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kyss

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kyss

  1. kyss
    Thank you all so much for your comments. I will talk more with her if I can get her to talk. It must be exhausting to put on an act of happiness when you feel so bad. I know when I was in high school that is how I felt. She has allergy tests coming up on Friday and hopefully there will be an answer there.... I think there is alot more than gluten bothering...
  2. kyss
    Thank you Carla....I will look into that and see where I can start with her. Paula< Where in Colorado are you? I was born in Alamosa and frequently visit my parents who still live there. Thanks for all the responses... Kelly
  3. kyss
    I have been gluten-free for 4years, she has been gluten-free for almost 2years. She did see the improvement, but once again this summer has been filled will illness. Of course it's not like the school year is any better. She has times when she gets a virus and then another one and then another one.....her lymph glands swell to the size of a garbanzo bean...
  4. kyss
    We live in Arvada Colorado...my daughter 15yrs is having really bad problems with DH, and allergies. She had been tested (blood & skin). Both came back negative and inconclusive. She has other allergies anyway and asthma. She is having physical and emotional problems because of this...her friends don't understand why she is always sick, why she can...
  5. kyss
    Thank you so much for responding. Both my children have been tested (blood for both and endoscopy on my youngest) and they all came back inconclusive...so she may not have Celiacs, but could have DH anyway. I am so proud of the fact that both my children have been gluten free for 2 1/2 weeks now....so I will find that dermatologist and MAKE them do what...
  6. kyss
    I am so worried about my 13 year old....she has had "eczema" since she was born, and treatment helped before the whole steroid thing, but now it is worse. I looked on the internet because I have Celiac Disease and my sister informed me it is possible to have just the DH and no GI stuff....well the photos on one website looks just like my daughter....she...
  7. kyss
    Hey there, I'm a new old member. I have been gluten-free for 1 1/2 years and still have some problems...one of them is absorbtion. I have a very difficult time digesting anything much less vitamins. I can't eat many vegies because I get sick. So the vitamins pills are out. I tried to do the liquid vitamins, but those make me feel sick too. GI doc said...
  8. kyss
    Hello there...I haven't posted in awhile....but I visit to read on how everyone is. My name is Kelly, I live in Arvada Colorado, I'm 35 years old, married for 14 years, and have 2 beautiful daughters 12years and 7years. Also the proud owner of 2 mini schnauzers 6yrs and 1yr which I adopted from the pound. I was diagnosed on April 26, 2004. I started...
  9. kyss
    Hello out there...just thought I would let you know....I went to Red Robin in Arvada, CO and they were very accomidating. The manager brought out food labels and after a couple of questionable ingredients she offered chicken breast, plain rice and steamed vegies...the plate she brought me was huge and tasted great. Apparently one of their own employees...
  10. kyss
    Hey there...just thought I would let you in on what we have found in our family. My mother, sister, as well as previous family members on my mom's side and myself all have Hashimoto's. My oldest daughter also has Thyroid fluctuation which the doctors believe to be the beginning of Hashimoto's...although I intend on stopping that before it gets to the medication...
  11. kyss
    Aimee, My 7 1/2 year old has had a rollercoaster ride since she was 2years old. She was a difficult infant and toddler...always very weepy especially when it came to feedings. As far as behavior now...she has been diagnosed with ADHD and Bipolar Disorder. BP does run on her father's side, but I always thought her behavior always rotated around food...
  12. kyss
    Mom22, I am so glad I came across your recent update. I know that I will be requesting a second opinion as well tomorrow and maybe there will be answers. I cut the GI doc I had seen out of the picture today. I had my daughters blood test drawn at the pediatric office I work at and the results will come to her PCP. So I will request a second opinion...
  13. kyss
    Hi Mom22, I read your post and it really touched me. I am sorry things aren't going that great for you. I do have a similar situation with my daughter and I am alittle upset about it. My daughter had her biopsy and the GI doc said it was inconclusive, there were patchy spots... The GI doc said this just means there may not be damage to the entire intestine...
  14. kyss
    Thank you for your response. I think my intestines feel bad because they are a mess. The GI doc said he hadn't seen blood test results as high as mine, and the small bowel matched it. I talked to his office today and I am going to be sick for awhile because he irritated an already irritated part of my GI tract. I also am sicking with clear liquids, rice...
  15. kyss
    I am just wondering if anyone else has had this experience after their endoscopy. I had mine done on Monday afternoon...and I haven't been able to eat anything, just keep drinking Gatorade. My abdomen feels like it was pulled out and I have a fever. I called my GI doc and he thinks it may be the flu...I have felt like I had the flu off and on forever so...
  16. kyss
    FYI: My youngest had her biopsy today and it went well, blood was also drawn for tests on levels...Meanwhile I am sick......figures. Anyway, soon I will have my biopsy and then we can all (including my oldest and my husband -- who don't have celiac disease) be gluten-free..The light at the end of the tunnel is getting brighter....Thanks to everyone in...
  17. kyss
    Wildones, Thank you so much for the info...I will call your doctor's office tomorrow and see what they have to say. I will also call my current GI doc and request the use of the Prometheus labs, and if he refuses to use that lab then I will just cancel the biopsy and get a second opinion from your doc. I may also take my oldest to your doc anyway because...
  18. kyss

