chatycady
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Me too. Pernicious anemia, liver trouble. But I'm not giving up. I really believe that if I fix my gut and get it back to normal, I can stop the cycle.
I read somewhere that the autoimmune system is fed through the gut. If the gut is messed up the immune system goes haywire.
Don't ya like my big medical terms!
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Have your read much about celiac disease and leaky gut? Could you have a leaky gut?
Your diet may truly be gluten free, but other foods are not being properly digested and undigested food and toxins leak into the blood stream causing all sorts of problems and symptoms.
Just a thought.
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THe homemade SCD yogurt is so very good! I will make it for the rest of my life!
I've been on the diet for 7 months. I have tons of energy. I get up at 5;30 go to work 7 to 5. Walk with my friend 3 miles, come home and ride my horse and sit down and write a few responses on this website and head for bed at 10.
I sleep sound and am ready to go again at 5:30.
2 years ago, I was lethargic, pale, weak - absolutely no muscles. Wasting away. I had ticks, couldn't speak a good sentence, tripped over my own feet, crabby. Couldn't get out of bed in the morning, came home from work, fell into my recliner and didn't move til 10. What a difference the diet made! I hope you are as successful!
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I too can't do any grains, dairy and citrus fruit. Don't understand the citrus fruit part. I can eat apples, pears, peached, but react to oranges, strawberries, lemons, etc.
I too use almond flour, but sparingly as too much gives me hypoglycemia. I also follow the SCdiet and make my own yogurt and make my own ice cream. Being able to eat yogurt again was the best present I have had in a long time!!
The yogurt is fermented 24 hours so all the lactose is used up. It's an excellent diet and well balanced and the best part is I'm getting better! I hope you decide to try it and that it is sucessful for you!
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I have reactive hypoglycemia that is pretty well under control and I hope eventually cured for good. Leaky gut is the problem. Fix the leaky gut and hopefully you cure the hypoglycemia.
Snickers bars will not cure the leaky gut, and actually makes it worse. The goal is to keep your blood sugar level. Snickers candy bars raise it too fast, which creates the yo yo effect and in a couple hours blood sugar drops drastically. Each episode gets worse and worse.
I follow the Specific Carbohydrate Diet and have very little problems now. According to the creator of the diet it will take about 1 year to get better. I'm on month 7 and pretty much feeling normal.
Hope you find a diet to work for you. Protein and easily digested carbs will even out your blood sugar. The question is can you give up your favorite foods to get better? That is the hard part.
Good luck.
P.S. the glycemic index doesn't account for whether or not the food can be easily digested. Most all whole grains and high fiber foods have a low glyemic index, but a damaged leaky gut can't handle them. The undigested food passes straight into the blood stream causing your symptoms.
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Iron supplements are horrible for an already damaged digestive system. Stay away from them. Eat hamburger and steaks everyday with a glass of juice with vitamin C for a week or two. That should give you the boost you need.
Iron supplements cause bacterial overgrowth in the intestine, worsening GI problems.
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Hello! The doctor called it pre-diabetes. Years ago I would see him eat something that would cause the blood sugar to rise and he would go into a seizure. We started on artificical sweetners and seizures were horrible so stopped that immediately. I found a group (Weston Price) that taught me how to make yogurt, keifer, and how to soak my bread (sourdough,etc) I also found a wonderful supplement (glyconutrients) that has helped him. He hasn't been to a family doctor in 4 years (which is amazing...he was always, always sick) (seizure doctor once a year)....so everything is working...probodics and the supplements really help the body.
Last year going to Cleveland Clinic..they repeated his EEG...it is better..only on one part of the brain...last time it was everywhere. So we are going to the right way. It bothers me so much as he gets older...that I want him to out grow the seizures. His seizures are still at night.....and first thing in the morning.... the eye will twitch and seizures usually last 40 seconds are so. You ususally don't see the seizures during the day unless he gets upset. (which years ago they were all the time) He is on just one seizure med (which the doctors are trying to change) But more meds doesnt make it better....it almost killed his liver and him (he was on 1000 mg depakote and another med...he was only 65 pds.) I will only do one med for now on.
