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Dr. Amy De Felice


luciasmom

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luciasmom Rookie

Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!


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gfgypsyqueen Enthusiast

I don't know about your Dr. But many of us have hit or miss experiences with doctors in general. To help make your appt a better experience research Celiacs. Have a list of questions. Bring all of your info with you about what is wrong with your child and why you suspect Celiacs. Food & symptom log. Then be open to the Dr ruling out other diseases. I would ask for a gene test in addition to the Celiac blood work.

ENF Enthusiast
Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

I have been to the Columbia Celiac Center in New York, to see Dr. Lee, and the resident Celiac nutritionist. I also had all blood tests and an endoscope at the facility - my second time for Celiac, but the first time at Columbia. There was an improvement in my blood tests, but still some damage in to the villi. It is not unusual for adults to heal slower. I had the bone density scans done there as well.

I know that you have been looking for a doctor for your daughter, and I thought I read in another post that she has been gluten free for a few months. This could cause the tests to be negative. If she's already been diagnosed by blood test and/or endoscopy before going gluten free, and tested positive, then you can see if she has improved - but if this is the first time being tested she must consume gluten for a specified time beforehand in order to insure an accurate diagnosis. Children tend to heal fast, which could cause a false negative.

Just thought I'd let you know, in case you were not aware of it.

luciasmom Rookie

Thanks! I spoke with the doctors' nurse today and she said that my daughter should be eating gluten for at least 4 to 6 weeks prior to her appointment, so i guess i have to start soon because her appt is on June 5th. The news hit hard because she's so little (only 2) and her symptoms are very intense. But i guess i have to go thru with it all if i really want to be sure she has celiac disease or not.

She also said that if the blood tests came out positive then we wouldn't have to do the Endoscopy, which only confused me because i thougth the Endoscopy was "the gold standard in diagnosing celiac disease". Am i wrong?

I guess i'm going to call her back and ask her again.

Thanks again!

Lucy

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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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