luciasmom

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Thanks so much for taking the time to respond....and for your kind words.

I just spoke with the doctors' nurse and they rescheduled my daughters appointment to 2 months from now, so that she has these 2 whole months to eat food with gluten before we have her tested. She's only 2 years old..i don't think i can do this..has anyone gone thru this with a young child?? Isn't just one month though?

Help!

My 2yr old daughter (Lucia) who i highly suspect has celiac disease has an appt with a Dr (in the US) in a few weeks. I've had her on a gluten -free diet for a few months now and her symptoms have gone away. I'm expecting my 2nd baby this summer and would like to start Lucia in school. We live in a relatively small town in Mexico and celiac disease is totally unheard of, plus i don't know why but the people i've told about it just don't seem to take it too seriously...so all this makes me scared of putting Lucia in school because even though i can control the food she takes to school i can't control if she has a bite of someone else's cookie, bread, etc..

I know i can go talk to the teachers and all but i don't think they would really take care of my daughter on such a personalized level.

So what i have decided is to have her tested and see if in fact she has celiac disease and get all the doubts out of my mind once and for all. And if it turns out she does have it then we will have to accept the diagnosis and proceed with the gluten-free lifestyle we've been trying to adopt. (BTW nobody in my family or my husbands family has celiac disease as far as we know). But if not, maybe it's something else we can approach differently.

The rush to do all this is because i want to KNOW before our second baby is born and before i start thinking on school options, etc.

What is making me scared and nervous is the thought of having her on gluten filled foods for 4 weeks, and the consequences that will have on her body. But also not knowing if to proceed with a biopsy after the blood results come out.

The doctors nurse said today that if the blood results turn out positive then we wouldn't have to do the biopsy because that was proof enough of celiac disease(unless the parents wanted further confirmation), but i read on Dr. Green's book that the biopsy is the gold standard for diagnosing celiac disease. So i'm confused!!

My thoughts are that since we're basically going to make her sick for a whole month and then travel far away for the doctors' appt then we should just go ahead with the biopsy. Of course the biopsy also makes me extra nervous!!

I would appreciate your thoughts on this! Thanks!

Lucy

Sorry i made it sooooo long but english is not my first language and i have a little bit of trouble expressing myself.

Thanks! I spoke with the doctors' nurse today and she said that my daughter should be eating gluten for at least 4 to 6 weeks prior to her appointment, so i guess i have to start soon because her appt is on June 5th. The news hit hard because she's so little (only 2) and her symptoms are very intense. But i guess i have to go thru with it all if i really want to be sure she has celiac disease or not.

She also said that if the blood tests came out positive then we wouldn't have to do the Endoscopy, which only confused me because i thougth the Endoscopy was "the gold standard in diagnosing celiac disease". Am i wrong?

I guess i'm going to call her back and ask her again.

Thanks again!

Lucy

My 2 yr old daughter who we suspect has celiac disease has been gluten free for a few months now. We've never had constipation problems before, but since going on a trip two weeks ago to Disney she's been really constipated even though i'm giving her a lot of fruits and fiber. Instead of going once or twice a day (like she used to before our trip) she now goes every 4 days...Does this sound familiar to anyone? Help!

Does anybody know if Dr. Suzanne Lewis see Children? She sounds like a good option for my daughter..

Thanks

Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!