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Mama Ruthies

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  1. I would say that Celiac is a definite possibility. Here are some of the things that our son had--- the biggest, speech delays (which we have seen a specialist at Vanderbilt for and he told us our son's delays are because of celiac---how I wish I would have known sooner) problems sleeping (would wake overnight in discomfort and was up for some time...
  2. We got their ice cream (heavenly!!) which states vanilla---want to make sure it's gluten free. I do have a call into them. Also got their organic salsa and some of their spices. We really don't want to take any chances with our son. I am thrilled to find another source for gluten free things (and organic items). Unfortunately, the closest Costco...
  3. We have picked up some things from Costco and are thrilled to find Lundberg rice and numerous other organic items there. Are any of you familiar as to the gluten status of Costco's Kirkland brand? I did call their customer service number and was told that they don't have gluten in products unless listed but I'm not so sure how much the guy I spoke with...
  4. From our experience with our 5 year old son, I can tell you definitely that gluten can cause speech delays. We just got back from our second visit with a leading doctor in the country for kids with speech delays (who told us the first time we met that our son presents just as other kids he has seen with delays from celiac). We have seen what happens...
  5. Hi Tracy, Our son (a little over 5 and gluten free for almost 2 years) also has speech delays which we now know were caused by gluten. We noticed that first month or so was hard (our allergist also had him off milk, egg, yeast and soy) and our son had loved bread, bagels, yogurt, etc. ---all stuff he all of a sudden couldn't have. His speech really...
  6. Hi Kim, Your daughter sounds so much like our son but we didn't realize he was being affected until much later. He also had rashes, night waking, 4-5 bad diapers a day (not extremely runny), and the biggie for him, speech regression and delays. We found out through Enterolab when he was not quite 3 1/2 that he had DQ8 and DQ7 and he tested high for everything...
  7. We use a product called Cal Mag Fizz. It is a powder you put into water and it fizzes (thus the name )
  8. Our 5 year old son reacts to gluten by first having BM issues, then a regression in speech (he already has speech delays), and the last time he got some gluten, he stopped feeding himself (fine motor). He did start feeding himself again after about a month. His speech is usually affected for two months which is very disheartening. What do you do to help...
  9. Sorry you are having to deal with this. You could get the blood test but as others have said, it has a higher false reading for young kids. You could get the bioposy, but just so you know, adults intestinal tract when all laid out is as big as a tennis court. A child's would be smaller---my point is you could still miss a spot that shows problems....
  10. Some great ideas on here---I need to be much more aware of possible cross contamination when we are out and about. Our 4 year old reacts to gluten by having bathroom issues for a short time and then a regression in his speech. He already has significant speech delays so it is very disheartening when he does get glutened. We realized he got something...
  11. Hi Aleshia, Quick background on our 4.5 year old--- His speech started to regress soon after our 2 year old was born, to the point all he said was baby and bye-bye. We had him in Birth to 3 and then decided at 3.5 to put him in the school's speech therapy. We didn't want them to diagnose, just offer services. They tossed around all kinds of labels. ...
  12. Our son (now 4.5) has been gluten free for 14 months. He definitely has learning issues from gluten. He has delays in his speech, and we saw one of the experts in the country for late talking kids and was told that our son's delays are typical for what this doctor sees with kids with celiac. Our son has improved a lot, but we did have an incident this summer...
  13. The gene is DQ7. Our son didn't say his first sentence until he was about 3.5. He was saying "I" statements (I go to potty, I go in the car) before he got the "gluten" pizza, but still isn't saying those yet. His longest sentence had been "Mom get the stroller and I get in the stroller" after a long day at the zoo. He hasn't said anything close to that...
  14. I haven't read all the responses but want to say that Enterolab was an answer to our prayers for our then 3 year old son. I firmly believe in their results and no one can contest their gene testing. Our son had speech delays and bad allergies. We had him tested at the allergist, and he came back positive to all 20 items. This set off a red flag to me....
  15. Our 4 year old son also has speech delays which we know are related to gluten. He's been off gluten since Nov. and his speech started to really make strides in April. In July, he got a piece of "gluten pizza" and he regressed in speech, pronounciation was bad, and initiation slowed way down. He is finally (after over 9 weeks) starting to get back to where...
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