deesmith
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by deesmith
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I just got blood results. Hemoglobin is 10.4 (which is pretty normal for me; I have thalasemia minor). But my iron level is 19- normal range is about 30 - 170. I changed doctors recently mostly because I keep still having low iron levels. I've been gluten-free since 2006. I think I've just stopped being able to absorb iron. I discussed this with my...
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ARCHIVED Low Iron, Almost Normal Hemoglobin, Low B12
deesmith posted a topic in Related Issues & Disorders
I've been gluten-free for at least 4-5 years now. Everything was going good for a while. I've been having issues recently. 1. Have had low iron blood tests for a while now (about a year), but the hemoglobin stays around 10 to 10.7 2. Had kidney function test last summer come back 53 or 57, can't remember right now. I changed doctors, AGAIN... -
ARCHIVED King Arthur Flour- gluten-free Products
deesmith posted a topic in Gluten-Free Foods, Products, Shopping & Medications
This may be old news, but just in case you haven't seen this: Open Original Shared Link -
Could be one of many things, but have your PTH level checked.
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ARCHIVED Pain Upper Left/ct Scan/small Bowel Study
deesmith posted a topic in Related Issues & Disorders
After being gluten-free for a year and a half, I felt soooo much better! Then, about a year ago I started feeling sick again. Symptoms: pain in upper left abdomen, especially after eating, nausea. Basically, I had to start eating really small meals or next to nothing. Oh, and the constipation I had suffered due to the celiac disease came back, worse... -
I don't know if this will help you or not. I saw Dr. Green from the Celiac Center at Columbia University. He checked my PTH levels and it was way, way off. He said my parathyroid gland basically shut down and my body wasn't producing much calcium anymore. He explained that because of the Celiac Disease, I wasn't absorbing calcium. So it built up in my...
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ARCHIVED Betty Crocker Gluten Free Mixes
deesmith posted a topic in Gluten-Free Foods, Products, Shopping & Medications
In case this hasn't been posted yet.... I was so excited to read tonight about the Chex cereals. Then, I was looking online about them and found out that Betty Crocker (also GM) is coming out with Gluten Free Mixes!!! Here's a link: Open Original Shared Link It's so good to see mainstream products going gluten free. Hope the trend continues... -
Thanks everyone for your really good advice. It is a funny situation. I'll be in a situation where I sort of am being judged and have to care what others think (although this shouldn't be the case during the lunch). But I also have to consider what is best for my health. Well, it's only one lunch. And whatever I choose to do, if it seems to be an issue...
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I need some help please! I have an all day interview March 30th which will include a panel interview, a few individual, one-on-one interviews, breaks, and a luncheon. The lunch is schedule for off-site from 12:00 to 1:30, according to the agenda I received. So any suggestions on how I should handle this? I am one of those that is highly sensitive...
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Thanks for the great advice. I think I'll print this and take it with me! Thank you.
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With luck, this may happen. If she's gluten free long enough, she may notice a difference. That's really good about your husband! Now you can be gluten free together.
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Hi. Thanks for the reply. Don't families drive you crazy sometimes? I've seen a lot of others write on the board that their families are like this too. It's too bad. As you said, all we can do is be there to offer support and education when they need it and/or come to us. Dee
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Thank you for the reply. I think you're right about my daughter. Well, I know you're right. She thinks I'm trying to convert her and she doesn't want any part of it. I'll try to be more patient. I think that she truly wants to help. She has a big heart and is always helping others. Maybe this will help her as well. Maybe being around it and...
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I've been going through some tough times lately. My job was really stressful and quite honestly a bad place to work. But that's not why I'm posting.... Long, long story, but I walked out one day when I couldn't take it anymore. I knew how stupid it was because I am the sole provider and need a job. So I have been out of work and no unemployment...
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ARCHIVED Parathyroid Hormone Level
deesmith replied to cat3883's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, The parathyroid test is probably because he may be concerned about your calcium levels and absorption. Your parathyroid is called that because it is near the thyroid (para means near) but has nothing to do with your thyroid. So it is separate test from the thyroid tests he's already done. The parathyroid produces calcium for your bones and blood... -
Haven't been on here for a few days! I am a little concerned. I had night sweats, but that was whenever I was glutened. The night sweats have pretty much disappeared now that I've been gluten-free for a while. It sounds silly, but I hate to wait and see if other symptoms show up. The swollen lymph nodes are still there. They don't come and go. I realize...
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Just want to know what you do when there are social gatherings at work that focus on food. Tomorrow we are having a potluck lunch and I don't even want to bring anything or attend. Cross contamination is such an issue. Someone suggested that I could probably eat things like a green salad or potato salad that people will be bringing. And I thought...
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Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac? I know that some other autoimmune diseases can cause them, such as lupus. So I was just wondering. I have swollen lymph nodes in my neck. They've been there for almost 3 months. And have not gone away. The doctor ruled out any kind of infection and...
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ARCHIVED Poll: How Many Have Celiac And Sleep Apnea?
deesmith replied to Janine's topic in Related Issues & Disorders
I have not been diagnosed yet with sleep apnea, but I suspect it. That along with the insomnia and RLS make sleeping fun. What's even better is when I'm very badly glutened and I have wild nightmares and night sweats! Glad to hear that the diet may help improve the sleep apnea. That is good news. -
ARCHIVED Gene Testing
deesmith replied to celiac-mommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes. Dr. Green used Kimball Labs in Colorado. I was very impressed. See if your doctor is willing to use Kimball. He can order a test kit directly from them and it will be there in 1-2 days, with everything ready to ship it back. You get results within days. Or, you can actually order it yourself to have it shipped to you or your doctor. But of course... -
ARCHIVED Are These Normal Symptoms For Anyone Else?
deesmith replied to newgirl88's topic in Coping with Celiac Disease
Hi, I may be way off base here, but you never know. I'm not sure, but i think it's pretty rare to have your parathyroid checked. At least in my case it was. I had so many symptoms that pointed to celiac disease, that are also symptoms of parathyroid disease (bone pain). Unfortunately, I now have both. My parathyroid gland shut down because I wasn't... -
Just a quick note, because I felt this was important: Your daughter cannot eat spelt bread. It's not gluten free. Dee
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Beth Isreal has a Celiac Center. Here's the link: Open Original Shared Link Or, from this website, here's a doctor in Nashua: David Golden, M.D. - GI Hitchock Clinic Nashua, NH 03060 Tel: (603) 883-0326
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I only have one thing to say on this thread: If Celiac Disease is not a disease then can you please explain to me what killed my mother? Because I'm very confused. She was a highly intelligent person but ignorant to the DISEASE. However, she realized through her own process of elimination what was making her sick. She told the doctors in the hospital...
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ARCHIVED Testing W Kimball Genetics
deesmith replied to sickchick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry. Haven't been on board in weeks. I went to Dr. Green in NYC. He uses Kimball Genetics. Quick turn around time. Very helpful if you want to call with questions afterward. Also, they will fight your insurance company to have them pay. At first my insurance company denied the claim and Kimball fought this (I didn't have to do anything) Then the...