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bonnieo

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by bonnieo

  1. bonnieo
    Talk to your son's pediatrician. This is especially important if your son withholds his stool (if he has a bowel movement in a diaper on a regular basis, I'd say it's developmental). The doctor should talk to you about increasing fiber (foods or supplements), fluids, timed toilet sitting after meals, and possibly medication to soften the stool (e.g., Miralax...
  2. bonnieo
    I've been mostly lurking on this board since April. I've learned a lot about Celiac by reading here and elsewhere. My 8-year-old son is scheduled for small intestine biopsy on Thursday. His antigliadin IgG and IgA are elevated, tTG and antiendomysial are negative. The doctor has finally decided to do the biopsy to "rule out Celiac." Nothing we've done...
  3. bonnieo
    I have heard just the opposite. Casein is not effected by heat.
  4. bonnieo
    I'm sorry if I wasn't clear. My son is not gluten-free yet. His blood work is inconclusive. The doctor has suggested a biopsy if he doesn't improve soon. So, I don't want him to go gluten free until after the biopsy. He is clearly allergic (IgE) to eggs. So we're egg free. But everything I've tried to bake without eggs has "flopped." Thanks to...
  5. bonnieo
    Forgive me for being (at least slightly) "off topic" from your original post. My son (8 years old) has similar blood work and also an egg allergy (cross-reactivity?). I'm still trying to figure out what to do for him. His numbers are 126.2 IGG AGA, 22.2 IGA AGA, 17.9 IGA TTG. The gastro has *not* suggested gluten free. Though he has indicated that...
  6. bonnieo
    Pure milk does not have gluten. However, many individuals who are gluten intolerant find that their symptoms don't completely clear up after eliminating gluten. Many individuals must also eliminate milk and milk products (lactose - a milk sugar and/or casein - a milk protein) to eliminate symptoms. After a period of time/healing, some individuals can...
  7. bonnieo
    I've read this book -- twice. It makes a lot of sense, but it's hard for me to tell whether it's supported by valid research or not.
  8. bonnieo
    Does anyone have the symptom of bowel movement urgency when ingesting gluten? ...sorry to get so personal -- just trying to figure out what's causing this. Thanks!
  9. bonnieo
    The following book explains how to get the bacteria in your gut back into balance. Breaking the Vicious Cycle: Intestinal Health Through Diet by Elaine Gloria Gottschall I ordered it from Amazon and read it but have not yet implemented it.
  10. bonnieo
    Read the book: Breaking the Vicious Cycle: Intestinal Health Through Diet by Elaine Gloria Gottschall There is also a web site: Open Original Shared Link
  11. bonnieo
    My 8-year-old son had to have blood drawn 3 times to get a full celiac panel. He has had these results: IgG anti-gliadin antibody - strong positive IgA anti-gliadin antibody - weak positive Anti-endomysial - negative tissue transglutaminase - negative Total IgA - normal Other abnormal tests: IgE egg whites - positive IgG casein - strong positive...
  12. bonnieo
    Another test that is needed is Total IgA. Some individuals (as many as 1 in 500) are IgA deficient and do not produce tTG. Apparently is possible to have positive Anti-Gliadin antibodies (IgA) and still be IgA deficient.
  13. bonnieo
    Did you eliminate all suspect foods then add things back one at a time? Or did you just keep eating normally and keep track of everything? How long did you eliminate a food before you tried it again? Are your allergy shots related to your food intolerances?
  14. bonnieo
    How have you gone about identifying food intolerances?
  15. bonnieo
    What blood tests were positive?
  16. bonnieo
    My child has been to a few parties and family gatherings since we started carefully watching what he eats. It seems that everything at a party is "off limits" for him. How do you deal with this? Do you bring just enough "allowable" food for your child? Bring enough for others? Excuse your child during the meal? I don't think he feels deprived at home...
  17. bonnieo
    Sarah, Above you say that anyone who produces IgA and IgG anti-gliadin antibodies needs to avoid gluten to be healthy. I wonder if you could help me understand this further. My son's blood tests show he is producing both of these (as well as IgG to casein). But the doctor has advised me to remove only milk (in all its forms) from his diet. I'm wondering...
  18. bonnieo
    My son's antigliadin IgA and IgG are both elevated. His endoymisial and tTg are in normal range. He also has a casein allergy (IgE response). The doctor advised me to eliminate milk from his diet. Apparently ingesting milk products damages the intestines and allows particles that should normally stay inside the intestines (like wheat) to leak out into...
  19. bonnieo
    Lisa, Thanks for the information. Your results do sound very similar. I have decided to follow up with a visit to a gastoenterologist to make sure the pediatrician's diagnosis was accurate (we have an appointment 6/11 at the University of Michigan with a pediatric gastroenterologist). Your story makes me more confident that I'm doing the right thing...
  20. bonnieo
    Are there other factors (besides Celiac) that could cause IgG and IgA to gliadin to be elevated?
  21. bonnieo
    Does anyone know... If TTG is the best indicator for Celiac Disease, why are gliadin IGG and gliadin IGA tested also? My 7-year-old son has gliadin IGG of 126.2 units (strong positive), gliadin IGA 22.2 (weak positive) but his TTG is 17.9 (negative). Does this mean he is: - gluten intolerant? - gluten sensitive? - has a potential to develop...
  22. bonnieo
    Here's what worked for us: When we went to the pediatrician to discuss my son's issue, I took a detailed write-up describing my son's on-going symptoms. The doctor took me very seriously. I know it's difficult to talk to the doctor when you're trying to keep a two-year-old from touching everything in the exam room. If your child has serious, chronic...
  23. bonnieo
    I have been reading this forum to try to understand if my 7-year-old son could have celiac disease. His doctor suggested that it was possible based on his symptoms and ordered blood work. As most of you know, it takes about a week for the results to come back. When you're talking about a sick child...a week is an awfully long time. Here's a summary of...
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