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momof2sn

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Everything posted by momof2sn

  1. momof2sn
  2. momof2sn
    I just joined last week with a million questions. Everyone has been so helpful!! Today is my daughter's 2nd day gluten free. It has been okay. I cried when she asked for pizza yesterday. She is 21 mo. old has Neg. blood work and biopsy. But has a positive HLA-DQ8. She has also had chronic diarrhea. I say all this because, now nothing. She is not having...
  3. momof2sn
    I am knew to all of this too. Do you buy all of these foods at your local health food store?? Or off the internet? Are there any foods that I should not waste my money on because they are nasty??
  4. momof2sn
  5. momof2sn
    What is the difference between gluten sensitivity and celiac disease??
  6. momof2sn
    Nancy you are a life saver. That has given me so many ideas!!! Can my daughter really get sick from pots and pans used for gluten products?? I didn't even know that was possible. Do I need to buy new pans for here at home for only gluten-free foods?? I have heard of people on the forum talking about soaps too. Do I need to switch her bath products too...
  7. momof2sn
    You know you guys have helped me out so much. I am soooo glad I found this sight. As per our travel. We will be traveling straight to Texas which is 21+ hrs. So we tend to eat out at least one day all three meals. I am not sure how to do that without gluten. My daughter has a very good appetite. Then generally the rest of the time we stay with relatives...
  8. momof2sn
    Hi, We have two major children's hospitals in Indianapolis, we are about 1 1/2 to 2 hrs north of Indianapolis. There is Riley children's hosp. and St Vincent's, which is where the ped GI we saw. This may sound really selfish, but I don't mean it that way, I just want to know how you travel with a child on this diet. We are planning a trip to South...
  9. momof2sn
    Yes, they said the biopsy was normal because the intestine was only inflamed. They essentially told us she was on her way to a celiac disease, but then said it was miserable and we would deal with it later, so we were given orders for repeat blood work in July.So they basically want to take the wait and see approach. She has several red flags, being the...
  10. momof2sn
    I think I am just in denial that this could be happening?? I was like that when she was diagnosed with Duarte Galactosemia. I also have a son who is severe asthmatic and PDD. I honestly feel like I can't handle one more thing right now!! I would so much appreciate that book. I will do anything to learn more for my baby. I have to admit that this is my first...
  11. momof2sn
    Hello, Thank You so much for responding. It is so good to hear from somone who has been through this!! I don't even know where to start with the gluten free diet?? Is is just basically fruits, veggies and meats?? What if she just continues to eat as she is now?? The really only physical side effects she is having is the diarrhea (which honestly I don...
  12. momof2sn
    Hello, I am not a person with celiac disease ( I found this site looking for some answers for my daughter) I just wanted to say that I am a mom of two children. I have endo also and haven't had a lap for 9 years which shocks the heck out of my doctor. I take a natural progesterone cream by Lame Advertisement it is called Prolief. It is amazing. I was...
  13. momof2sn
    Hello, I have so many questions?? My daughter is 21 mo. and diagnosed with Duarte Galactosemia at 3 weeks of age. It is a liver disease. She has always had an enlarged abdomen. We saw a GI in Feb. and she suggested that we scope her. The procedure showed that her intestines and lower part of her stomach was inflammed. The biopsy and allergy testing came...
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