Barcino
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Chronic duodenitis and gastritis post diagnose
Barcino replied to Onemoreceliac's topic in Related Issues & Disorders
I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. -
Antibodies went up
Barcino replied to Barcino's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. -
Hello, I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis. My son went from >250 July 2023 to 33 Nov 2023 to 15.7 July 2024. With <15 being negative. He is almost there. My daughter went >250 July 2023 to...
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Thanks for sharing. The shock has subsided a bit and we are so thankful to know so we can get them back to health.
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Barcino reacted to a post in a topic:
Can both kids have celiac and neither parent be positive?
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Wheatwacked reacted to a post in a topic:
How long does it take to get results back, typically?
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yes, he has autism. My nieces too and at least one other and both parents do gluten free because they feel sick on gluten. I will send that their way! Thank you! Very interesting to know type 1 could cause a false negative! thank you!
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Barcino reacted to a post in a topic:
Can both kids have celiac and neither parent be positive?
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Yes, we are going to go ahead and do genetic testing. We have more than met our deductible this year with my son's diagnosis so we are going to test for EVERYTHING and I am considering doing an endoscopy for peace of mind. We will see, probably not necessary. I am still somewhat shocked that no parent has it even if you make the logical point of it is a...
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Barcino reacted to a post in a topic:
How long does it take to get results back, typically?
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Thank you - it seems hard to believe that we would have both kids with it but no parent - but I guess we can both carry the gene, in fact we think we both do. I have a cousin and her daughter with celiac / and my husband has a nephew with the gene on his side - he actually was taken off gluten because he has issues with behavior while on gluten, he has autism...
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I was negative / my husband negative. BOTH KIDS POSITIVE! How can this be?
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2 weeks ago my son was diagnosed with celiac disease. Today we got confirmation my daughter was also positive by blood with antibodies through the roof like my son. Neither my husband nor I were positive via bloodwork (complete celiac panel) - how can this be? I have one cousin with celiac on my side of the family and we believe my husband's family has the...
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knitty kitty reacted to a post in a topic:
How long does it take to get results back, typically?
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Barcino reacted to a post in a topic:
How long does it take to get results back, typically?
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thank you - I am pretty feisty! 😁
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frieze reacted to a post in a topic:
How long does it take to get results back, typically?
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Scott Adams reacted to a post in a topic:
How long does it take to get results back, typically?
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Barcino reacted to a post in a topic:
How long does it take to get results back, typically?
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Thank you. The first nurse practitioner is fabulous and she runs my thyroid panels and does all this extensive bloodwork - thats the first person I saw. She thought it was odd but just suggested retesting in 3 months. The pediatrician was "NOT THAT WORRIED" - I told her well, I AM. I mean you have to be a bully sometimes to get through the system but we got...
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Hi there! Thanks so much we are part of a club we didnt want to really be but we are thankful for the support. I had my husband ask for a comprehensive celiac panel and he was tested for multiple things (just like my son was) all negative. My son was ALL positive and through the roof. I am originally from Spain, and my cousin and her daughter have celiac...
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Hello, My son (19) was diagnosed with celiac last week. It has been a whirlwind. The rest of the family tested. My husband was tested by his endocrinologist and bloodwork sent to a local lab and came back negative in 3 days. My daughter and I got bloodwork done that got sent to quest, like my son. For my son's positive we had to wait a week and a half...