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Jacki Espo

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  1. Jacki Espo started following DH biopsy , Canker sores , Dermatitis Herpetiformis and 5 others
  2. Jacki Espo
    I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did). I don't get them now that I don't eat gluten.
  3. icon knitty kitty reacted to a post in a topic: Dermatitis Herpetiformis
  4. Jacki Espo
    I would not be surprised if that is the case. I briefly took doxycycline and it cleared up but I also stopped eating oats at the same time so hard to say what did it. And I understand doxy is nasty stuff. I had to take it with yogurt because it messed up my stomach so badly.
  5. icon knitty kitty reacted to a post in a topic: Dermatitis Herpetiformis
  6. Jacki Espo
    Hi there @Pamp8 yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test. I have had an inconclusive genetic (?) test. I developed the same all body rash. It was one of the worst experiences of my life and I am sorry you're experiencing it. What helped me: 1). I stopped...
  7. icon Itsabit reacted to a post in a topic: SkinSafe
  8. Jacki Espo
    I should add that I had a flare up I think was from cross contamination and during that time I ate gluten free chips and immediately had severe itching at the breakout site. I suspected it was the iodine in the salt from the chips that did it. It seems like iodine may impact a flare up but does not impact me if I’m otherwise not experiencing the rash. G...
  9. Jacki Espo
    For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster. Hope you have relief soon.
  10. icon Scott Adams reacted to a post in a topic: Dermatitis Herpetiformis and Pityriasis rosea
  11. Jacki Espo
    Thank you. I've read that Pityriasis rosea can be triggered by autoimmune disease. We've ruled out Covid (another trigger of PR). I can't pinpoint how I could have gotten a virus (or bacterial infection) to trigger it. I wondered if others had a similar experience. Thanks again for the reply. I'm lucky it's not itchy!
  12. Jacki Espo
    I accidentally ate wheat and a week later developed my usual dermatitis herpetiformis flare up in the usual spot. However this time with a twist - a few days after that I developed a rash called Pityriasis rosea. I am curious as to any potential linkages
  13. Jacki Espo
    Hi, this is interesting. I have thyroid cancer. Developed suspected but undiagnosed dermatitis herpetiformis in my 40s. I do not know the answer to your question unfortunately but tracking this!
  14. Jacki Espo
    I should clarify -- I've had a skin biopsy by my dermatologist. It came back negative. I was not eating gluten at the time of the test. I've also had my GI do some type of test (not sure what) -- it did not come back positive but it also did not rule it out per the dr. Regardless of the tests, I know gluten is the cause based on timing of onset of symptoms...
  15. icon Scott Adams reacted to a post in a topic: Cycle of dermatitis herpetiformis
  16. Jacki Espo
    For me it's my back, stomach, legs, and scalp. It took about a year after I completely scrubbed my diet of anything that could be gluten or even contaminated with gluten (like a shared toaster or eating fried food cooked in a contaminated fryer) before it finally went away. I recently glutened myself by mistake and it's back but not nearly as bad. Same...
  17. icon knitty kitty reacted to a post in a topic: Has anyone here had perianal DH?
  18. Jacki Espo
    Thanks so much for this. Agree that the anti-inflammatory diet has worked best for me.
  19. Jacki Espo
    I learned about the oats from this website! I was in the midst of a DH flare up. My entire body was itching so intensely and by some miracle I read a post on this forum that said to avoid oats even "gluten-free" oats. The DH didn't go away after I gave up oats but the flare up got about 75 percent better. Months later the DH is finally gone.
  20. Jacki Espo
    I have undiagnosed DH on stomach/back and at its worst legs, elbows and scalp. I had already eliminated gluten so didn't test positive for celiac disease. However, I can tell you that after a year of wheat free (8 months truly gluten free) the DH miraculously disappeared. Avoid oats like the plague. Hoping it gets better for you soon.
  21. Jacki Espo
  22. Jacki Espo
    Can anyone share a source that you must be eating gluten for the skin punch biopsy to be useful? My derm disagreed with me. Did the biopsy and of course it came back negative bc I have been gluten free since Dec. Can anyone direct me to a source? Thanks.
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