chrisinpa
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Latest Celiac Disease News & Research:
Article Comments posted by chrisinpa
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I'm 77 and since I was diagnosed with Celiac approx. two years ago my doctor recommended a bone scan. It didn't surprise me that the results showed some bone loss. I had gone on a gluten free regimen and hopefully healing has occurred. The doctor prescribed Fosamax and before I got the Fosamax I did a study and found the bad side effects of Fosamax to include intestinal damage etc. I didn't get the prescription. Instead I decided to go natural and add to my regimen of supplements which include things that are good for bone health to include vitamin D3....magnesium....calcium.....and silica. These were natural ways I found on the internet to help people with osteoporosis or some bone loss. Being active and weight bearing activities are valuable also. BTW...smoking can be detrimental to maintaining bone also.
- knitty kitty and Scott Adams
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21 minutes ago, chrisinpa said:
I would hope so. I should study what gluten actually is.
I sure it has been covered many times before but this is everything about gluten but were afraid to ask. LOL What Is Gluten? Common Foods, Conditions, and More
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On 10/4/2025 at 12:14 PM, trents said:
Or at least with a form of gluten that did not cause reaction. If that could be accomplished then I would assume the same could be done for the barley, rye and those cultivars of oats that contain gluten.
I would hope so. I should study what gluten actually is.
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I guess I must ask...are some people actually addicted to gluten or not? From what I have concluded it's not the gluten that I miss since gluten free substitutes are fine with me. It's what I put on the bread..(.jelly) etc.....or what is on the pizza that makes the difference. It seems to me the problem is what gluten was doing to me. Hopefully that makes sense?
- Threecents and Scott Adams
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1 hour ago, Scott Adams said:
If you have celiac disease being gluten-free is essential, but this article is aimed at those in the initial stages of getting diagnosed and quitting gluten. For some people gluten cravings can be strong and last for years. Unfortunately 18% of celiacs polled by Celiac.com report cheating on their gluten-free diets.
`I can't believe that anyone would ever think of cheating. LOL It is quite a temptation. I must admit....if I ever found out that I only had weeks to live from something else I think I would stuff myself with foods that contain gluten before I go.
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The only best thing I do is try to find gluten free substitutes.....example....gluten free pizza etc.
- Threecents and Scott Adams
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9 hours ago, knitty kitty said:
Look at the ingredients. Thiamine Mononitrate is in that ingredients list.
OMG.....you're right. I am going to study and try to remember all that info. you have provided. From B1 to B12....and different names for each one and how well they are absorbed etc I had previously learned about the different forms of Magnesium. Like most people I just assumed that magnesium is magnesium. Maybe they should come out with a book or movie entitled......."Everything you always wanted to know about all the B vitamins but were afraid to ask". LOL
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Just checked....the Centrum Silver men 50 plus multiple vitamins have Thiamin and lots of other vitamins and minerals. There are Centrum Silver 50 plus for women also. If some of the vitamins and minerals listed don't meet the daily recommended requirement you can add to those specific ones with additional extra supplements.
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30 minutes ago, knitty kitty said:
Peripheral neuropathy (nerve pain iincluding numbness, tingling, buzzing in the feet or hands) can be caused by deficiencies in several vitamins, not just B 12 Cobalamine.
Thiamine B 1, Pyridoxine B 6, and Riboflavin B 2, zinc, magnesium and calcium are also needed to work with B12. With Celiac Disease, the absorption of all the micronutrients are affected. Supplementing just B12 isn't going to resolve the nerve pain.
Thiamine is the B vitamin that runs out first because it cannot be stored long (2 weeks) and can run out in as little as three days when we're ill.
Try a B Complex and Benfotiamine, A form of Thiamine shown to promote intestinal healing. Benfotiamine will improve peripheral neuropathy as well.
Thiamine Mononitrate found in most vitamin supplements and enriched foods, (including that Nervive Nerve Relief), is not bioavailable, the body cannot utilize it well. Thiamine Mononitrate is "shelf-stable" meaning it won't break down when exposed to heat and light. Thiamine Mononitrate is poorly absorbed, only 30% of the amount on the label will be absorbed, less than that is utilized by the body. That "shelf-stable" form is difficult for the body to turn into an active form of Thiamine that the body can use.
Interesting Reading:
The importance of thiamine (vitamin B1) in humans
https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/
https://pubmed.ncbi.nlm.nih.gov/38018774/
31 minutes ago, knitty kitty said:Peripheral neuropathy (nerve pain iincluding numbness, tingling, buzzing in the feet or hands) can be caused by deficiencies in several vitamins, not just B 12 Cobalamine.
Thiamine B 1, Pyridoxine B 6, and Riboflavin B 2, zinc, magnesium and calcium are also needed to work with B12. With Celiac Disease, the absorption of all the micronutrients are affected. Supplementing just B12 isn't going to resolve the nerve pain.
Thiamine is the B vitamin that runs out first because it cannot be stored long (2 weeks) and can run out in as little as three days when we're ill.