I really think celiac or a gluten problem started this all. I remember when he was 2 we went to a Waffle House..he had a waffle and chocolate milk and he was sick within a short time vomiting. His seizures started at 5 after a battle of flu...(it was horrible he vomited in his sleep)....and he was never the same. I believe my side of the family has celiac or gluten problems, I also had seizures but only had one big seizure and was on meds and never seen another seizure. So his case is a different one. What you eat does make a difference. I had a doctor tell me years ago....that it didnt....boy I know he is wrong.
I just want to keep getting him better...
thanks Debbi
You mentioned you make yogurt. Are you letting it ferment 24 hours so there is no lactose remaining? I'm not real familiar with kefir but doesn't it have a lot of alcohol in it? That wouldn't be good for someone with blood sugar problems. That is why I stay away from it. I too was told I have pre-diabetes.
You appear to have a really good handle on this and are doing a great job for your son. I vote with you. Diet is a big deal!
have you read much about the toxic by-products a damaged gut produces that pass into the blood stream and affect the brain?
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Hello! My son has had petit mal seizures since he was 5 and he is almost 12. Seizures were never really controlled by medicines.. I am praying that my sons out grows the seizures, but his case is not a normal one.
He has a sugar problem and I believe gluten problem (which I think celiac disease) but he has not been diagnosed. I have tried to have him on a natural diet...with no preservatives. This has helped...but still searching for more answers. (Doctors always said that diet didn't matter....and I have proven them wrong!) I have been doing further research and have found that celiac disease...could have caused the seizures...and sugar problems. I would like to correspond with anyone that has info on this.
Thanks Debbi
dsprang@dbscorp.net
My sister has had seizures before going gluten free. We both struggle with hypoglycemia too.
I have read a number of articles about this issue. You may want to read the book Breaking the Vicious Cycle. The author believes toxins are released into the blood stream and pass through the blood brain barrier causing all sorts of brain disorders. Her diet elimintes sugar, all starch, dairy, grains and focuses on monosaccharides. You can get the book at Amazon or check it out at the library. She states thatmost people are cured within one year, if one strictly follows the diet.
I have been on the diet for 6 months and the hypoglcemia has improved greatly. I'm getting better!
And I love the homemade yogurt which is full of good bacteria - healing me.
Has your son been on a lot of antibiotics? This may be the trigger.
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Hi
i want to know if any one out there can tell me about some fatty foods. I weigh 118 and I am losing weight because I have to eat healthy now. I dont really like ice cream. What kind of candy can I have? I love almond snickers. Just want to know what I can eat to gain weight.
I hope you will consider putting on "healthy" weight and not "junk "weight. Add an extra serving of healthy protein like yogurt, eggs, fish, chicken, etc. And fresh carbs of fruit and veggies and nuts. You're body will gain a nice layer of muscle and not a layer of lumpy cellulite!
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Thanks for all the responses! Scissorhappygirl - no I don't think it's anything wrong with my ribs. The pain has now migrated to the front under my rib cage as well and gets much worse after I eat, especially when I eat fat. I also have elevated liver enzymes, so they think something might be wrong with my liver or gall bladder. So now I'm getting an HIDA scan done a week from today. I hope they figure out what's wrong!
Your pain could be from an enlarged liver. I hope you are doing okay. Please post and tell us you are getting better!
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I've been on a very strict gluten-free free diet I don't eat anything I'm not 100% sure of and I make most of my own meals. But I'm still being Glutened!! Is it possible to get glutened from sharing pots, pans, utensils and dishes used for non-gluten meals even if they been washed thoroughly? Using the same dishwasher? Or what about just preparing and cooking a non-gluten free meal for someone else? Could any of these things be the continuance of my symptoms?
