ACottrell

Oh, that is priceless!

I opted not to do the biopsy and we don't even have the family history of it. I think it is a bit too invasive for kiddos and from what I hear from the ladies on this board, it can only rule it in, not out. Apparantly, false negatives aren't uncommon, so I don't see the point. I would just try the diet, like the pp said.

Hi, Well, we had pretty much decided DS had celiac after blood results showed his antibodies elevated. We didn't want to do the biopsy, so we just started the diet. It has been working really well! Today, our full allergy panel came back and DS tested positive for a wheat and egg allergy. Now, I know a wheat allergy is a bit different from celiac...

DH and I were leaning toward home school for our kids and DS' recent diagnosis of celiac has only confirmed that decision. I don't envy those of you who will/do have to deal with people who are ignorant on the subject. Sorry to hear about your little one!

Thanks a lot, everyone. Yes, it is such a relief that we seemed to have solved this medical mystery that is my tiny son. Oh, and Mom to Claire, is it possible her weight just can't keep up with the fast growth right now and that she will plump up once this little growth spurt is over? I'm not sure how all that works exactly and I'm sure we all grow...

Wow, my son has been a failure to thrive baby for months now, but started growing almost immediately when we started the diet. He has grown 1.25 inches and gained half a pound in two weeks! Can you believe it? My doc wouldn't have if we hadn't made her measure him today. We are so happy- thank you all for the wonderful advice. I'm so glad I finally found...

I completely agree and have seen the same quick results. Better diapers, weight gain, and he is already outgrowing his pants! Why question what is clearly working? It's not like we're getting tunnel vision here, either. If the allergy panel discovers other things, then we will address that as well. It's just so good that he is growing finally, do we really...

We didn't flippantly decide to start a gluten-free diet. It was with much consideration that we decided against the biopsy and, from the ladies on this board, I see we aren't the only ones. Don't forget, there is a big difference between a 5-year old and a tiny 1-year old with failure to thrive. We feel it is simply too invasive and risky. A full allergy...

Your description of your son's stools and growth history is identical to my son's! He is now 16 months and has fallen off the charts. Ever since he started solids and stopped breastfeeding, his stools have been super soft and like 4 times a day. It goes all over the place, too. In fact, we were starting to just toss him in the bath to wash him off instead...

I really don't see the harm in trying it for a month or so and seeing if there is any difference. We've been on it for less than a week and my FTT baby has apparantly already put on weight! It just depends on how invasive you feel the tests are for that age. We're total softies and the bloodwork was all we could allow them to do to our son, lol. Granted,...

From what I hear from everyone, the only really accurate test is an actual dietary trial! I asked the GI doc if we could just do that and he started waving his hand, shaking his head, like it was a terrible idea.

Hi, I posted last week about my 16-month old who has failure to thrive and came back with a positive celiac panel. The GI doctor, of course, wanted to do the biopsy and we said we weren't interested. He was nice enough, I guess, but when I told him we already put him on the diet and saw results, he kind of shook his head and rolled his eyes. He said...

I'm so glad I found this site and decided to go ahead and start Jason's diet. We started Friday night and today he had the first solid bowel movement ever! I know it's not our imagination that he is improving now. DH even thinks he's grown already, lol, but that may be a little imagined. Oh, and I went for a prenatal appoinment today and my nurse practicioner...

Well, I wouldn't say he was completely gluten-free just yet. We started the diet two days ago and are still learning, so I am sure we've made mistakes. I picked up a book today: The Glute-free Bible. It looked like a good place to start for me. Even if they do testing on Wednesday, I don't know how much our new diet will affect it since we are learning as...

Oh, we are totally on board with attachment parenting. We have worn our son, co-slept, breastfed until he self-weaned, etc. He was thriving so well until about 10 months, which was about the time he really started eating solids. We never connected the two until now! And you are positively right, I shouldn't expect the little guy to be an independent sleeper...