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BallardWA

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by BallardWA

  1. Hello to each and every one of you who gave me so much comfort during this journey. I have found out that I was misdiagnosed with celiac disease, via a genetic test and a doctor (my 6th) with a messianic complex. After being gluten-free for nearly a year, I was still getting sick, and finally sought help from my 7th, and hopefully last doctor. She sat...
  2. Hi There, I'm getting ready to take a trip, too - and here's my plan. I am packing Glutino breakfast bars, Bumblebars, Lara Bars and Think Thin Chunky Peanut Butter Bars. If for any reason I feel I cannot dine with everyone else, I intend to eat one of these bars and a piece of fruit and only drink iced tea in the restaurant with my family. I don't eat...
  3. As my tag implies, I am indeed a Seattelite in Ballard, WA. Please, please, please contact me with any and all news re: gluten free in this town. The Flying Apron is an abomination in my opinion. Impromptu is wonderful but pricey. PF Changs - good but not for more than once a month. I recently was in Portland and was amazed at the choices available....
  4. My personal favorites are "Just eat around it" or "C'mon, a little won't hurt!"
  5. We had our first block party last night, and the woman who organized it was an absolute control freak who could not understand why we were setting up our own grill and table of food down the block away from everyone. I tried to explain to her that it was just better for the reason you all know - cross contamination. I told her that no matter how closely...
  6. I always get the Glutino bagels if they have them and throw them in the freezer. I eat maybe one a week, when the rest of the family is having something yummy, and I don't feel deprived. Also look for the Glutino individual pizzas. They can really save the day!
  7. Just my two cents but both my naturopath and acupuncturist truly believe that the "lazy" diagnosis of IBS is having its swan song. Awareness is rising and every time I reveal my health challenges to someone I don't know, they always know someone else with the same condition. We all need to share and 'gently' demand recognition. Keep talking this up, soon...
  8. Oh Hon, I'm so sorry you've been hit so hard. The only thing that gets me through those times is that I know it will pass eventually. One time, I soiled my underwear because we only have on bathroom in the house and my 12 year old son was in there. I am not the type of person to pound on the door and demand access, so I waited and lost it. The feelings...
  9. Hi Carin, and welcome. I'm sure there will be many more experienced replies to your post, as I am newly diagnosed. It generally takes me 12-24 hours to experience a reaction to gluten. Yes, it could have been your cookie sheets - I now line mine with foil. If I have a major glutening, like say from a clueless restaurant, it can take me 7-10 days to recover...
  10. [ballardWA - do you live in Ballard? I live in Bellingham Bully - Yes, I live in Ballard in Seattle. My sister-in-law lives in B-ham.
  11. Any suggestions or even some guidance from a fellow vegetarian would be greatly appreciated Welcome! There is a website that deals specifically with celiac vegs called vegiac.com. There is a wealth of information there, as well as support for your choice to not eat meat regardless of your diagnosis. Seeing a naturopathic nutritionist helped me tremendously...
  12. Now if I could only find gluten free flour tortillas! Hey MindyK, I use rice flour tortillas all the time! Trader Joe's makes them, as does a company called Food for Life, which I have found in health food stores. Enjoy! Karen
  13. Hi All, I just found Amy's new Indian style frozen meals, but am reluctant to purchase. The label says "no gluten ingredients". This is not the same as gluten-free, no? I've read other things here about celiacs being glutened by her pizza, so I'm wondering if this brand should just be avoided because the labeling is not really truthful. Anybody have...
  14. Maybe I should found the first gluten-free island-based republic ...
  15. Hi Sarah, Having just recovered from an inadvertant glutening, I can tell you that I feel for you. I have been off gluten for 4+ months, and still manage to have unexplained episodes. Drink lots of water, and ride it out. I'm finding that as I am able to identify the symptoms of a glutening earlier, I am more mentally prepared for what follows. Pepto...
  16. Sorry you are still getting sick. The same thing happened to me, I'd done everything to quarantine my utensils, condiments, water bottles, and I was still getting sick. Check your shampoos and cosmetics. Both of my shampoos contained wheat protein! Lipsticks have gluten, too. Clinique (and I'm sure others) provide a list of gluten free products if asked...
  17. Hello All, I am still really confused about the bleu cheeses, and after a conversation with the cheese monger at Whole Foods, I am more so. He said that any cheese that uses the Penicillum mold should not be eaten by celiacs (thank you Dr. Cheese Monger). It was my understanding that these cheeses were once made with the mold that had been cultivated on...
  18. It's all in the planning. Do your research ahead of time of all of the "convenient" food sources in your area. You'll have more options when the situation for an unplanned meal arises. Nothing is worth getting sick, IMO.
  19. Hello All- Does anyone find that Prilosec hurts more than it helps? My doc thinks I should stay on it until I am feeling completely well, but she is very pro-drug. I ran out of the drug and was off of it for 2 days and felt amazingly better. I started it again, and my stomach cramps returned. She has got me so cowed (sp?) that I don't want to address...
  20. [ Marlene's Market in Federal Way on Monday February 18 at 7:00 Thanks Colleen, It is a bit far for a Monday night in possibly bad weather. Is there anywhere I can keep an eye on your group's gatherings, and maybe pick one in the Spring? K.
  21. I just want to thank each and every person that shares their knowledge and personal experiences on these boards. I always find comfort here. This is such a lonely thing, and I honestly don't know how I am going to manage this for the rest of my life. I posted here last week that all of my tests came back negative, but that my NP said that it didn't mean...
  22. I heard from my doctor on Friday, and have found out that all my tests (celiac, gliaden, allergy) have come back negative, BUT - he says- that does not mean that I am not allergic to wheat! Great. Now what? I have been gluten free for 8 weeks, and with a few setbacks, have to say that my symptoms (serious stomach pain, acid reflux) have pretty much cleared...
  23. Hi there, I am newly diagnosed gluten intolerant, but have been on a gluten free diet for about 6 weeks while waiting for all the test results. I experienced a rapid recovery from my main symptom - stomach pain/spasms, until about 5 days ago. I am in a total relapse with all the anxiety, exhaustion and pain that goes with it. I am vigilant in my avoidance...
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