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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ACottrell
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ARCHIVED To Biopsy Or Not?
ACottrell replied to katiejhawk's topic in Parents, Friends and Loved Ones of Celiacs
Oh, that is priceless! -
ARCHIVED To Biopsy Or Not?
ACottrell replied to katiejhawk's topic in Parents, Friends and Loved Ones of Celiacs
I opted not to do the biopsy and we don't even have the family history of it. I think it is a bit too invasive for kiddos and from what I hear from the ladies on this board, it can only rule it in, not out. Apparantly, false negatives aren't uncommon, so I don't see the point. I would just try the diet, like the pp said. -
ARCHIVED Allergy Panel Results In
ACottrell posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi, Well, we had pretty much decided DS had celiac after blood results showed his antibodies elevated. We didn't want to do the biopsy, so we just started the diet. It has been working really well! Today, our full allergy panel came back and DS tested positive for a wheat and egg allergy. Now, I know a wheat allergy is a bit different from celiac... -
ARCHIVED Dumb People Suck
ACottrell replied to vampella's topic in Parents, Friends and Loved Ones of Celiacs
DH and I were leaning toward home school for our kids and DS' recent diagnosis of celiac has only confirmed that decision. I don't envy those of you who will/do have to deal with people who are ignorant on the subject. Sorry to hear about your little one! -
ARCHIVED He Grew Another 1/4 Inch This Week!
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
Thanks a lot, everyone. Yes, it is such a relief that we seemed to have solved this medical mystery that is my tiny son. Oh, and Mom to Claire, is it possible her weight just can't keep up with the fast growth right now and that she will plump up once this little growth spurt is over? I'm not sure how all that works exactly and I'm sure we all grow... -
ARCHIVED He Grew Another 1/4 Inch This Week!
ACottrell posted a topic in Parents, Friends and Loved Ones of Celiacs
Wow, my son has been a failure to thrive baby for months now, but started growing almost immediately when we started the diet. He has grown 1.25 inches and gained half a pound in two weeks! Can you believe it? My doc wouldn't have if we hadn't made her measure him today. We are so happy- thank you all for the wonderful advice. I'm so glad I finally found... -
ARCHIVED First Visit With Pediatric Gi
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
I completely agree and have seen the same quick results. Better diapers, weight gain, and he is already outgrowing his pants! Why question what is clearly working? It's not like we're getting tunnel vision here, either. If the allergy panel discovers other things, then we will address that as well. It's just so good that he is growing finally, do we really... -
ARCHIVED First Visit With Pediatric Gi
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
We didn't flippantly decide to start a gluten-free diet. It was with much consideration that we decided against the biopsy and, from the ladies on this board, I see we aren't the only ones. Don't forget, there is a big difference between a 5-year old and a tiny 1-year old with failure to thrive. We feel it is simply too invasive and risky. A full allergy... -
ARCHIVED Infant With Signs Of Malabsorption In Stools
ACottrell replied to loomis's topic in Parents, Friends and Loved Ones of Celiacs
Your description of your son's stools and growth history is identical to my son's! He is now 16 months and has fallen off the charts. Ever since he started solids and stopped breastfeeding, his stools have been super soft and like 4 times a day. It goes all over the place, too. In fact, we were starting to just toss him in the bath to wash him off instead... -
ARCHIVED Suspecting Celiac In My Older Two As Well
ACottrell replied to FeedIndy's topic in Parents, Friends and Loved Ones of Celiacs
I really don't see the harm in trying it for a month or so and seeing if there is any difference. We've been on it for less than a week and my FTT baby has apparantly already put on weight! It just depends on how invasive you feel the tests are for that age. We're total softies and the bloodwork was all we could allow them to do to our son, lol. Granted,... -
ARCHIVED First Visit With Pediatric Gi
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
From what I hear from everyone, the only really accurate test is an actual dietary trial! I asked the GI doc if we could just do that and he started waving his hand, shaking his head, like it was a terrible idea. -
ARCHIVED First Visit With Pediatric Gi
ACottrell posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi, I posted last week about my 16-month old who has failure to thrive and came back with a positive celiac panel. The GI doctor, of course, wanted to do the biopsy and we said we weren't interested. He was nice enough, I guess, but when I told him we already put him on the diet and saw results, he kind of shook his head and rolled his eyes. He said... -
ARCHIVED Results From Diet After 3 Days!
ACottrell posted a topic in Parents, Friends and Loved Ones of Celiacs
I'm so glad I found this site and decided to go ahead and start Jason's diet. We started Friday night and today he had the first solid bowel movement ever! I know it's not our imagination that he is improving now. DH even thinks he's grown already, lol, but that may be a little imagined. Oh, and I went for a prenatal appoinment today and my nurse practicioner... -
ARCHIVED New Here- My Baby May Have Celiac Disease :(
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
Well, I wouldn't say he was completely gluten-free just yet. We started the diet two days ago and are still learning, so I am sure we've made mistakes. I picked up a book today: The Glute-free Bible. It looked like a good place to start for me. Even if they do testing on Wednesday, I don't know how much our new diet will affect it since we are learning as... -
ARCHIVED New Here- My Baby May Have Celiac Disease :(
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
Oh, we are totally on board with attachment parenting. We have worn our son, co-slept, breastfed until he self-weaned, etc. He was thriving so well until about 10 months, which was about the time he really started eating solids. We never connected the two until now! And you are positively right, I shouldn't expect the little guy to be an independent sleeper... -
ARCHIVED New Here- My Baby May Have Celiac Disease :(
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
I was afraid of that! I don't know what to do, frankly. I had such a knee-jerk reaction to the idea of the biopsy that my husband and MIL are totally on board and I don't have much room to waiver. I pray the doc is sensitive about this issue, rather than patronizing and clinical (asking for miracles there, huh?). I also don't want a refusal to do the biopsy... -
ARCHIVED New Here- My Baby May Have Celiac Disease :(
ACottrell replied to ACottrell's topic in Parents, Friends and Loved Ones of Celiacs
Thank you everyone for such helpful replies and support. To answer a few of your questions, his diet consists of yogurt, fruit and rice cereal for breakfast. For lunch and dinner, he usually has one of the Gerber toddler entree meals, which are balanced and healthy. They usually have some meat, pasta and a veggie side. He doesn't drink any juice, just whole... -
ARCHIVED New Here- My Baby May Have Celiac Disease :(
ACottrell posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi everyone, This is my first time posting. I have a 16-month old boy who stopped growing about six months ago. My former pediatrician just kept telling us to feed him more, despite the fact that I told him my son ate all day! Agh! Long story short, my NEW (and wonderful) ped. did blood work and a bone scan on my son. His bone scan showed his skeletal...