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Kit

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    maebven

Profile Information

  • Interests
    fine art, guitar, indie music, literary fiction, photography, blues singer
  • Location
    St. Louis, MO

Kit's Achievements

  1. I hope by now you are feeling better...Is your TSH at .04...or does it say <.04? <.04 means it is less than .04 which is the least your particular lab can detect. That means your TSH is unmeasurable. What are your lab ranges and free T3 and free T4...do you know? Do you have reverse T3 numbers? Hyperthyroidism is extremely dangerous. Before the...
  2. Happy birthday and may God bless you today!

  3. One way of getting a group going is call your community outreach people at your nearest or biggest local hospital. They'll often post support group meetings in their mail-outs and online, and may be able to get you a room in which to meet. Be sure to notifiy all the GIs in your area of your support group, giving them hand-outs, as needed. As far as...
  4. Kit

    ARCHIVED H.pylori

    Yes, this weird stuff with misunderstanding hunger cues is a really big one for me when my stomach is queasy or upset. At first, food helps, then I feel like crap again. I had the H. pylori test and treatment (the antibiotics are horrible), and did feel a lot better, but couldn't stand the meds to complete the 21 day trial. Most ulcers are caused by H. pylori...
  5. corn is gluten-free, but it one of those things we may have become allergic to because of our impaired digestion. Kit in St. Louis
  6. I am so sorry for all the pain and discomfort your child is experiencing. It has to be the worst feeling in the world to be helpless against your son's illness, especially if the source isn't identified. Yes, all these problems can be caused by celiac disease. I would, however, get a full thyroid panel done on him. thyroid disease and celiac disease go...
  7. Hi David, Sorry about the trouble with the kid's doc. I'm pretty sure that testing guidelines, which your doctor should be privy to, recommend that all first-degree relatives of celiac get sera-tests for celiac disease. I think once every six months for two years is what is recommended. What's this doc's problem??? If he/she isn't familiar with the tests...
  8. I was diagnosed by Dr. Dandalides in Chesapeake. Their office is near Chesapeake General Hospital in Great Bridge. I would recommend Dr. Malik, though, in that practice, and Tricia Elya, the PA, who is VERY knowledgeable and attended the celiac NIH conference in 2004. Dr. Dandalides pretty much did the test and told me to "go to the internet." He was...
  9. Susie Essman from "Curb Your Enthusiasm" was diagnosed with celiac disease a few years ago...around, say 2003? She plays Jeff's wife. Jeff is Larry's manager.
  10. Dear Gentleheart, I've been wrestling with that question myself, of late. I am guessing the problem with, say, cocoa powder is that it's irritating to the digestive tract. I am on the SCD too, but not for Crohn's or IBS. I just have some very uncomfortable bloating when I eat starch or polysaccarides. Since I don't have diarrhea or other digestive...
  11. Kit

    ARCHIVED Still Having Stomach Bloating

    If you were on a gluten-free diet when you got your blood test, you can't be diagnosed properly. The test measures antibodies in your blood. Celiacs only make antibodies in response to gluten. If you want a proper diagnosis, you have to do a gluten challenge. I can't believe your doc tested you although you have been gluten free. It's a wasted test. You...
  12. Kit

    ARCHIVED Still Having Stomach Bloating

  13. At the NIH conference on celiac disease in Wash DC, I heard that a doctor's pessimism about the ability of a celiac patient is a highly reliable indicator of how well the patient will adhere to a gluten-free diet. First Do No Harm! I guess he forgot that part of the oath. Kit
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