It's possible that gluten isn't the only problem you have. It is possible your intestine is so damaged that other foods are not being digested properly and causing your symptoms to continue. It will take some detective work on your part to figure out what foods are the problems. Dairy, sugar, other grains, some fruits, etc. etc. Maybe you already have an idea of what it may be.
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To Nikki and others.
I'm curious too as to whether he actually had celiac even though the symptoms and cessation of them seemed to point to a positive diagnosis. I'll suggest to him that he undergo the tests. But it isn't like me bundling him up in his jammies and trundling him off the the doctor's office. He's in his 50's now and probably hasn't given the disease a thought in the past 45 years. I remember when he first went on the diet. He was in kintergarten and shortly after he started on it, they had a Valentines party in his class. Along with bread etc, he was also not to eat sweets for the next year. On that day, he came home with six or eight sticky little candy hearts cupped in his hand and asked his mommy to keep them for him until his diet was over. Kind of tuggs at the heart.
Sounds like he was on the Specific Carbohydrate Diet. The original gluten free diet for celiac disease. It was claimed to cure celiac disease. They didn't have blood tests or DNA tests back then. More people were diagnosed with celiac than there are now. He should get tested to be sure he doesn't have celiac, as its' known to cause cancer.
I'm on the SCdiet. The diet definently works, as I'm finally getting better, but I won't ever add gluten back.
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I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again.
Does anyone take these supplements, what brand and what store did you get them at?
Thanks.
Freeda vitamins - online is where I purchase mine. It is gluten free, lactose free, starch free, etc. etc. etc.! Shouldn't cause you any trouble. I didn't any any luck with purchasing them locally. THey all have something in them that I react too. Good luck!
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I use Gold Standard 100% Whey.... I called the company and they said it was gluten free. It doesn't make me sick. I read the ingredients again after reading this thread... they say... Protein Blend(Whey Protein Isolate, Whey Protein Concentrate, Whey Peptidies) Is that the same thing as the glutamine peptides?
I see your hypoglycemic. Doesn't whey protein give you hypoglycemia? The sugar (Lactose) in whey?
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Sorry in advance for the spelling...I cant spell
ok I was diagnosed with celiacs about 2 months ago. But still almost every day I get nauseas. Sometimes it may be light and will go away in a few min. Other times like today it is so bad that I have to take perscription naseas meds and go lay down. But I never throw up! Feel like it is coming up any second but doesnt.
So here is a normal day for me so you can see if it is something I am doing.
Get up at 7:45. I dont eat breakfast since diagnosed. Eat either taco bell tostada with sour cream or boars head lunch meat with bordon american cheese...no bread. Then maybe some lays stax for a snack. then dinner around 8. That will be either chicken, salmon, steak. With rice usually. Maybe 2 nights a week I get wendys baked potatoe with butter and sour cream and a chilli. Then bed at arounf 10.
So that is my life. I dont work. I am a stay at home mom and my son goes to school 8:30 till 12:30.
Can some one please help me with this. I am sick of feeling like this. And the only thing wrong that the docter can find is low iron and vitamin d. I take vitamin d once a week like docter said to do but cant take the iron pill....it made me very nauseas.
Thankyou to any one who can help.
Celiacs digestive system is broken. You may have to take a long hard look at your diet. The quickest way to get feeling better is to eat real food. Fresh veggies, and fruit and meat. Nothing processed. Shop on the outside aisle's of the grocery store and don't introduce any new foods until you are free of symptoms and feeling better.
BUT MOST IMPORTANT EAT BREAKFAST! It takes time to adjust to a new diet and a new way of thinking. You'll figure it out, give your self some time.
Also, I noticed your diet has a lot of starch in it. Rice, potatoes, chips, tacos - Starch can be hard to digest if your villi are damaged and aren't producing the right enzymes. Were you villi flattened?