Try a B Complex and Benfotiamine, A form of Thiamine shown to promote intestinal healing. Benfotiamine will improve peripheral neuropathy as well.
Thiamine Mononitrate found in most vitamin supplements and enriched foods, (including that Nervive Nerve Relief), is not bioavailable, the body cannot utilize it well. Thiamine Mononitrate is "shelf-stable" meaning it won't break down when exposed to heat and light. Thiamine Mononitrate is poorly absorbed, only 30% of the amount on the label will be absorbed, less than that is utilized by the body. That "shelf-stable" form is difficult for the body to turn into an active form of Thiamine that the body can use.
Interesting Reading:
The importance of thiamine (vitamin B1) in humans
https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/
https://pubmed.ncbi.nlm.nih.gov/38018774/
Anong the vitamins and minerals I supplement with on a rotating basis....not all of them everyday except a daily multiple vitamin, , I'll have to see if my Centrum silver daily vitamin has Thiamine in it. I was buying the B vitamins separately now I just get the B Complex. Other than that the small amount of tingling/numbness especially in my right foot supposedly could be caused by something else.....maybe a pinched nerve and the doctor recommended what I think is an EMG test. I'll still supplement but I may get that test done. I already had a peripheral blood (flow?) test done which was good. Apparently a pinched nerve in the lower back could cause it also?
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I will add my thanks also. My list of supplements are very similar also..
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44 minutes ago, DonnaNM said:
Thanks for that information. I'll check it out.
You betcha!
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20 minutes ago, chrisinpa said:
BTW.....I am going to check out a new med being advertised,,,,,Nervive.
Nervive Nerve Relief Review: Is It Safe and Effective? - WellnessVerge
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2 minutes ago, chrisinpa said:
Bingo. I guess we all do what we can with what we know and hope for the best. Would be nice if the human body had a reset button and we could put in a new operating system. LOL
BTW.....I am going to check out a new med being advertised,,,,,Nervive.
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Bingo. I guess we all do what we can with what we know and hope for the best. Would be nice if the human body had a reset button and we could put in a new operating system. LOL
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41 minutes ago, DonnaNM said:
After understanding all the deficiencies one can get from having Celiac disease, I take B12, but still have nerve pain. It's frustrating.
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BTW.....Other than vitamin D supplementation, it's amazing how much vitamin D levels in the body can be increased by even short periods of sunlight exposure. I have to ask if there is a limit to how much vitamin D would be harmful? Apparently there are some supplements that will be stored in the body and above a certain level can be toxic.....and some vitamins/minerals that are disposed of by what the body doesn't need or use.
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Interesting observation of the possible association of a symptom that can be affected either positively or negatively by minerals or nutrients. I have some numbness and tingling on my right foot apparently the result of neuropathy. From what I've read there can be a number of causes and vitamin B12 deficiency and supplementation has helped some people. It wIll be interesting to see what Scott has to say. In my opinion if something makes something seem better keep doing it or vice versa. The big question is "why".
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13 minutes ago, trents said:
Or at least with a form of gluten that did not cause reaction. If that could be accomplished then I would assume the same could be done for the barley, rye and those cultivars of oats that contain gluten.
Yep...we'll keep our fingers crossed. 🙂
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I guess that is the ultimate goal...a new strain of gluten free wheat. That would still leave barley and maybe (oats?) (etc?) with gluten.
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8 minutes ago, ShariW said:
My understanding is that ancient grains that are wheat-related are still to be avoided by all of us with gluten sensitivity. These include Einkorn, Emmer, Spelt and Kamut.
Thanks much!
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After reading all this scientific research info., it is interesting and I am impressed with the research thus far although I must confess that with some of that info. my eyes were glazing over. :-). One positive thing I can say at this point, I can buy gluten free pizza's in the grocery store that aren't bad.
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Was reading that a certain probiotic bacteria might be able to break down gluten.....but the real solution might be to develop a new strain of wheat etc that is gluten free? And..... is it true that in ancient times wheat etc. didn't have gluten until the advent of the new (GMO)? strains. of wheat etc?
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5 hours ago, JoJoColes said:
❤️
I guess we're all doing the best we can with what we know. Maybe one day there will be a cure of some kind. Stay tuned!
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Just now, chrisinpa said:
I'm not an expert but if it were me I would return to gluten for a short period of time and see if the symptoms return. Apparently there is just a difference between gluten intolerance and Celiac where antibodies attack your system...a form of autoimmune disease. One thing I believe...gluten isn't good for anyone....hard to digest.
BTW...it's possible that Scott Adams might weigh in on this one.
Optimizing Osteoporosis Screening in Celiac Disease
in Osteoporosis, Osteomalacia, Bone Density and Celiac Disease
Posted
Bingo......I think I forgot to mention, longer term Fosamax apparently causes bone to become brittle. Yikes! I thought about giving some feedback to the doctor as to why I cancelled getting the prescription and then thought otherwise.