JennyC

Yep. Anything with malt flavoring is off limits, which pretty much eliminates most cereals. Fruity and cocoa pebbles, Dora stars and various specialty cereals are gluten free.

I thought my 3.5 year old son had energy before...WOW was I wrong!!! Since diagnosis he has tons of energy. He doesn't want to go to bed as early and many times he has so much energy that he literally runs throughout the house and jumps up and down! It is so nice to see such a positive change in him.

Darn I am disappointed. I went to the store looking for these, thinking I was going to get some thing bigger then what we have been using. But these are ones we have been using for some time now. I was all excited thinking I was going to get some thing like a burrito size. They are only a little bigger then a regular corn tortilla. But they are good eating.

Grump

I know...I was disappointed too. They have the same texture as regular corn tortillas but they taste a little better.

I am pursuing a Master of Biochemistry and Molecular Biology degree. My boyfriend (8+ years together) works with commercial satellite systems--for the most part. We have one son who is nearly 4 years old. He is the only one to be diagnosed so far. We enjoy doing various outdoor activities such as camping, fishing, and mushroom hunting.

My son really likes it. He likes the chocolate covered ice cream bars the best. Avoid Soy Dream, in my opinion (and his) it is pretty gross.

The Hawthorn Fish House is also gluten free. There is a rather large list of gluten free restaurants if you go to the Portland Gluten Intolerance Group (GIG) website! There's also a bakery in Sellwood, you can probably find it by doing a google search.

Lister,

The gall bladder in important because it makes bile that breaks up fats/oils into tiny droplets in your intestine. This gives the fat enzymes (lipase) more surface area to act on. Without a gallbladder/bile you would not be able to absorb fat--or fat soluble vitamins efficiently. Gall stones are mainly cholesterol, so I would advise you to lower your cholesterol intake. (Easier said than done, I know .)

Calcium is a very important mineral. In addition to being the building block for bones and teeth, it is also needed for neural functioning, muscle contraction, and various molecular pathways in the body. If calcified gallstones are giving you problems, then you should be mindful of your calcium intake and do not exceed the daily recommended value.

Maybe because there was no xanthan gum or baking powder?

OLAY:

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Too bad they have not about little ones with celiac disease kissing our faces! How frustrating! I guess I too will stick with Dove.

Yes Jenny your son's sleep habits sound just like my son's. He wakes up in the night and is awake for hours!!!! We've tried everything to try to get him back to sleep.

I've just started reading about the above symptoms. I know he's never had diarrhea. Constipation? maybe on a rare occasion. Definately appetite issues in that some days he eats tons of solids and sometimes he just wants to nurse lots. Hard to tell at this point since I don't know how much breastmilk he's getting and then with frequent growth spurts who knows...

I'm not sure what a distended tummy would look like. Yes he's got a little round tummy but most kids tummy's seem to stick out don't they?

I've alot to learn. Thanks for your help and input.

My son's tummy looked like he was pregnant, and was very round and firm. It's hard to tell because breast fed babies are usually so chunky! If I were you I would go off gluten yourself completely. There was a post about gluten possibly being able to enter a mother's breast milk! I would also avoid gluten foods for your son as well. If he does not improve then I would get him allergy tested and tested for celiac disease. Remember you must be consuming significant amounts of gluten to get a positive result. Normally I would say to get tested before going of gluten, but your son must be miserable and you must be going out of your mind! I remember those days...I hope things get better for your family.

Thanks for the post. I didn't even know that the FDA made a decision. Mission also makes super size white corn tortillas. They say that they are gluten free.

I really feel for you. It is so hard when you can't sleep well. My son was recently diagnosed with Celiac disease at 3.5 years old. He was a horrible sleeper!!! For the first two years of his life he woke up every two hours to nurse/drink. (He was breastfed for 9 months.) At least 2-3 times per week he would wake up at about 1 am and stay awake for hours. Even now he usually wakes up once per night. He also had no interest in solid food...and he's still a very picky eater. I tried to eliminate dairy when I was breast feeding as well, but I never really got any results. My son was also very gassy and spit up until I put him on soy formula (which also happened to be gluten free) at 10 months of age. If I were you I would do the celiac and full allergy panel. That's what we did with my son. After more than two years of trying to guess what he was allergic to, let me tell you: it's so worth it to know for sure. In my son's case he is not even allergic to milk, and in fact he has no allergies, but he does have celiac disease. The catch is that your son has to be consuming gluten regularly for an extended amount of time (1+ months) for the blood work to have decent results, and the blood test is said to be unreliable in children.

