Breila

I feel a little silly posting this, because I should be old hat at the gluten-free thing by now, but I could use and will take any advice anyone can throw my way. Just over two years ago, my middle son was diagnosed with celiac at the age of 7. It was hard for him to make the transition, but he had been sick for so long and he had a good understanding...

I remember reading somewhere (I think it was an EMT's blog) about a woman they picked up in the ambulance who KNEW she had a peanut allergy, but thought smooth peanut butter was okay. Geesh. I half jokingly told my son the other day that I was just going to start telling restaurant people that he had a bread and pasta allergy so they'll stop offering...

Thanks Kibbie. I've been in contact with the school for the last week and they have been great about working with me. We are putting an IHP (Individualized Health Plan) in place that will hold with any public school (including universities) within the state. It isn't as all encompassing as the 504, and they did give me the option of a 504, but the school...

I've read most of the ADA, and with the exception of situations that it does NOT cover, I don't recall the act mentioning ANY specific disability. A disability is defined as such: Everything I have read indicates that eating is a major life activity, and I would tend to agree, and the general consensus from what I've seen is that celiac is covered...

It's under My Controls. There you can view topics or threads you have subscribed to. HTH.

I honestly have no idea, we have a traditional diagnosis, if you will, so I haven't given it thought. I would imagine that if your ped. was on board with the diagnosis, that should be enough. Though, if it has been diagnosed as an intolerance vs. celiac, that may make a difference in what you are entitled to, ie. under the ADA.

Thanks Kibbie. I guess I'm just so pleased that the school and the teachers have been so accommodating so far that I don't want to put them on the defensive. Can you tell I'm just so NOT a confrontational person? LOL. I know I need to work on that. OTOH, the principal at our school is just amazing, I can't imagine that he would take offense, shrug. Some...

We go TorT as always, then check the candy against a gluten-free list when we get home. I've found that he can usually keep most of it, and what he can't keep, his older brother is usually willing to trade for, so it all works out.

We do most of our grocery shopping at TJs now, and save money in the process. I find that though my selection is a bit limited there, I can certainly get a week's worth of food within my budget, and it's better quality food than when I try to do that at the regular grocery store. My favorites in the gluten-free category are polenta (we LOVE polenta lasagna...

I tried to search, but "504" is too short a word, LOL. I'm trying to determine what the benefit to my son would be of seeking a 504 with the school. As it stands right now, his teacher's have all been very accommodating and willing to work with us, and I'm providing all of his food. I do know that that I technically have the right to request appropriate...

Before DS was diagnosed, he would eat a meal and 15-30 minutes later start complaining that he was hungry. Once we got the celiac diagnosis, we figured that he had been misinterpreting a gurgly upset stomach for "hungry" this whole time and sure enough, once we went gluten-free, the constant "I'm hungry" stopped. Now it has started up again. We haven...

Margaret, We met recently at the local Celiac meeting, nice to see you here. I have a 7 yo son too. It is really hard to feel left out, so far we've been really lucky that there has only been one birthday party where pizza was served and he had to bow out. Every other event I've managed to provide a gluten-free version of what was being served...

My son is diagnosed celiac, and since we know it came from somewhere genetically, we did determine to have the entire family tested via blood test. However, our insurance sucks and we're just plain out of $ right now, so the genetic testing and anything further than that simply can't be done. Since I've lived a lifetime with mild "sensitive stomach" issues...

From what I have been told, there is one dietitian in this part of the state that "specializes" in celiac disease, and she works for the Ped. GI's at Duke. I don't know if she's available for private consultation though. Lizard, I'm glad you've found a good GI. I'm still debating on what to do about myself, I'm very torn right now.

After having been at home with my kids for 10 years, it's time to consider a career. I thought I was set with what I wanted to do, but I'm finding myself increasingly drawn to food science even though science in general is scary to me, LOL. Anyway, I thought it would be worth asking around here. If anyone does do this as a career, I'd love to have a...