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angie315

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Everything posted by angie315

  1. angie315
    She started complaining about it again last night after we had spaghetti pie (mozz cheese, parm., sauce, rice noodles). She was also clearing her throat a lot afterwards. I am wondering if it could be a dairy thing? She has never had problems with dairy before....could it start at 6? I am going to make a doctors appointment on Monday but I wanted to have...
  2. angie315
    My daughter has been diagnosed with Celiac disease since she turned 4 (she is no 6). She has had yearly blood tests which have all been in the normal range after we went gluten free. She has recently been complaining that she feels like there is a bubble in her throat. I keep thinking that it may be an allergy or acid reflux? Has anyone else had similar...
  3. angie315
    My husband HATES coconut but I have read of the benefits of substituting it in cooking. Is the flavored masked well in food or do you still taste coconut? I did buy some coconut oil and flour that I have been meaning to try in baking.
  4. angie315
    My 4 year old daughter has been gluten free for almost a year. We dealt with behavior problems prior to her diagnosis and they had greatly improved on a gluten free diet..at first. Usually her only reaction to gluten is her change in behavior. She becomes very mean, she hits, bites, throws tantrums and she get the "crazy" eyes and my husband and I call...
  5. angie315
    Could you tell me more about these enzymes. My daughters doctor hasn't mentioned the use of these. What do they do? What kind of research has been done on there useage? We are still waiting for weight gain....
  6. angie315
    Wow, your daughter sounds a lot like my prior to diagnosis. My daughter was also only 28 lbs at her 4-year old check up. She was also born at the 50% and stayed there until we introduced solids at 9 months. Then she fell to the 4th % (by her 4-year old check up). She never had diarrhea but she did have very light stools. She also never wanted to eat...
  7. angie315
    I am very new to this...My 4-year old daughter has only been gluten free for four months. I am trying to pinpoint where I think she is getting some gluten. She is in a preschool setting for three days and with family for the other two days. Therefore it is getting hard for me to determine where the problem is. My question is how soon after an accident...
  8. angie315
    I so agree! Our ped. kept saying that unless she has diarrhea that she didn't have celiac. I kept saying....her poop is yellow!! Thankfully after a positive blood test and a positive biopsy she was gluten free. Yes, the poop turns yellow after an accident. So true. As for the poster... We decided to go for the biopsy with our 4 year old. I am glad...
  9. angie315
    I am new to this and have a question about symptoms a child can have from accidently getting gluten. My daugher spent the night at her grandparents Friday night and I was told she woke up twice during the night to throw up. My mother said she was very careful but I think she got some gluten somewhere. This has been our first experience like this since...
  10. angie315
    My daughter has only been gluten free for 2 months. Last night she took a bath (I used California baby body wash by regular shampoo). She was playing in the tub and putting water into her mouth and spitting it back out. About two hours after she was asleep she woke up screaming and didn't respond to my voice. She only woke up after she peed herself. ...
  11. angie315
    Question about Enterolab. I saw that it was pretty expensive. Did you submit to insurance and if so, did they pay it entirely?
  12. angie315
    My oldest daughter (4 years) was recently diagnosed with Celiac (via blood & biopsy). How accurate are the blood test for very young children. My youngest is only 14 months and my ped. just gave me an order to get her her blood work done. The only sign that she is showing is a very bloated belly at the end of the day and her weight % is starting to...
  13. angie315
    My daughter has recently been diagnosed. My daugher gained weight very slowly and at 4 years old she only weighed in at 29lbs. Her ped. kept reasurring me that she was just naturally thin, she's been following her own growth curve, etc. I finally insisted that I wanted her tested for celiac and she was positive. My daughter's only signs were pale stools...
  14. angie315
    We are in for March 13th but on a cancellation list. I am going to call again tommorow to see if she has any openings. We are trying different gluten free foods sporadically. We are still not gluten free but I thought it was a way of finding out what she likes so we can be ready. She is SOOO picky. She has not liked anything we have introduced! Ugh...
  15. angie315
    I am from Lancaster, PA as well. You mentioned Central Market. There is now a stand called This Little Piggy which make baby food up to todder/kid meals. She has gluten free versions of the toddler/kid meals. She also takes special orders if your child has special dietary needs such as a need for gluten and dairy free.
  16. angie315
    Juliet- Thanks so much for the attachment. I finally got an appointment with the GI ped. doctor on March 13th but they do have us on a cancellation list to get in sooner. They seem to understand that there is some urgency. My pediatrician has also expressed an urgency on getting her gluten free soon. I am having a very hard time continuing to feed my...
  17. angie315
    I have just found out today that my 4-year-old daughter has test positive for Celiac (the antibody blood test). I was wondering how accurate these tests are. We are trying to get in with the only pediatric gastro. dr in are area and they say it could be months before we can get in for a biopsy. Of course they are asking me to keeping her on a gluten diet...
  18. angie315
    I have a 3 (almost 4) year old daugher who has always been extremely thin. She currently only weighs 28 lbs and is considered underweight for her BMI. After I have had a friends child diagnosed with celiac disease and I learned more about it I a have been concerned for my daughter. I have taken her to the pediatrian who didn't seem concerned considering...
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