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MammaW

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MammaW

  1. MammaW
    So thanks for everyone's thoughts on the lab issue. I am still trying to get my insurance to pay for the testing....I have submitted a "medical necessity" letter in hopes that they will pay. My doctor had no real opinion re Enterolab, but actually uses Prometheus regularly. I think my plan will be to see what my insurance will pay for and go from there...
  2. MammaW
    Thanks for the info...I think I am going to try to go with Prometheus if I can get my insurance to cover
  3. MammaW
    My one year old is allergic to rice....it is a very rare thing in this country our allergist says. Of course it is the first thing I gave him for solids and he would projectile vomit it every time. We had him tested (RAST) and sure enough. Also when I found out he was allergic, I gave it up too as I was nursing and his rash cleared up...he had had this...
  4. MammaW
    Just wanted to see if anyone had any thoughts about testing....My friend who is a dietician recommends Promethius lab for testing. I asked her what she thought about Enterolab and she just said she was not familiar with it. I see that Prometheus is more expensive, but has anyone had any experience with one or the other being recommended? Any differences...
  5. MammaW
    Hi there, I am very new to all this too. We don't even have a diagnosis for my 1 year old, but I have learned SO much from everyone here on this board. I wish I could remember all the good postings I have read that sound similar to yours, but I guess I would just say keep reading and reading here on this board -especially the "parents with kids" section...
  6. MammaW
    thanks! Do you use that baking mix alot? I mean is it a good substitute for any flour in a recipe? And yes, eggs and chocolate ok so far....My littlest one just turned 1 yesterday and I hav a 2 1/2 year old that I am considering going gluten-free for as well. and i find looking for stuff like bread and just basics like that is a real pain. Especially...
  7. MammaW
    Help!
  8. MammaW
    Thanks! I am a chocolate chip girl myself...so I will make sure to read closely!
  9. MammaW
    I am also very new the gluten-free diet....ice cream has gluten???? i have none in the house at the moment to check out the ingredients, but is it listed as something obvious or one of those hidden ones?
  10. MammaW
    Southern Vermont about an hour and a half from Albany....(Not me...at least I don't think so...my almost 1 year old)
  11. MammaW
    I would be VERY INTERESTED in your baking choices in terms of the rice allergy. That has been a tough combo for us. I have not tried the sorghum?? But wow alot of gluten free alternatives contain rice. Any favorites for you? I have a picky almost one year old and a two year old! Also, does anyone have a favorite "Banned food list"? I am really still...
  12. MammaW
    Update: So of course our bloodwork came back negative...I never really had high hopes for that confirmation though. soooooooooooo I am going to continue to keep my little man gluten-free for now and see what happens. still considering the enterolab option, but not sure - maybe if i see no improvement after being gluten-free for a while i'll go more that...
  13. MammaW
    My almost 12 month old was diagnosed with peanut and rice allergy (rice allergy of all things!) who the heck ever heard of a rice allergy anyway! He was diagnosed at about 5 months. We have been gluten-free for 5 days now- yeeeeha! Most gluten-free food is full of rice. I pull my hair out daily. His rice allergy so far has been just vomitting, but...
  14. MammaW
    My 11 month old had a horrendous rash starting about 5 months. (he also has periodic fevers that cannot be explained) First it looked like an amoxicillin allergy, determined it wasn't...kept coming....at one point his poor body looked like someone dipped him in hot water and then painted dots all over him. Saw allergiest and rheumatologist and they tested...
  15. MammaW
    I have to get in on this poop discussion. My oldest son is now 2 1/2 and poops at least 3-4 times each day. Always mushy and foul smelling. He has never had any other symptoms, but the potty training thing is really becoming impossible. My youngest 11 months is the one I am suspecting celiac in and we have been gluten free for three days....to my knowledge...
  16. MammaW
    What great timing to read your story! I started my son on a gluten free yesterday (11 month old) He too has not really ever slept through the night due to what I am guessing is gas/belly pain. No help from doctors in terms of celiac suggestions, but my pediatrician has been very open to any testing or referrals I have asked for. Still the gastroenterologist...
  17. MammaW
    I don't about the stomach cancer part, but I do know that the damage to the intestines can heal. I am not even sure that there is any specific damage to the stomach itself, I have only read about the damage to the intestines-never the stomach though. I know that certain cancers do run in families, so I would just make sure that your gastroenterologist knows...
  18. MammaW
    Ok....so today is our "quit date". As of today, we will be gluten free. I made pancakes for breakfast....(Bob's Red Mill) brand....not great, but not horrible either. I have some shopping to do! Ill keep you all posted. I have read everyone's replies and I am thrilled to have you all in my corner and can't thank you all enough. Stay tuned!
  19. MammaW
    I was wondering about that....the endoscopy thing. What is the thinking on scoping a little person like that? If the results are negative, does that mean you are "out of the woods" in terms of celiac as a diagnoses? So you might be able to introduce gluten at a later time in his life if you wanted to without worrying about intestinal damage? I think they...
  20. MammaW
    wow, fingers crossed for sure. how old is your little one?
  21. MammaW
    It is so great to have this forum as a resource....This is such a complicated topic! I have a 2 year old as well so this gluten free house won't be easy, but I am going to make an attempt. I am just hoping that if I don't see improvement, it will be because it is NOT a gluten issue and not because it IS a gluten issue and I am just not knowledgeable enough...
  22. MammaW
    I am in the middle of having my 11 month old tested and feeling overwhelmed....I was thinking that if it were ME....which I may ask to be tested myself given my long history of stomach issues- if it were positive, I would have a horrible time following a gluten free diet.... I just love my wheat and pasta. Lots of good gluten free stuff out there too I am...
  23. MammaW
    Wow, intense stuff. I would love an answer, so I am going with the diet business, but it sure is overwhelming! Thanks for your input! MammaW
  24. MammaW
    Hi there- some of you may have already come across what I am writing below as i have replied to a few postings with this same story, but I am writing this as it's "own topic" - if you will- to hopefully pick your brains: My 11 month old has been having sleep issues since he was 8 wks old. He started with his first ear infection at 6 wks old, up all night...
  25. MammaW
    I have an 11 month old who has been through so much this year....I have another posting with all the horrible details-but with regard to the b12.....i have always been very defficient, in fact my levels are often down in the low 100s which is pretty bad. I never gave it a thought, but with all my little guys issues it occurred to me to have him tested and...
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