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Hi fig girl,
first I thought I could tolerate ripe bananas and avocados because they don't cause bloating. But then I became aware that it's not only the gastro intestinal symptoms but quite a range of other symptoms, too, which might be caused by histamine. Now I found out that I can tolerate tiny amounts of avocados at once, about 1/8 avocado per day. But no bananas. If you can tolerate carrots, asparagus and green beans, you probably have no issue with fructose. But on the other hand, fructose malabsorption also doesn't necessarily show typical gastro intestinal symptoms. If I take too much fructose (which would be more than 2 gram per day!) I am only slightly bloated but get muscle cramps and muscle pain in the legs, hypoglycemia, more fatigue than usual, dizziness and headaches.
Bananas, avocado, all citrus fruits and spinach are critical with histamine, so if you don't feel any symptoms such as gastro intestinal problems, itching, flushes (red hot face), low blood pressure, hypoglycemia, fatigue and weakness, maybe histamie is not a big problem for you.
I don't know how it is in the US, but here gastroenterologists are covered under insurance and you can have fructose malabsorption breathe test and histamine blood test there.
I have trouble with banana, avocados and citrus fruits. Histamine? can you explain this to me? I get all those symptoms you talk about except for the itching. Any other foods that cause this?
What causes this reaction? Thanks!
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I'm not sure if anybody has suggested this yet Allison, but have you heard of the Specific Carbohydrate Diet. I was diagnosed with celiac 2 years ago and have been gluten-free ever since but still have symptoms: constant bloating, fatigue, dizziness upon standing, numbness in forearms, loss of weight, insomnia, shortness of breath and some others. The SC diet eliminates sugars and starches and promotes intestinal health. It is used for celiac, chrohns, ulcerative colitis, diverticulitis, cystic fibrosis...Also, have you been tested for candida overgrowth? Alot of your symptoms resemble candida overgrowth. Here is a link to a list of candida symptoms: Open Original Shared Link
Its just a thought. I don't want to alarm you.
I agree! The Specific Carbohyrdate Diet has worked miracles for me. All those symptoms you speak of are now gone. I hope you give it a try.
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So I've been feeling kinda blah lately, tired a lot, cranky, gained some weight out of no where, having some trouble with C and some random muscle pains. The doctor did a full blood panel, including checking my thyroid, and for good measure threw in a vitamin D check. Turns out I am severely vitamin D deficient, which basically explains all of that. She also said that Celiacs tend to not absord D well, for whatever reason. She has me on 2,000 IU a day until I start feeling better.
So if you're feeling kinda icky, and there is no good reason why, might be worth checking out with your doctor.
I would probably also ask for a bone scan too. Just to be sure you don't need more calcium etc.
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I think you need to get your thyroid checked.
I think you are like a lot of us who don't get better on the gluten free diet. Yes you may have candida or yeast or all sorts of bad bacteria growing in your damaged intestine.
You may want to check out the Specific Carbohydrate Diet. It's the original diet for celiac disease, before just "gluten-free" was found to be the answer. Find the book "Breaking the viscious Cycle" and read the chapter on celiac disease. It's very interesting.
I hope you find and answer and get feeling better soon!
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Sorry, I forgot to add those details.
I'm Male, 22 years old.
Thanks.
Have you had any blood work done? Are you iron anemic? B-12 anemic? Is your thyroid functioning properly? Adrenal glands ok? Any autoimmune diseases?
It's possible it is some digestive disorder, could be gluten, could be yeast infection, could be, could be. I would suggest you start with some blood work.
Migraines may be food related, also the skin problems too.
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I've not found anything in a pill that I don't react too. So I prefer food. I eat lots of fermented food. Such as green olives, sauerkraut, dill pickles and SCD yogurt. The enzymes in these foods are excellent for digestion.
Have you tried any of these foods instead of supplements? I eat A LOT of pickles and olives. You can do a web search and read about the digestive benefits of fermented food. BTVC also promotes them.
Just a thought.
I dip my dill pickles and olives, carrots, celery in yogurt cheese that I make. Add salt, dill weed, and chives to the cheese. It's a whole meal of enzymes and it tastes good too!
