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katifer

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by katifer

  1. katifer
    We found that my four year old has Celiac when he was 2 years old because he was not growing, hardly eating, hardly slept etc. He has been gluten-free for the last 2 years. I only cook gluten-free meals, and there is almost no gluten in our house. We are very careful and his school is careful.But he is very,very little still and he hates being small:( He...
  2. katifer

    ARCHIVED Joint Pain

    katifer replied to MrsBaker's topic in Coping with Celiac Disease

    For me i must avoid gluten, dairy, and sugar. My joint pain comes back if i have any of those.I have been doing this for 2 years and it has helped me tremendously. Hope you find out all those things that irritate your system so you feel well!
  3. katifer
    Wow what you describe is pretty much what i did 2 years ago when i found my baby and i were so sick because of gluten. He was described as 'failure' to thrive because he stopped growing and i had weird symptoms like my skin hurt all the time and i had chronic pain in all my joints as a 25 year old. When we went gluten free ---i freaked out:)....cleaned...
  4. katifer
    your symptoms sound Exactly how i used to feel before i knew about gluten intolerance---- i felt like that all the time and have only felt it again when having gluten.
  5. katifer
    Yes! It happened to me for years! It was horrible. Then i went gluten, dairy free...i try to stay sugar free too. It never happens unless i have gluten or dairy. It did take a bit for my body to heal...4-6 months. 2 years later i cant believe i lived like that from age 11-27. Hope you heal quickly. Make sure you check medications, and things like dressing...
  6. katifer
    I have wanted to write some of the Dr.s that diagnosed me w/ random wrong things and just tell them it was GLUTEN! please dont continue to miss this with other patients! you did the right thing for sure. it is hard when you have suffered for such a long time to not want justice though.
  7. katifer
    P.s. He said it was Reactive Hypoglycemia...every doctor acted like it wasnt a big deal but it helped me so much to keep sugar out.
  8. katifer
    hmm not sure why it didnt post what i wrote--but i had the same thing dizziness often/daily tingling down my arms and legs, numbness--in short my nutrtionist said that my blood sugar was a mess and i needed to stay off all sugar cane/evaporated cane syrup whatever they like to call it:)----it helped tremendously. He had me take chromium( it isnt expensive...
  9. katifer
  10. katifer
    I am just going to add that the reason i went to be tested was because my child was having chronic lose stool and was struggling to gain weight/and grow. Both of our tests came back negative.(unfortunately i was put on an elimination diet while breastfeeding and gluten had been out of my system for a while) He was diagnosed failure to thrive(born a 9lb)....
  11. katifer
    I just want to say the same thing happened to me..very dizzy ,tired..etc. I have been gluten free for over two years and i felt some relief from my chronic pain but the dizzy-ness etc. was hard. My nutritionist encouraged me to look into reactive hypoglycemia(he had me start taking chromium and stay away from ALL sugar cane)--he said that the gluten intolerance...
  12. katifer
    Did you go to the Cayman Islands? My husband has a job offer there but me and my two kids have celiac....just wondering if there is even a chance we can find gluten-free bread:). thank you for your time
  13. katifer
    Thank you so much:)- We do not drink Rice Dream because it made him sick (barley!), we use Rice Milk from Trader Joes that has no barley in it. We do use coconut oil, etc. He cant really have Rice CHex, i thought it was the sugar that made him sick with those but i guess it is trace amounts of gluten? anyways i will keep at it- ---borrowing more gluten-free...
  14. katifer
    My 3 year old son has been gluten-free for almost 2 years, he was born weighing almost 9 lbs, from birth gagged, choked, reflux type reactions(also horrible diarrhea)...then got pneumonia at 10 weeks old and just continued to be sick the rest of the year his weight continued to decline...doctor gave DNA tests for celiac and had DQ2---soooo.. he has been gluten...
  15. katifer
    i have been gluten-free for about a year now too---found out a couple months ago that sugar cane makes me feel just as horrible as gluten does---i struglge to not have it but honestly i feel great when i dont have it.just another idea. O and our house is Gluten free....
  16. katifer
    my nutritionist said that was actually intolerance/allergy to sugar cane. take it or leave it- b/c he isnt a doctor---and is pretty earthy--it has helped alot!``
  17. katifer
    hey just want to update real quick there is a support being led Fall 2008 by a woman named Beverly Beverly Vichich bevnurse1@earthlink.net next meeting 6:30pm Dr. John Ness' office waiting room
  18. katifer
    okay so my son was only given a gene test---nothing else by our Dr. --he told me to take him off gluten beacuse he has the HQ2 gene--my son wasnt thriving etc.--never eating etc., .....now 6 months later he is still not eating much-more but seems to have many other things he cant eat-- My bro is a gastro surgen and told me he was shocked my 18month old was...
  19. katifer
    Thanks for sharing! i was diagnosed in Nov. 2007 because my baby was really sick and they found that we both had Celiac. I have been trying to figure out my symptoms because i lived with it so long it is hard to know what was related and what wasn't----your story just helped me so much--honestly i have tears running down my cheeks because i really want to...
  20. katifer
    i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.
  21. katifer
    YES i feel horrible if i lick an envelope!!! absolutely gluten!
  22. katifer
    thanks so much!! We really are doing sooooo much better--yes our doctor is great --so if anyone needs one in Tallahassee, Fl. John Ness is a great family practice doctor:)--thanks again!
  23. katifer
    i need some advice I changed doctors and asked if he would test my child and i for Celiac--he said the best test was a genetic test...and both of ours came back with the HQ-2...(if i am saying that correctly?) anyways, i asked because i have been told nothing helpful since i was 10years old...and i am 27---my child was 11 months at the time and had stopped...
  24. katifer
    i am ordering a yogurt maker and will start next week --do you think this is way to hard to have my 17month old do? He and i were diagnosed in Nov 2007 and he is doing sooooo much better being off gluten but it seems that soy and dairy bug him too--i guess i just dont want him growing up with so many intolerances! Gluten/Celiac is enough. i need to do it...
  25. katifer
    yes i licked an envelope 3 weeks ago and felt HORRIBLE for the whole next day---thank you sooo much for all the help we are doing so much better---i am having to take deep breaths and just do this slowly with two small kids but my husband was great and went out and bought a ton of new things to replace the others--thanks again!!!
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