    ARCHIVED Cbs News Report

    kyss replied to a topic in Publications & Publicity

    KayJay, I also emailed Oprah yesterday! I think we should all email her alot and maybe they will pick up the idea just to get us to quit bugging them. My sister and mother are both diagnosed with celiac disease..I have a biopsy at the end of this month, in a months time we have contacted all relatives and let them know. I was clueless or just in denial...
  19. kyss
    The GI doc we are seeing is Dr. Jeff Rosensweig at PSL in Denver. My oldest daughters test was done at Quest Diagnostics....what is Prometheus Lab? I have never heard of this...I plan on talking with the GI doc again and asking him about Genetic testing for celiac disease on my oldest. I still feel like she may have celiac disease, but the test is negative...
  20. kyss
    Kathy, I just read your reply and now I am stumped...there are alot of similarities and I just received her blood work results...they were negative for celiac disease. The GI doc assures me that we still need to keep an eye on her, he is putting her on prevacid 30mg a day and then in 2 weeks we will revisit the issue, if at that time she is still having...
  21. kyss
    Kathy, I really appreciate the feed back....and here my husband and I thought my oldest's behavior, attitude and depression was just us being poor parents. She has a multitude of diagnosis from the mental health people from Oppositinal Defiant Disorder to Obsessive Compulsive Disorder to Depression...she is on Zoloft and if that isn't bad enough she has...
  22. kyss
    My brother gets skin splits on his finger tips as well. He works in radiology and noticed that when he washes his hands it almost gets worse. He refuses to be tested for celiac disease so I can't say that is what it is. I have the same problem and have had that problem for as long as I can remember, just thought it was dry in Colorado was the reason for...
  23. kyss
    Just an Update! Okay..I took both kids to the GI doc and he is really good. I think I was worried about that too. I was afraid that he wouldn't listen like my GI didn't at first, it took me 15 minutes to get my GI doc to order the AB IGA, and when it came back at 200 he was beside himself. This pediatric GI doc listened to the symptoms my children...
  24. kyss
    Sarah, I really love and enjoy my kids more than anything on earth....except when my youngest gets moody. As I said before she is on an antiseizure med for Bipolar and that does run in our family (husband's side is a train wreck with it) I still wonder if the mood swings are celiac disease as well as the Bipolar...I have tried 2 meds on her so far with...
  25. kyss
    Sara, Thank you for your help....my youngest (7) has been diagnosed with Bipolar Disorder and is on an antiseizure medication my oldest (11) is on Zoloft for depression.....but if this test comes back positive it will answer alot of questions and actually could make it possible to take them off these meds...I work for a pediatrician's office and they are...
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