felt good. of course I ate only gluten-free and lf. NO stuffed feeling, NO bloating, no nausea. today, I was here for one evening and night, I had diarrhea, I am bloated to hell and the whole night I was so nauseaous and was vomiting... -
ARCHIVED Devastated! Everything's Fine With Me?
sonja69 replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi nora, it's almost now a thread for you and me but I am so happy to talk to you and get some input. are you actually fine now or do you have still troubles? hopefully, I can 'help you back' some day... I have/had milk for my whole life and I read about foods you are craving much can be the culprits. I really do like milk in the coffee and... -
ARCHIVED What Do You All Thinnk?
sonja69 replied to Karwei5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi! I saw something about that down-syndrome and glutenintolerance/-sensitivity is related. I saw a TV program (in europe though) of a fosterfamily in the US which had around 13 children, and the majority of the kids had down syndrome and were glutenintolerant. I rememeber it well, since I was thinking about that gluten might cause my problems and I...