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Since I was diagnosed last July I have notice I will fall asleep but wake up and hour to 2 hours later with night sweats and horrible dreams. After a brief discussion with diabetic friend. It got me to wondering celiac disease patients eat a lot of starch, which in turn turns to Glucose. Are our sleep problems a direct result of the crash and burn effect of too much glucose in you system?
I have noticed I do not wake up 1 to 2 hours later, and less nightmares if I cut back on my rice consuption.
THIS WOULD BE AN INTERESTING STUDY FOR SOMEONE TO CONSIDER.
It has been done. The original celiac diet was strictly protein and fat. Celiacs did well on protein and fats, but the diet was too difficult to follow, so certain simple carbs,monosachhrides, were introduced and found to work well.
Starchs, sugar, and grains may cause all sorts of problems (sleep disorders included) for us celiacs. What you describe sounds like reactive hypoglycemia. The original diet was called the Specific Carb. diet. Many of us follow it and are healed. (But we must remain gluten free of course). I used to have severe hypoglycemia, it is improved greatly on this diet. I sleep like a baby now.
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I've been gluten-free for about three quarters of the year, and dairy free since about September. The gluten free diet remedied lifelong amennorhea, and the dairy free diet relieved my lifelong acne. Recently I started using butter on bread, thinking that it was very low in casein and may not pose a problem. But I started to get some strange bumps around my back and shoulder. They do not look like dermatitis herpatiformis, and they do not act like pimples. They itch before even showing up that much, and then I get the bumps in clusters, but if I keep trying to scratch they hurt. They don't itch terribly. They're fairly easy to ignore but I also notice some general transient itching in other parts my body where no bombs have appeared. I never used to have this sort of reaction to dairy, but I am wondering if it could be the butter. Has anyone had *new* symptoms relating to dairy after reintroducing it? These bumps also do not resemble eczema. I don't know what they are like. Any thoughts?
Well it could be the butter.? I used to get those itchy bumps that hurt like all get out when I scratched them, on my face, but they went away when I started B-12 shots. I have pernicious anemia. I also had eczema on my eyelids that really was sore. It went away too with the shots.
Could you be deficient in a vitamin or mineral? I guess you could cut out the butter and see what happens. Sure would be nice if we had an instant answer to all our symptoms - wouldn't it!
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I havent been eating any cellary-- I'm alittle scared to introduce something so fiberous. Im trying to stay with things that I can basically turn to mush in my mouth before i swallow...should I try some cellary?
I have been taking magnesium but have had mixed results. I used to take it abotu a year ago and it helped a great deal for abotu 3 months...then stopped. Now when i take it i will have small ribbon like BM-- its very strange (and does not seem to keep me...un-constipated). But i was going to get some magnesium citrate pills and try those, as there are several different types of magnesium. I'll let you know!
The herbal laxatives i have been taking Dr Schulze formula 1. It has Cape Aloe (which is different than Aloe vera-- very little poly-sacride), Cascada sagrada and a few othet things. Yes i want to be off of them, infact they arent doing too much now-- whcih is a first, and kinda scares me. But they are the ONLY thing that has helped me. Before that NOTHING did, i would have to do water enemas every 3 days just to function. Not fun.
I'm seeing the Dr today and am not leaving without him at least giving me some sort of directions to follow. Also I am moving to France in 3 weeks for a year (to study), any ideas where i can research what types of juice i can buy there that is SCD compliant-- Ali I know you live in the UK...do they have similar brands?
I would try a stick or two of celery. Or you can cook a stalk of celery first. It's suppose to keep a person regular. I can understand your apprehension! You know your body best.
Ribbons is not a good thing when it comes to BM's! I used to get horrible stomach cramps with ribbons.
How about hot water? My Aunt and Uncle drink it to help them with C.
Oh My Aching Belly!
in Food Intolerance & Leaky Gut
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Isn't that a lot of starch and sugar? I don't see any protein in what you ate. That would give me an upset stomach too and all sorts of other nasty problems.