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kevieb

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kevieb

  1. kevieb
    ducky is right---the lady over the study says that they know there are other genes involved besides DQ2 and DQ8. they are trying to find out what they are. a good example of this would be the fact that with identical twins, if one has celiac the other has a 70-75% chance of getting celiac---but not a 100% chance. in our case, my identical twins both have...
  2. kevieb
    my memory is going, i forgot i had posted about the frog eye salad! if my memory doesn't go on me again, i will look up the recipe and post it.
  3. kevieb
    it has been such a long time since i have been on the board that i don't know if anyone will even remember me. the look of the board has changed since i was last here. we joined the celiac study that is being done at the university of california, irvine a year and a half ago. the results of the celiac tests confirmed what we already knew about our three...
  4. kevieb
    i haven't been on here for a long time!!! we have moved and i have been pretty preoccupied with trying to adjust to the move----i cried every day for a month---and i was the one that pushed for the move??!! we have a bigger house, which is great, but we have a smaller yard and i think that is what is killing me. we still have a bigger yard than most houses...
  5. kevieb
    IgA deficiency is a little more common in celiacs than it is in non-celiacs, but i don't know the figures. one of my children is IgA deficien----and registers at almost nothing. he does not have celiac disease, but he does carry one of the main genes for it. it used to seem like he had a cold all winter long, so i figured he must have allergies...
  6. kevieb
    dr. fine believes that no one should consume dairy products----i think that is regardless of what test results you have. have you ever tried taking lactose supplements to see if it relieves the bloating and gas?
  7. kevieb
    i have a son who is IgA deficient. he didn't just test low---his levels are almost non-existent. i think that there is a definite difference between being IgA deficient and having low IgA levels. since enterolab does not test IgA serum levels and dr. fine goes on and on saying he is going to publish---without ever publishing---i think you would be far...
  8. kevieb
    aren't rotation diets supposed to be good for avoiding or managing food intolerances? (not food allergies)
  9. kevieb
    were those numbers for antigliadin antibodies, or for Ttg antibodies?
  10. kevieb
    some reflux babies have milk-soy protein intolerance that either causes or aggravates their reflux. when we first took my youngest to a ped gi for her reflux the first thing he did was food allergy testing to rule that out as a cause of her reflux. alot of babies have silent reflux and hardly ever spit up.
  11. kevieb
    maybe start with food allergy testing. does your daughter have reflux?
  12. kevieb
    we are involved in a celiac study through the university of california, irvine. i asked the woman that is over the study about all these so called gluten sensitive genes. she was not aware of any gluten sensitive genes besides the two that have been identified for celiac. she told me that they know there are more genes involved. i think that enterolab...
  13. kevieb
    i'd recommend you have follow up blood work done-----this can really help to see how well you are doing with the gluten free diet. we check our girls' blood work about every 6 months, but we have done it sooner when the need arose. if it helps----there have been alot of us that have cried in the early days of diagnosis. one of my twins is going...
  14. kevieb
    i think i'd start with food allergy testing and go from there. whoops!----i just looked at your post and saw that you've already done that. kids that age can get pretty wild just because they are kids---but i can understand your concern about the circles under they eyes.
  15. kevieb

    ARCHIVED Flax Seed Oil

    kevieb replied to Annaem's topic in Related Issues & Disorders

    HUH?????
  16. kevieb
    personally, i wouldn't assume anything based on those test scores. there is alot of controversy over enterolab-----and your test results are low compared to what most people seem to get from them. your Ttg levels, which would indicate celiac disease are normal and your antigliadin levels are only one point above normal----which could be caused by a number...
  17. kevieb
    since we have 3 girls with celiac disease, our doctor has recommended that we test everyone in the family every 3 years or so. only one of our kids has had gene testing done---and he carries one of the celiac genes but has no active disease. our doctor's recommendation with him is that we test him yearly----or sooner if he develops symptoms.
  18. kevieb
    we have our house for sale right now, too-----it is so stressfull for me to try and keep it clean with 7 kids in the house. there are a zillion houses for sale in our little town.
  19. kevieb
    she is too young for the tests to be accurate---some young kids do not produce Ttg antibodies until they are older. that being said, it is still good to test if you suspect it. kids that young can react to alot of different foods----and alot of them will outgrow those intolerances.
  20. kevieb
    it is almost a guarantee that enterolab will tell you that you are gluten sensitive, save your money. i have a son that is IgA deficient and we tested him through promethius lab.
  21. kevieb
    i still hate this disease---and i don't have it. when my girls were diagnosed, i wished that it was me instead of them.
  22. kevieb
    i would not consider a slightly raised antigliadin antibody test a positive result for celiac disease. there are a number of things that can raise those levels----even constipation. it is much better to get Ttg levels tested. if it were me, i would do a little more investigating before i put my daughter gluten free----but that is just me.
  23. kevieb
    campbell's bean with bacon USED to have gluten in it. i haven't read an ingredient list in ages on one of their cans. i will jump for joy if they have taken the gluten out of it! my mother just brought over a can of campbell's chunky split pea and ham and the ingredients are safe.
  24. kevieb
    there are going to be plenty of times during the school years where substances will be used that are dangerous and/or toxic-----i don't intend on NOT allowing my children to participate in science experiments or art projects because of this. when i was in school we had a really exciting science class, and our teacher had us all tasting acid. tasting acid...
  25. kevieb
    how old is your daughter? i was cautioning my daughter about checking ingredients on some "goo" she was playing with and she said, "mom, i know how to wash my hands."
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