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anemic

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  1. Thanks for collecting these stories, it is important for people to learn and understand celiac better. I am 33 and have 2 children. When I was a university student I had a lot of gastro symptoms and had the whole gammet of tests- nothing showed, just diagnosed with IBS, took medication for 1 year, symptoms improved. When I had an emergency c-section...
  2. What has happened since the infusions? I have the same problem. The infusions worked for a while but began to level off. I am waiting to see my hemotologist. I've had 10 infusions which should have brought my iron to over 200 but I can't get past 100.
  3. Hello everyone! I have had 10 iron infusions in the last ten weeks that was supposed to cure my severe anemia from celiac. At first the treatments appeared to be working fairly well but in the last month or so my ferritin has levelled off and is no longer increasing with treatment. I will be seeing my hemotologist in a month or so to discuss the problem...
  4. I've had my 5th iron infusion this week (5 more to go) and my ferritin is 99 (hasn't been for years) and my hemoglobin is 135. I feel really good- here are 10 reasons why 1. I finally have the energy to chase my children around, and actually catch them 2. I can focus at work and finally catch up on the last 2 years worth of mess 3. I'm getting used to...
  5. Is the diet a bugger? YES! Are you worth it? ABSOLUTELY! We all miss beer and delivery pizza and eating whatever, whenever. It gets easier with time but will never be perfect- just keep on trucking along!
  6. Just needed to share my anxieties at the moment. I was diagnosed Celiac in February and have adjusted reasonably well to the diet (sometimes I freak out) My father-in-law is Celiac but has refused the diet, also diabetic diet (crazy, eh?) So last week my husband, daughter and son had the blood work done, it may be back at the end of the week. My daughter...
  7. Hello everyone! This forum has become a tremendous source of support for me, even my 5 year son says "go talk to your celiac friends on the computer" when we sees I'm feeling frustrated. My Mom and I are going to New york City for 5 days, we have been planning this dream trip for months. I am very anxious about eating out for this long so I've got my...
  8. Thanks for all the feedback I got last time I posted. After 2 years (this Easter) of regular blood transfusions for chronic and severe anemia- I think I'm finally on the mend. I am seeing a great hemotologist who recognized the Celiac right away and proved it within 6 weeks. I'm having iron infusions every week for 10 weeks (pain to take a full day off work...
  9. Have you had some blood work done recently? Might be an idea to get the iron checked-
  10. Just wondering if anyone else is struggling with anemia as a result of Celiac. My iron is 3 and I'm having iron infusions every week. My dr's office left a message today, probably to let me know that I'll also need a blood tranfusion as I suspect my hemoglobin has dropped- will find out tomorrow. The gluten-free diet is a pain but o'kay, but the anemia is...
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