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Edited to add....I shouldn't have said Anemic but I can't edit the post topic . I haven't been told I am Anemic...just have low iron. Hi, It's been so long since I've visited here. Life's been busy. I have been gluten free since last December. I had my biopsy and bloodtest and both negative for celiac. I'm not concerned about that because I do...

The dietitian sent me a message after reading up on EE that she doesn't think that my daughter will be safe eating in the cafeteria at the present time. I suspected it but it's hard. Only thing available as far as apartments on campus is a room available in a 3 or 4 bedroom apartment with upper classmen. Even that I would think would be difficult because...

Thanks. Yep....I'm not sure she'll be safe eating in the cafeteria. She just won't have that many options. I hope the dietitian can work with her this week and come up with a plan. Otherwise...we'll have to push for some changes. I stopped at the grocery store with her before dropping her off. Anything gluten free either had soy or sunflower oil...I...

Thanks for the replies. I did see that there is a proven link to celiac disease. One thing...being positive to wheat, barley and rye on the allergy testing at least solidifies the fact she needs to stay away from those. I hadn't thought about a 504...I will have to look into that. I had a great talk with the college dietitian today. They are working...

She had her biopsy last month and it was negative. However she was diagnosed with eosiniphilic esophagitus. I went ahead and had her get allergy testing yesterday and she was positive to wheat, barley and rye...along with peanuts, hazelnuts, cashews, corn, soy, sunflower and a few others. So since she knows "gluten" has bothered her she will be staying...

I hope she remains gluten free. How old is she? My husband gave up gluten just over 2 yrs ago. It took 5-6 months for the diarrhea to disappear but he was feeling so much better almost immediately despite the D while his intestines healed. He too had episodes of passing out and worried it would happen while out of the house. The passing out from intestine...

So sorry you are dealing with crappy doctors. I am sure I am now labeled the WACKADOO in our peds' office as well as the whole clinic in our city as I was refused a second opinion within the clinic even though it would have been another office across town. The GI dr within the same clinic denied us as well saying he wouldn't take her because she's 17...

I guess I knew we'd still do the gluten free house no matter what. I know each of us feels better gluten free so we'll just move on. My 12 yr old's esophagus was slightly irritated...but I don't think the nurse mentioned the dr wanting to do anything for that. My 10 yr old looked clear but because he has so many stomach complaints the dr prescribed an...

Was he just having a routine blood test then? Interesting they did an IGA for that. Is he being seen for other nonGI issues? My son who tested positive on blood work was not having any GI issues. His complaint was muscle pain..which resolved on a gluten free diet and came back stronger when reintroducing gluten for the biopsy. His pediatrician didn't...

I am very interested to know what symptoms he was having that the dr's chose to do a celiac panel. Most doctors don't just test for celiac unless there are symptoms or if another family member has it. Kudos to your doctor for doing the test and possibly getting your son healthy before too much damage is done. Best of luck next week with the GI. ...

Do you know if the gliadin IgG and IgA were the deamidated gliadin test? If it were then that's more specific and indicative of celiac. My son was high positive on the deamidated gliadin IgG and everything else was negative. So he was considered "weak positive." He had his endoscopy on friday and we are still awaiting the results. From everything I've...

Ravenwood, I considered that because with her dad the first thing to improve going gluten free was his severe indigestion. The only challenge she faces is eating in her college cafeteria. If her biopsy does not confirm celiac the college won't have too provide to much in the way of helping her with her gluten free diet. It'll make me nervous sending...

That's what it appears...by doing some reading throughout the last couple of years I have seen a lot of people talk about it on the forum. Must be. Anxious for the tests to all come back. Grrr...Nexium was not covered by our insurance. Have to wait for the pharmacy to call the dr tomorrow and see if there is an equivalent replacement.

She is 19 but the celiac specialist pediatric gi dr my boys see said he would do her endoscopy as well. So it was done this afternoon. We have to wait a week for the results of the biopsies. However, he saw "extensive irritation to her esophagus" and she has a hiatal hernia. He said the esophagus irritation is often seen in someone with food allergies...

Thanks. Good to know. No fever or anything else so I think I'll just keep an eye on it. Sounds like you had a similar experience. Yes...he said it's a different kind of pain...never had it before. Merry Christmas to you too!