chrisinpa

2 hours ago, Anne65 said:

I was tested after 50, and years of enduring irritable bowel disease,  but this time it had already been suggested that gluten intolerance was the culprit. I had removed all gluten from my diet for 6 weeks. The symptoms were better and my blood tests (no scope) we negative. Now I  read I should have kept on eating gluten even though I had a pain free life?

I'm not an expert but if it were me I would return to gluten for a short period of time and see if the symptoms return.  Apparently there is just a difference between gluten intolerance and Celiac where antibodies attack your system...a form of autoimmune disease.  One thing I believe...gluten isn't good for anyone....hard to digest.

3 hours ago, JoJoColes said:

70 and diagnosed with celiac disease   Diagnosed with discord lupus and skin lupus three years prior. I have had stomach issues since the birth of my first child in 1978. Constipation, bloating, swelling, always gassy. I was told to eat more roughage and drink more water. My blood test numbers were so high there was no need for biopsy. My endocrinologist told if you have one autoimmune disease you probably have two.  

WOW.......all I can say is keep on hangin on.

3 minutes ago, trents said:

Probably more than have even heard of "celiac disease".

True......I'll give you that one.   

16 hours ago, trents said:

It's usually better to use the term "gluten intolerance" rather than celiac disease when talking to the uninitiated about these things. Gluten intolerance covers both celiac disease and NCGS (Non Celiac Gluten Sensitivity or just gluten sensitivity for short). 

True......but then I wonder how many people even know what gluten is and where it comes from etc.

4 hours ago, trents said:

That's why we have the term "silent celiac". And it might not be a stretch to say that most of us have fit into that category. But when you see those early symptoms in friends or family and try to encourage them to get tested, you usually get blown off.

I had that same thought......if a friend has some symptoms that seem familiar to me I would certainly mention that possibility.  I can imagine if you mentioned about getting tested to some people you might have them give you that "deer in the headlights" look.  I do know that with some people you even mention Celiac and they have no clue.    One good thing...I keep seeing an increasing amount of foods in the grocery store labeled "Gluten Free".   🙂

22 minutes ago, Russ H said:

Data from NHS England shows that most people are diagnosed between the ages of 40 and 60, with the mean age of diagnosis 45.

For those diagnosed later in life, I wonder at what age the condition actually begins? Blood screening suggests that most people with the condition are not diagnosed, and that is likely because they have no symptoms or because their symptoms are non-specific and unrecognised.

I had clear symptoms stretching back more than 4 decades before I was diagnosed. Perhaps many people have the condition for decades before something leads to testing and diagnosis.

Absolutely.  As I had mentioned before,  if it were feasible and/or possible,  perhaps diagnosis of children by doctors and/or pediatricians for the antibodies would be very beneficial.  Perhaps it could be considered a silent disease doing it's damage until really serious symptoms occur?

I should have studied it more , but there are food allergies and then there is an autoimmune response to  gluten,  but whether it is just considered an allergy or an autoimmune  response or both,  I would think peanut allergy can be one of the worst and be life threatening from what I've read

7 hours ago, Scott Adams said:

There are lots of reports of covid-19 infection triggering people's celiac disease, so it seems possible that the vaccine may be a factor for some people as well. Currently there are several other viruses that have been implicated in triggering celiac disease in those who have the genes for it.

The way things are going it might end up that three quarters of the population will have a gluten related problem.    Maybe our brilliant scientists that seem so skilled at developing "Franken" GMO's can develop wheat without gluten.

8 hours ago, trents said:

@chrisinpa, this is done on children in Italy as part of their screening as they entering the school system.

Wow.....that is interesting.

3 hours ago, trents said:

I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time and realize there may have been some minor symptoms all along.

Maybe the only way to confirm that possibility would be to do (beneficial?) tests on all young children for gluten antibodies which might avoid any and all damage for years before they really get bad?

6 minutes ago, ShariW said:

Forgot to add: I asked my gastroenterologist why this happened at such a late age for me. He said people can develop celiac disease or gluten sensitivity at any age. 

When I think of it when I was young I remember my mother seeing a gastroenterologist in the 50s and I doubt that they ever knew what was causing her problem/problems at that time.

4 hours ago, Peggy M said:

Add me to that list of people in their 70's. What they think triggered mine is the Covid shots. I attended a luncheon last week that was made all gluten free since so many attending were either gluten free or celiac. What a joy it was to be eating what everyone else ate.  No one knew that!  

Hmmmm....interesting.  I know there was some other issues with the Covid shots and it seems like the people with Gluten problems seems to be growing.

1 hour ago, ShariW said:

Late diagnosis for me, too. In my 70's, but I had been having intermittent problems for a while, and increasingly bad reflux. In desperation, I did my own elimination diet - dairy, eggs, then wheat eliminating each for about 2 weeks. When I cut out the wheat, the difference was amazing! I also found that I had a Celiac gene through one of the ancestry testing programs.

I avoid Gluten as much as possible and I seem to be doing ok.  Whether Gluten intolerance or Celiac I tell everyone that Gluten isn't good for anyone.  Hard to digest.   I'm sure we all wonder how many people out there have a problem and have no idea it's the gluten that is causing the problem,.

Excellent article.  That very same thing happened to me at 75.