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kevieb

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kevieb

  1. kevieb
    dizzynik---i have 3 daughters with celiac disease. a 12 year old and 16 year old twins. one of my twins is a purging anorexic. she spent 3 months in the hospital last year. she had dropped to 67 lbs and was hoping to starve herself to death. her potassium was low, her cholesterol was high and her heart rate would drop pretty low when she was asleep-...
  2. kevieb
    are you having your Ttg levels tested on a regular basis. this would be a really good way to know whether or not you are getting cross contamination. there are 9 of us in our household, 3 of my daughters are celiacs. we cook all of our meals gluten free, but i do keep crackers, bread and cereal around for the rest of the family. i used to try and cook...
  3. kevieb
    i get the feeling that maybe alexis is going for a jerry springerish type of program. i am apalled at the last thing she wrote about not being sympathetic---and i probably spelled apalled wrong, but you know what i mean.
  4. kevieb
    some of these things you gals are discussing sound so nice in theory, but in reality, there can be some really serious and unforseen complications during the delivery of a baby. i would hate to see anyone not take these possibilites into account and be disappointed if their delivery did not turn out how they had planned. i had 3 successful v-bac deliveries...
  5. kevieb
    sandy, i am so sorry!!! i'm glad that kathryn has had a week fever free!
  6. kevieb
    dawn, my husband loves tomatoe sandwiches! have you seen bette hagman's book "the gluten free gourmet bakes bread"? it has a lot of recipes in it that allow for various intolerances. she gives directions for what to substitute for different allergies.
  7. kevieb
    sandwich breads are a little more difficult to reproduce than other gluten free bread products. did you use a regular wheat recipe and convert it, or did you use a gluten free bread recipe? i think you might have better luck making bread if you use a recipe that was specifically created for gluten free flours.
  8. kevieb
    reflux can cause that sensation in your throat----even if you don't get heartburn. i deal with this on a regular basis.
  9. kevieb
    i think the only research that claims that is the research done by dr. fine of enterolab----and he just doesn't seem to be able to get around to publishing anything to prove his work.
  10. kevieb
    i completely trust walmart's GV brand labeling. i THINK that they are very diligent about it and won't even list something gluten free if it is gluten free but made in a facility that uses gluten. we read the labels and love to be able to see GLUTEN FREE----but we still buy some of the Gv products that don't say gluten free as long as the ingredients look...
  11. kevieb
    angie----i had 3 v-bacs after having 2 c-sections. we were going to do a fourth v-bac with my last one, but they could tell she was in trouble before they even started the induction, so we did an emergency c-section with her. i hope the v-bac goes well-----the recovery time is so much easier, but, we'll take those kids any way we can get them here!!LOL...
  12. kevieb
    we do most of our baking using our old betty crocker cookbook recipes. we just substitute gluten free flour blends for the wheat flour and add xanthan gum. most of our baking is very successful.
  13. kevieb
    kate---this is an easy one. since your doc tested with a Ttg test, and you have now been gluten free for 4 months, ask for a repeat Ttg test. when the results come back lower, i don't know how your GI could still tell you that you don't have celiac disease. i can't believe that the gi didn't think of that one himself????
  14. kevieb
    just a thought, but probably the majority of the people buying these gluten free flours would also be concerned about cross-contamination so the risk may not be too bad. personally, if we had bulk gluten free flours available to us, i would give them a try for my girls.
  15. kevieb
    i've wondered why it is considered the "gold standard" also----since milk problems can also cause villi blunting.
  16. kevieb
    don't know where you live, but i know the name of a regular MD in utah that has dedicated his practice to treating candida.
  17. kevieb
    i have these same problems and they seem to get worse with time. are you taking any meds? how do you feel in the mornings? you could be sleeping, but it might not be the right kind of sleep. have you had follow up blood work to be sure your diet is gluten free?
  18. kevieb
    vincent-----this is wonderful news to hear. what about you------how are you doing? didn't your doc diagnose you with celiac?
  19. kevieb

    ARCHIVED What If?

    kevieb replied to Celiaction's topic in Coping with Celiac Disease

    it's funny you posted this today----i have fibromyalgia and recently the fatigue is almost overwhelming. just today i have decided to try (once again) to change my diet and see if i can find some relief from the pain and fatigue. i don't have celiac (3 of my girls do) but i keep having a tendency to wonder whether or not i should avoid gluten anyway. there...
  20. kevieb

    ARCHIVED Neuro

    kevieb replied to jacqui's topic in Doctors

    i have a tendency to agree with carla---if you are sure you are totally gluten free-----your symptoms could be caused by something else. what symtpoms are you having? maybe if you post them they will ring a bell with someone. i always figure that the more people you talk to, the more info you can glean. my son has ADHD and he is bipolar ll. he gets...
  21. kevieb
    i don't know if it could be celiac related or not, but as the mother of a teenager, i am glad to see that you are concerned about it. (don't i just sound like a mom!LOL!) my 18 yr old son does not sleep well and he is grouchy, and seems to have more aches and pains than a boy who works out on a regular basis should have. i have fibromyalgia and i know...
  22. kevieb
    i was the one that posted about constipation raising antigliadin levels. this is something that our ped gi just recently told me when i was questioning him about test results. raised antigliadin levels are not a really accurate test to base a celiac diagnosis on. i think it is a good idea that you are going the medical route for a diagnosis---but i know...
  23. kevieb
    my daughter had an MRI once that showed she had multi-cystic ovaries. the MRI was being done for hip pain, but it picked up the ovary problem because it was nearby. and----the ovary problem was not a problem, we discovered, after being referred to a gyno. i agree with blue-eyed-mamma---the ultra sound is likely to show something irregular if it is in the...
  24. kevieb
    carla-----i guess the way i typed that made it sound like i know i have lyme. i have not been tested, but because i have so many unexplained symptoms that fit lyme disease, i'd really like to find a doctor that will test me without giving the whole story of how it is probably not likely that i have it because........i just want a doctor to humour me and...
  25. kevieb
    carla, i think it was about 35 years ago for me, too.
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