UCDSurvivor
-
Posts
14 -
Joined
-
Last visited
Recent Profile Visitors
4,134 profile views
UCDSurvivor's Achievements
-
I just read some of the responses two years later. One from Mymississipi: The Atkins diet ,done correctly, is not a HIGH protein diet---- it is a LOW carb diet. The emphasis is on the LOW carbs--- not the protein. It has been proven -- it is a fact --- that the American diet ( very HIGH in carbs ) is what is making people obese, and contributing in a big...
-
Hello,
I found your old posts on a celiac disease forum,.I was wondering if you went to a GI doctor or to a geneticist for the first ucd tests. My GI doctor sent me to the blood tests you mentioned, but I am not sure if I should fast or not. My doctor doesn't know, either, but she feels we need some proof of ucd before visiting a geneticist. Do you have any suggestion?
Thank yo...
-
Thanks love. I will look at compiling all the stuff more succinctly. The research university I am a patient with just contacted me that they may be making a short educational video that includes my saga --to help others with chronic problems have hope and not give up---the answer is out there. I just had to wait until the medical tests and knowledge believed...
-
Say hey, You hit it on the head. I mostly eat plant based proteins. Why? I can eat more food for the bang. Like a half a cup a beans with a half a cup a rice for a meal. Going gluten free and low protein basically turns me in to a vegetarian. However I celebrate some meals with rice or corn noodles, and gluten free corn bread (entire family loves...
-
I appreciate the fact you say low carbs. Given that you eat x percent protein, fat, and carbs. The diet does cut the carbs but does increase the amount of protein in a given day. I have the books and the diet plan. My quote of people being sick is from the hospital -- not me -- Except the diet almost killed me. Going to pure protein was a death sentence...
-
Does the same feeling happen with you large quanties of other types of protein -- steaks, meat dishes, protein shakes?
-
ARCHIVED Digestion Of Protein --may Be Bigger Deal Than Gluten
UCDSurvivor replied to UCDSurvivor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My reactions to versed remind me of a short story called the Yellow Wall paper. I would vasilate from total calm to total paranoia. Of course it did not help that my job was to interact with federal officers from the US Treasury. I would be smiling one minute, crying the next, and combative and angry the next. It took 3 weeks to go out of my system. ... -
ARCHIVED Digestion Of Protein --may Be Bigger Deal Than Gluten
UCDSurvivor replied to UCDSurvivor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I will obtain and post the challenge tests for you. They vary for the different disorders. But will provide for the most common OTC. Also will obtain genetic info for you. However, the most important part is doing the liver biopsy so that they know which enzyme you are missing -- that way they know what treatment and amino acid supplements you must have... -
ARCHIVED Gastroparesis, Anything That Might Help?
UCDSurvivor replied to ravenwoodglass's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey UCD here. I am still trying to catch lingo. Who is a DS? I know I have fought intermitant gastroparesis over the years. It was like my whole system would stop. If diet is heavy in dairy -- how much protein is he eating a day? What is body size and weight. Does he like cherry juice (better than prune juice)? Drinking some through out day may... -
ARCHIVED Digestion Of Protein --may Be Bigger Deal Than Gluten
UCDSurvivor posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As I stated in the previous note regarding my disorder. My problem is broader than just gluten. I found out that my body cannot assimilate protein very well at all. Here is a quote from Harvard Health Letter and then following are a list of all the symptoms and disorders/diseases associated with the problem of not assimilating protein properly. These... -
Yes the most severe die, as I referred to my 39 year old friend --she is in very bad shape. Most boys die at birth or by age 5.Females may present any time in their life with mild to severe symptoms. My liver's Urea Cycle only works 5% of the time. To live it should be around 20-25%. I should be worse but between the grace of God and fates as well as...
-
Ravenwood, I see where you say misdiagnosed... really all of those are just symptoms of a root problem. Basically I had all that and more. I will find total list of what proteins can do and post. I have not studied carbs and fats as much. I do have some correspondent friends since diagnosed that I talk to. Until the past five or six years doctors...
-
ARCHIVED Rat Poison Verses Gluten
UCDSurvivor replied to neesee's topic in Coping with Celiac Disease
Neesee, UCDSurvivor here. I went pretty far down before I found out how bad gluten and protein are. And because I found out I do not metabolize protein because my liver fails to make a certain amino acid -- gluten and more basic protein is a poison to me. But guess what -- the darn little buggers affect my personality too. I don't know about the rest... -
ARCHIVED Making Sense Of My Symptoms!
UCDSurvivor replied to strikerjax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just some suggestions as I made my trek for my diagnosis. My problem is more complicated that just gluten. I cannot assimilate any and all protein correctly -- including gluten. This is a urea cycle disorder. As part of this I also have problems with sugars, molds, yeasts and such. Some of your food list indicates that may be an issue. The lemon... -
Please Note: I meant to say MYCeliac Intolerance etc. is part of UCD. Is not the same for everyone. I have had all the symptoms related to celiac disease/intolerant since I was a baby. Gastro, Neurological, ...you name it, I have had it or have it. Endometriosis -- 8 miscarriages, throwing up after eating -- doctors telling mom it was food allergies...