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mm&j

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Everything posted by mm&j

  1. mm&j

    Just found out how :) There is a button labled "add me as a friend" under the persons avitar/picture when you visit their profile.

  2. mm&j

    I have no idea how to do friends list on this site. I am extremely gluten savy but not so technology savy. Sorry I couldn't really help.

  3. mm&j
    By the way, what does GERD stand for? I am assuming Gastro-something... I had absolutely no Gastro symptoms by the time I was diagnosed. My intestines were as smooth as glass by then. mm&j
  4. mm&j
    God Bless you, I feel your discouragement. It is probably true that you are super sensitive to even the most minute amounts of gluten or perhaps have refractory sprue or unresponsive Celiac. There are forms of medication that people are put on to help with these conditions and promote healing. I think they start with prednisone, but I am not sure. I am just...
  5. mm&j
    That's funny, I was just headed up for a nap before I read your post and it is only 9:45am! It does get better and everyone is different depending on many factors, especially how long you may have been suffering with the disease before being diagnosed and how much damage to your entire body has been done. Before I was diagnosed, I litterally slept round the...
  6. mm&j
    I was looking up another medication and I saw that Calciferol drops by Schwartz was listed on the gluten suspected list. I was horrified. My pharmacy told me that they looked up all of my medications and they were all gluten-free. I have been taking these drops for Vitamin D for 2 years, ever since my Celiac diagnosis. Does anyone have any information that...
  7. mm&j

    ARCHIVED Reiter's Syndrome

    mm&j replied to mm&j's topic in Related Issues & Disorders

    Nancym- thanks for the information. I actually had googled and found that kiskas.org and signed up. I also just had a big piece of steak and salad for lunch and am going to limit starches even more than I have. It can't hurt I'm sure until I am actually being diagnosed. mamaw-I am in Wexford. I am Celiac-diagnosed in 2007. My thyroid is fine, no fibromyalga...
  8. mm&j
    I need some help. I have been gluten-free for over a year. My severe bone pain and fatigue is not subsiding. It is torture to get through the day. My husband wants me to get my 'Joy" back. I can't even comprehend what joy is anymore I am in so much pain and depression. I am suspecting that there are other autoimmune diseases in play along with the Celiac...
  9. mm&j
    I was reading over posts and haven't been on lately. I have been gluten-free for over a year and my joint, bone pain and fatique haven't gotten any better. I went to a new Dr. and he is going to "research" my complicated case. He seems like he thinks another autoimmune disease my be in play alo and I agree. Could anyone give me anymore information on AS or...
  10. mm&j
    Can I add that I am so depressed and feel so hopeless that I am in tears every day?
  11. mm&j
    I just wrote another post about being extremely discouraged and then I saw yours and wanted to say that yes from the beginning, extreme fatique and sleepiness have been some of my biggest issues. I feel like I have been drugged or perhaps had 5 margaritas and then am trying to function. It lasts long after I injest some gluten. I really don't know what to...
  12. mm&j
  13. mm&j
    It is Sept. 9th. I know I got some gluten, (very little) at the middle to end of July so that is over 6 weeks ago and I am still experiencing numerous symptoms. There seem to be a string of things that happen to me. I'll try to put it briefly...first intestinal problems, then the skin rash on elbows and behind knees, followed by extreme fatique, almost like...
  14. mm&j
    Thanks Elaine for your response. I just logged on after a few days and noticed yours and other replies to some of my questions. I appreciate the information and insight on the heart beat/palpatations and blood pressure. I will check with my doctor as I have an appointment tomorrow. Thanks again. mm&j (Susie)
  15. mm&j
    I forgot to add that I always get those blisters in my mouth and throat, too.
  16. mm&j
    Hi, I am a fairly new Celiac and I catch everything, and when I get sick, I get sicker than everyone else with the same thing and it lasts ten times longer. I have had a cough, and congestion since May and can't seem to get rid of it...been sick every day of the summer with it and despite feeling better as far as the gluten-free part...I feel like I have...
  17. mm&j
    Hi, For me, I never had any GI symptoms so my diagnosis took many years. I suffered with EXTREME fatique. If I was offered anything at all or sleep, I would choose sleep every time. I could sleep all day if I had the chance. I also had severe bone pain, joint pain, arthritis, dizziness, flu-like chills and night sweats, canker sores all over the inside of...
  18. mm&j

    ARCHIVED Pittsburgh

    mm&j replied to once and again's topic in Gluten-Free Restaurants

    This is just so amazing that I had to write. I live in Pittsburgh and my husband felt like going out to a Mexican Restaurant tonight. We have a new Mad Mex and an On The Border. I looked on both of their web sites and it didn't say much about ingredients. I then clicked on the forum and your message about Pittsburgh was the first one (or most recent one)...
  19. mm&j
  20. mm&j
    Thanks for responding. I didn't think anyone was going to since it isn't the most exciting of topics. I was scared that it might have something to do with the lymphoma that you hear about increased incidence of in people with Celiac disease.
  21. mm&j
    Not sue what I did wrong, but my post got inserted in between yours?.?! Anyway, I'm glad the precious Emma is back. mm&j
  22. mm&j
  23. mm&j
    Hi, for years my platelet levels and white blood cell counts have been fluctuating low to lower to almost normal. I was diagnosed with celiac and have been gluten free for 2 months. My celiac levels have improved somewhat in that time which indicates some improvement and I am feeling much better, also, as far as fatique, bone pain, weakness, etc...I never...
  24. mm&j
    Hi, I just have a quick question. I read a post a while ago about antidepressants sometimes having the opposite effect that they are supposed to have for some celiacs. Does anyone have any facts, insite or knoledge about that being true? Thanks so much, MM&J (Susie)
  25. mm&j
    Hi Mary, I got the diagnosis of a scalloped duodenum today and had questions as you did. Did you find out anything else about it? It is confusing and a bit scary. I'd appreciate any help on knowing what this means from anyone. Is it just another marker of Celiac or something even more serious? I guess that I am in an anxious mood or state today... Thanks...
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