Manaan2
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@knitty kitty The information you've provided is invaluable! I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!). This weekend my husband and I plan to solidify all the details for a start point, then adjust as...
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Scott Adams reacted to a post in a topic:
Hidden Gluten in distilled vinegar
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knitty kitty reacted to a post in a topic:
Hidden Gluten in distilled vinegar
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@knitty kitty I can't thank you enough! My husband and I already started looking into those supplements. We definitely plan to give it a try. We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it. We've made many attempts to gradually decrease but...
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Scott Adams reacted to a post in a topic:
Hidden Gluten in distilled vinegar
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Thank you for posting this and for all of the ongoing information you provide on this site. Our stress level with managing our daughter's celiac disease would be much higher without this site as a resource.
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Hi Trents-Thanks for reading and sharing insight. We need all the help we can get and it's super appreciated. She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out...
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I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand? My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later...
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Scott Adams reacted to a post in a topic:
Vitamin Levels and constipation
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Thank you! This is great information and perfect timing because we have our first appointment for a second opinion tomorrow.
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Scott Adams reacted to a post in a topic:
Vitamin Levels and constipation
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Scott Adams reacted to a post in a topic:
Vitamin Levels and constipation
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Wheatwacked reacted to a post in a topic:
Vitamin Levels and constipation
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I didn’t even think about iodine levels when we removed dairy. We will definitely get those levels tested. We always use Himalayan salt in cooking so that reduced her intake even more. Thank you!
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Can’t thank you enough for this information. We are definitely going to try one of these alternatives and the GI wasn’t able to answer any of our questions related to the vitamin d info that you provided. I’m researching as fast as I can while also trying to stay sane and enjoy life. All this info is incredibly helpful for our daughter’s progression and the...
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Thank you for the reply, articles and resources. We all went gluten free immediately because I was too concerned about cross contamination. So far bloodwork is clear for the rest of us in the family. The pediatric GI had recommended we all test immediately.
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Thank you to everyone for your thoughtful responses! It’s all very helpful and gives us some strategies to try while we wait to get another GI and dietician opinion. Some of these things we can start working with our primary pediatrician on right away. Thanks again.
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plumbago reacted to a post in a topic:
Vitamin Levels and constipation
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I’m sure this info is already covered somewhere so apologies for posting a repeat; my 6 year old daughter is newly diagnosed with celiac and we are thankful for all the info on this site! We’re looking for thoughts and suggestions regarding the following: Constipation continues even now that we are 6 months gluten free. Consistently low vitamin d l...