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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    Enterolab does it: www.enterolab.com as well as Kimball Genetics: Open Original Shared Link and I'm sure there's more. You should also know that genetic testing can't necessarily rule in/out Celiac...some people here have official diagnosis and they don't have the "right" genes. Alternatively, if you do have the "right" genes, it doesn't mean that...
  2. leadmeastray88
    Goodness, you've been through alot Hopefully, the diet will work for you too!
  3. leadmeastray88
    Hi and welcome Have you ever been tested for Celiac Disease? If you want to get tested, you have to be consuming gluten or else they won't be accurate. If you just decide to go gluten free that's okay, as long as you don't want testing. As for the diet, it could take a couple of weeks before you notice any significant change, but everyone's different...
  4. leadmeastray88
    I think that way. Even tough my tTG was considered to be negative (anything over 4 was positive), I was a 1. My thinking is that if I didn't react to gluten at all I shouldn't have ANY antibodies at all. To me, this says I have 25% of the antibodies needed before becoming "positive". ...But I'm no expert
  5. leadmeastray88
    Unfortunately there's no simple answer for that. Nobody can technically prove or disprove that Enterolab is accurate - we simply don't know. There hasn't been enough research done on the type of testing that Dr. Fine performs. Many people, including myself, have used Enterolab and are satisfied with the outcome. I found out that according to his...
  6. leadmeastray88
    Hi there! False positives are pretty rare when it comes to bloodwork. I think it's pretty telling that her doc noticed some inflammation. You'll have to wait and see how the pathologist reads the biopsy - remember that she's only 7. It wouldn't be surprising if she didn't have full-blown celiac disease yet, she's so young. Also, damage can be patchy...
  7. leadmeastray88
    Allergy testing is not the same thing..I'm no expert, but I know that even if your allergy test comes back normal you can still have an intolerance. The same is true for Celiac - it's not "gluten allergy", it's an autoimmune disease. Have you tried the diet yet? If you feel better on it then you have an answer!
  8. leadmeastray88
    Hi there, Yes reactions can be delayed.. perfect example is on Sunday I found out (after the fact) that I was glutened by my cousin who put onion soup mix on the roast that wasn't safe. I was waiting for a reaction and it didn't come. Now, this morning (Tuesday) I'm very nauseous and have brain fog something terrible! So the answer is yes, the reaction...
  9. leadmeastray88
    Since you are getting the capsule endoscopy you absolutely NEED to get back to eating gluten ASAP or you risk getting false negative results.
  10. leadmeastray88
    I second what Salax says. Besides that, you'll never know if your doc even biopsied a part of your intestine that was damaged..sometimes it's patchy, maybe he didn't take enough samples, etc. False positive bloodwork is rare, especially the tests you got. I would highly consider getting a second opinion, or just go gluten free - and take comfort...
  11. leadmeastray88
    Not necessarily, having the gene doesn't mean you have it or will get it, just that you may be predisposed to it. Coincidentally, the Celiac genes are also amongst the most common in general - yet not everyone has Celiac. You're correct, she has to be eating gluten for a very long time before testing. Has she shown any improvement from the diet this far...
  12. leadmeastray88
    To get tested you must be eating gluten or you'll risk getting a false negative. Until testing is done, eat like you normally would. Once all testing is done then you can start.
  13. leadmeastray88
    Oh don't feel bad! We were all there once!
  14. leadmeastray88
    You had positive bloodwork - which is rarely false (when positive) So whether your biopsy comes back negative or positive you should definitely go gluten free for atleast a month and see if your symptoms resolve. I had the exact same symptoms as you - and all resolved on the diet..
  15. leadmeastray88
    Genetic testing could be useful, however it is not diagnostic. It won't tell you if your child hs Celiac or if he/she will ever develop it...just if he/she is predisposed. Enterolab and Kimball Genetics both do screenings, not sure of the exact cost but I think Enterolab is around $100 and Kimball around $300. How about bloodwork and/or biopsy? Does your...
  16. leadmeastray88
    Considering he has some symptoms, I would decide whether it's important to you or not to get a clinical diagnosis. If it is, he needs to be eating gluten to get the testing done. You said he had negative bloodwork - did he have a scope as well? Sometimes there are false negative blood tests. If a clinical diagnosis is not necessary for you, since your daughter...
  17. leadmeastray88
    This is from your first post: HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0202 Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2) That is 2 copies of the same gene
  18. leadmeastray88
    When my tTG, Candida and parasite testing all came back negative, the first thing that came out of my GI's mouth was, "How's your family situation? Do you fight with your family? Does your boyfriend treat you well? Are you sure?" And on top of all of that he refused to give me a scope because "I had already been though too much". After I gained back...
  19. leadmeastray88
    According to Enterolab's test results you have active dietary gluten sensitivity. This could either mean Celiac's or non-Celiac gluten sensitivity..the test unfortunately cannot tell us which one it is. I have the same gene as you but only 1 copy. I am SO GLAD to see that they changed their interpretation of HLA-DQB1*0202...when I had the testing they...
  20. leadmeastray88
    As the last two posters have mentioned...welcome! It's very likely that you have Celiac disease based on the bloodwork, especially since the tTG was so high. The biopsy could be negative despite the fact that you have Celiac because there may not be enough damage done yet. I read a story on here where this mom got her daughter biopsied because...
  21. leadmeastray88
    Whenever I get glutened, the fatigue sort of comes and goes for a couple of days..that's hwat happens to me anyway I know reactions can also be delayed by as much as a few days sometimes..
  22. leadmeastray88
    Unfortunately, Enterolab cannot diagnose Celiac Disease, nor do they claim to be able to on their website. All they are able to do is detect active dietary gluten sensitivity in the stool. This doesn't necessarily mean that you have Celiac or that you will develop it, just that you are reacting to gluten. Which really, is almost the same thing The treatment...
  23. leadmeastray88
    Hi there, These are the tests you need for Celiac testing, you should print them out and take them: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA They all work in unison so you have to get them all to tell what's really going on. Good luck
  24. leadmeastray88
    This is what I'm also asking for in my thread "Occasional Insomnia", but nobody has replied yet...
  25. leadmeastray88
    Yes, that includes the biopsy too! It doesn't take long for some people to start healing once they go gluten-free sof if you plan on getting one, you definitely should be consuming as much of it as you can. I'm sorry you're going through so much trouble. Luckily, most of us can relate Good luck
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