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RIMom

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  1. do a google search, but I'm pretty sure there is one in California. Unfortunately, he may fall through the cracks for camp. In RI, campers have to be 16 or younger and counselors have to be 24 or older. I would encourage you to help him find a local support group and a few restaurants that have gluten-free menus. good luck.
  2. Yes, it's great. I was a counselor last year and both my girls went too (ages 7 and 10 last year). I'm happy to answer any questions you have. The kids have a blast, the food is great... only complaint in my house, was not enough sleep, but it's only a week. You don't say how old you are, but if you respond back with more questions, I can be more specific...
  3. I would like to add to the great list for eating gluten-free in RI. Providence: Kabob and Curry Restaurant, Waterplace Restaurant (a Pinelli Mara restaurant... all their restaurants have gluten-free menus, even though they are not on line), Pizzaria Unos, Red Stripe in Wayland Square (has gluten-free french fries and Redbridge Beer, all their food is fab...
  4. RIMom

    ARCHIVED Seattle Area

    Hi everyone, just wanted to share our amazing success in eating out in Seattle on our recent vacation. We were traveling with two kids and my DH all of whom are gluten-free. We ate successfully at: Blackbird Bakery (yummy gluten-free berry muffins, chocochip cookies, and even fresh bread and rolls) and Casa Rojas (chips are freshly made and gluten-free...
  5. You sound like you are in great hands. Unless your son puts everything in his mouth I wouldn't worry too much. I arranged with school to keep a "goodie" bag of gluten-free treats in the cupboard so that if other children brought snacks to share (ie a birthday), she could have a pick out of her snack bag. We filled it with her choice of prepackaged items...
  6. New cereal spotted at Whole Foods last week. Called Penguin Puffs. It lists Kamut as primary ingredient, does not list Contains:wheat. I went searching on the naturespath.com website for more info. They are claiming that Kamut is gluten free. I sent them an email seeking clarification, but am confused. Also worried that one of the many label readers I have...
  7. interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).
  8. sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.
  9. we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it...
  10. Our local supermarket uses a Tsunami brand in store sushi maker guy. My daughter and husband successfully eat veggie combos (has seaweed wrapper, rice and veggies inside, they have single veggies or mixed ones). They can also usually eat the shrimp california roll (as long as it's not tempura or fried). The nice thing about getting it in the supermarket...
  11. I thought McDonald's french fries are not ok now..... Maybe the list is out of date. Can someone clarify
  12. Does anyone have a list of ok candy? I don't usually let my kids eat much candy, so I'm totally unprepared to deal with bags of unmarked candy coming in the door for Halloween. I know ingredients are on external packaging, but you don't get that. I really don't want to spend hours doing research or tell her she can only have M and M's. Anyone have an active...
  13. I challenged our doctors' insistence my daughter have a endoscopy. I said we had a positive response to a gluten-free diet and I didn't want to put her through it. He said the official line is he has to tell us to, but that "the most definitive diagnosis was a positive response to a gluten-free diet". He said if her symptoms come back or there are other concerns...
  14. I apologize for my earlier response, it was before I read about your other sensitivities. But, yes I agree, try the diet, and call the drug companies to ensure the drugs are gluten free if you insist on trying them. For many kids, gluten is an addiction and makes all so much worse for them. Make a huge deal about anything he tries, my friend calls it "no...
  15. It's all about substitution. my daughter was 4.5 when diagnosed. We went cold turkey. For the most part the whole house. I kept a few of my other daughter's favorite things, if and only if I had a comparable substitute for her. I use Tinkyada pasta, Whole Foods brand Sandwich bread, Lara and envirokids bars. Lots of rice, fruit, veggies and dip (she loves...
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