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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    ^^ What they said Who would spend $400 on a test 'just because'? Not me. Unless you have that kind of money, of course Clearly, those who go through Enterolab have a sneaking suspicion that is what is making them sick. I was one of those people. I was confident even before using Enterolab that I had a problem with gluten because I started the...
  2. leadmeastray88
    If you read the Enterolab FAQ's on their site, it will say something like, it doesn't matter what your numbers are, if you're positive then you're positive. A higher number does not necessarily mean more damage, and a lower number (but still positive) does not necessarily mean less damage. Its like being pregnant, you either are or you're not. I scored...
  3. leadmeastray88

    Happy birthday and may God bless you today!

  4. leadmeastray88
    Thanks Bea, I think I'll stop eating it from now on!
  5. leadmeastray88
    Hey Jillian! This particular Sobeys was the one on Taylor Ave., though the one on Dakota also has a gluten-free section. That's too bad that yours doesn't! It's very convenient, may be worth the trip. I absolutely love the Gorilla Munch by Envirokidz People at work make fun of me all the time for eating "5-year olds cereal" lol! I've had the...
  6. leadmeastray88
    This has happened to me so many times Even just last night my boyfriend and I went out for supper and he had a chicken club sandwich...and I made him use mouthwash before I'd kiss him goodnight It's just a habit that you have to get into! And if he's worth it he won't mind
  7. leadmeastray88
    So I was grocery shopping at Sobey's a few days ago and passed through their gluten free section... I was so excited to see oatmeal there - Glutenfreeda's Maple Raisin with Flax oatmeal. This was the first time I've tried oats since going gluten-free a year ago. I've had it every morning for the past couple days for breakfast...and I've been noticing that...
  8. leadmeastray88
    Going gluten free for any period of time is not a good idea when you're planning on getting a biopsy. The biopsy is valuable for many reasons, the most important being determining how much damage you may have, as well as ruling out any other conditions. Then if you have a negative biopsy, you may always wonder "what if I hadn't gone gluten free", and be...
  9. leadmeastray88
    I have never had a problem with fresh, store-bought raw meat before. Cold cuts, on the other hand, is a totally different story. I know Freybe's and Grimm's packaged meats are gluten free - it says right on the label. Those are the only ones I buy.
  10. leadmeastray88
    Unfortunately, there isn't a concrete answer to that question. Personally, I am self-diagnosed gluten intolerant and have significant physical health improvements to prove it. I haven't been able to find a consistent doctor who will take me seriously, so I pursued it myself and have never looked back. Any doctor I see has no problem making sure the medication...
  11. leadmeastray88
    Before I went gluten-free, my B12 level was at 80. One doc told me I should be on shots, another that I should just be on sublingual supplements. I stuck with the supplements. After going gluten-free and supplementing for about 6 months, my B12 was up to 800. As for how I felt, I started both the diet and the supplements around the same time so I can...
  12. leadmeastray88
    Sure, it's possible! Reactions are different and vary in intensity and duration from person to person. If you ate gluten for every meal for 2 straight days, then I'd say that's a reasonable amount of time to be sick. If you feel better gluten free, then why not just stick to it? You have nothing to lose but your nausea, and you don't need a doctor's...
  13. leadmeastray88
    At this point, I would wait and see what the biopsy says. The doctor can't always tell if you have Celiac until they look at the slides from the samples. I'm not sure if 4 weeks was long enough to affect the intestine...I would think it depends on how much damage you had in the first place. But you're right - your doc should never have told you to go gluten...
  14. leadmeastray88
    In my opinion, a month-long gluten free diet is not long enough to be able to determine that it isn't an issue for you. I would suggest giving it another go, except for a good solid 3 months. You said you noticed mild improvement, that's still something! It took 2 months for all of my symptoms to start going away, about 6 for them to be completely gone...
  15. leadmeastray88
    This is incorrect - if you are diagnosed with DH, then you are also diagnosed with Celiac Disease. DH is the skin manifestation of Celiac Disease, that's why the "treatment" is the same: the life-long gluten free diet. With the removal of gluten, the DH should clear up as well as any digestive issues you have. Here is a link to more info on DH: https:...
  16. leadmeastray88
    To the best of my knowledge, a naturopath can conduct many kinds of blood tests for anything. I think the testing methods are more or less the same, just the treatment aspect is a natural, holistic approach. Many diagnosed people here have seen naturopaths who have discovered their Celiac Disease. In response to your question, an allergen blood test...
  17. leadmeastray88
    Sorry, I didn't really answer your original question Gene testing... Well, it could help. But your doctor theoretically can't use it to diagnose you. Primarily because the prominent genes associated with Celiac Disease are also the most common ones in the general population - and not every person with those genes have Celiac. The only thing gene...
  18. leadmeastray88
    Hi there, I'm not surprised that your results for Celiac were negative, because you were gluten free for a month already. Something you should know is that a wheat allergy and Celiac are not the same thing. You can have Celiac and not have a wheat allergy, if that makes any sense to you..allergies cause an IgE reaction, and Celiac causes IgA and...
  19. leadmeastray88
    Maltodextrin doesn't have malt in it: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html 8) Maltodextrin is prepared as a white powder or concentrated solution by partial hydrolysis of corn starch or potato starch with safe and suitable acids and enzymes. (1) Maltodextrin, when listed on food sold in the USA, must be (per FDA regulation)...
  20. leadmeastray88
    I'm from Canada and flavoring does not necessarily mean it has gluten in it. I always call to double check, and I have to say that 99% of the time, it's safe. No, labeling is not where it should be. That is not exclusive to Canada, however. At this time, it is the responsibility of the person consuming it to make sure it is safe.
  21. leadmeastray88
    I noticed that you didn't have a complete Celic panel done. These are the tests that should be included: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA The ones I bolded were the only ones you had done, and they are less specific for Celiac than the tTG and...
  22. leadmeastray88
    My Enterolab results were much like yours - only slightly elevated above the normal range. I asked Enterolab about this because I was concerned, and they told me you have to look at it as if it were a pregnancy test - you can't be a little bit pregnant, you either are or you aren't. So a positive result of any kind is still positive, no matter what the...
  23. leadmeastray88
    You're right - you have very high risk of having false negative bloodwork! Even people who eat a normal gluten diet can have false negatives though, you have to know. If you want to re-test you should eat gluten again for atleast a month and see what happens. Either way though, you feel better gluten free so even if the tests are negative go back...
  24. leadmeastray88
    I definitely had more C. Even as a child, I'd wake up with excrutiating stomach pains in the middle of the night and sit on the toilet for hours - I wouldn't go for days at a time. My mom told my pediatrician and he told her that I needed to eat more fibre. I know now why that didn't work Since going gluten-free I haven't had a problem anymore...
  25. leadmeastray88
    Hi Kim, I'm Kim too I definitely second what ravenwoodglass said...you NEED to keep eating gluten until you have all the testing complete by your GI doc, otherwise there's an even higher risk of having a false negative.
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