Does your child have any other symptoms such as distended tummy, diarrhea or constipation or appetite issues?

I really hope you can figure out what is causing your child's problems.

I agree that it is likely a circulation issue. Muscle twitches function to assist venous blood in its return to the heart. I don't really know anything about RLS so I'm unable to comment on that possibility.

Some dried fruits are covered with various flours. I think that Dole dried fruits are safe, but you may want to call and double check.

Enterolab tests for food insensitivities using fecal samples and they also do genetic testing. This institution is ran by Dr. Fine, a gastroenterologist, but he has yet to publish so many doctors do not take the results seriously. They claim that their tests are more sensitive than blood tests and can be done even after the gluten free diet has been started. Many people here diagnose themselves based, at least partially, on enterolab results. If you Google them you will pull up the web page. I encourage you to call them if you feel this may be a good option for your son. They are very helpful and will spend plenty of time talking with you.

You don't need the commercial grade, but I would get one with higher watts. We have the Kitchen Aid Artisan (350 watts) and it works great.

That would be awesome!! I have a quesadilla (sp) maker and the little ones make all the good stuff inside ooze out. Not to mention having big enchiladas!!! I hope they hit the stores soon.

-Jessica

They were advertised in yesterday's Safeway ad.

Jack Daniel's Teriyaki marinade is gluten free.

Coke is gluten-free and the reality is that caramel color is also gluten-free -- at least in the U.S. and probably everywhere else as well.

Unfortunately there are too many old lists on the Internet and being passed out by doctors.

The safe and forbidden lists on the celiac.com homepage are pretty much accurate.

richard

On the Clan Thompson site/software is says that caramel coloring is usually gluten-free unless used in meat containing products. Can anyone elaborate?

I just saw Mission Super Size White Corn Tortillas in an ad and went to the Mission website. They appear to be gluten-free.

Here is the ingredient list that I copied from the website:

GROUND CORN TREATED WITH LIME, WATER, CELLULOSE GUM, PROPIONIC ACID (TO PRESERVE FRESHNESS), PHOSPHORIC ACID (PRESERVATIVE), BENZOIC ACID (TO PRESERVE FRESHNESS), DEXTROSE, GUAR GUM, AMYLASE.

I hope this means that we can have large burritos and enchiladas again without using delicate rice tortillas! Has anyone tried these yet?

Thanks everyone!

I love the idea of using chocolate chip cookies for smores!!! I bought some Jo-sef "graham crackers" but I'm sceptical because according to my son their "oreo" cookies were yucky. (I agree!)

This mixture was passed on to me when I asked a similar question. It works great. I used it for my old sugar cookie recipe and could barley taste the difference. I don't really care for premixed gluten-free flour (although I have a 25 lb bag of Bob's Red Mill ).

3 parts white rice flour

2 parts potato starch

1 part tapioca flour/starch

1 tsp Xanthan gum per 1.5 cups flour

You are in luck! Glutino makes a cracker that looks just like Ritz, but it does taste a little like a saltine. They are good. I eat gluten but I still eat them with my son. They are the best gluten-free cracker that we have tried so far. You can find them online if you cannot locate them in a store in your area. We also like the Blue Diamond nut thins, but they are not made in a dedicated facility. He also likes the large Energy crackers with cream cheese and lunch meat on them. The Energy Seattle crackers are pretty good also, they kind of remind me of wheat thins...sort of. The rice crackers grow on you after a while too.

My son has been eating it on and off for the last two months. In that time there has not been malt flavoring in the ingredient list and the food starch is clearly labeled as corn.

Later in the month we are taking our first camping trip since my 3 year old son was diagnosed with celiac disease. We are going to the mountains for three days. I would like to know what your favorite gluten-free camp foods are (especially kid-friendly) and if anyone has any tips for making the trip go as smoothly as possible. We have a large 4 burner camp stove, so that should increase our options. I guess my real problem is what to make for dinner and also snack ideas. My son eats like crazy right now, so this trip should be very interesting!

So far I have thought of:

home made gluten-free goodies

Glutino crackers and cheese

various chips

original flavors of jerky

cereal or gluten-free pancakes for breakfast

For lunch:

Amy's mac & cheese

hot dogs

quesadilla & 7 layer dip

For dinner:

steak & risotto