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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    I would suggest having the complete panel re-done, except add the tissue transglutaminese (tTG) which is much more specific for Celiac, as well as the total IgA which tests for IgA deficiency. Your blood can change in an instant so you should definitely have them re-done. Not sure about your protein question, maybe someone else here can help.
  2. leadmeastray88
    Hi mom4life, Being gluten free for even a few days can make your biopsy turn out to be a false negative. The villi in many people's intestines can heal quickly so I wouldn't take any chances. The biopsy is the 'gold standard' for a Celiac diagnosis so I would urge you to keep eating gluten until the biopsy - trust me, it'll be worth it! That way, you'll...
  3. leadmeastray88
    I had a discussion with my priest about this, and he says that it is FULL COMMUNION to take only the wine and not the bread. We have several Celiacs in our parish so I don't feel self conscious bowing to the communion distributor before taking the wine. I felt awkward the first time though.
  4. leadmeastray88
    Hi there! Your symptoms definitely give you reason to consider Celiac. You should ask your doctor for the bloodwork and biopsy and you must do so BEFORE starting the gluten free diet because it will wreck the validity of the results. Also, the fact that your symptoms started post pregnancy is common, lots of people experience a 'trigger' (such as pregnancy...
  5. leadmeastray88
    Hi there, There is no such thing. You won't find anything, other than people's testimonies, which are (if you visit the website) pretty positive. As of yet, Dr. Fine hasn't officially published anything related to his findings. We don't really know why. Some people think Enterolab is bogus. Some people don't. I personally believe it is reputable and...
  6. leadmeastray88
    Hey guys. I've been gluten-free for almost 3 months, and everything has resolved for me, well almost everything. The fatigue is still there, not as bad but still there. Also lately I have been noticing that I get dizzy spells and feel faint sometimes. Does anyone else get that? Could it be blood sugar? I'm on B12 supplements and magnesium, as well as...
  7. leadmeastray88
    Hi there, You've already received some great answers. As for you gas issue, I only get it occasionally and don't take anything for it but I know my grandma takes Beano, and she swears by it. Here's some info from the website: What is Beano? Beano is an all-natural solution for a completely natural problem. And almost any adult or teenager can use it...
  8. leadmeastray88
    Pass the optimism around! For me, no more: -nausea after eating -constant stomach cramps -constipation -mouth sores -migraines Fatigue is still there, but is much better than it was. I've put myself on supplements to see if it helps.
  9. leadmeastray88
    I was diagnosed on a combination of things, dietary response being one of them. My GP looked at my extremely positive dietary response and my elevated IgA levels found in Enterolab results. My cousin also has Celiac so that helped, even though I don't have the genes for it. I truly think though that if you truly feel better gluten-free after months on the...
  10. leadmeastray88
    Well, congrats to you! It sounds like you're on the right path! I hope your biopsy goes well and that all your symptoms will resole with the gluten-free diet. Best wishes to you! -Kim
  11. leadmeastray88
    Sending a little courage your way! Prayers and thoughts are with you
  12. leadmeastray88
    I know Enterolab tests for both, not sure about the lab your doctor is talking about. Some doctors don't think 'gluten sensitivity' exists, some think it is the early stage of Celiac. Depends on the doctor. You should ask. If you have gene analysis done, here are the ones Enterolab looks for: Celiac: (HLA-DQB1*0201 or HLA-DQB1*0302) Gluten Sensitivity...
  13. leadmeastray88
    You're doing the right thing! Make sure you get a copy of the blood test results and post them here, and someone will help you interpret them. It's crazy how many times doctors order you a "Celiac panel" and either don't order the right tests at all or missed some. Like another poster said, if your blood test results are negative you could definitely...
  14. leadmeastray88
    I'm not very good at test results, but something else you might want to consider is that they didn't do the complete Celiac panel. Here's all the tests they should have run: EMA (Immunoglobulin A anti-endomysium antibodies) AGA (IgA anti-gliadin antibodies) AGG (IgG anti-gliadin antibodies) tTGA (IgA anti-tissue transglutaminase) Looks like they...
  15. leadmeastray88
    Like another person has already said, Enterolab cannot diagnose Celiac. Only a doctor can do that. It can only detect active dietary gluten sensitivity. I found that the gene testing was quite interesting as well. It' s a good bit of information to know, especially if/when you have children. If you happen to have the Celiac genes, along with your positive...
  16. leadmeastray88
    Positive results= Positive results A 'classic' Celiac diagnosis is based on villi damage. If you have it, even if it is spotty, you have Celiac disease. No two ways around it. Like Rachel said, gene testing is useful when other testing is negative and there is still doubt. You shouldn't have ANY doubt when your bloodwork AND biopsy came out positive...
  17. leadmeastray88
    OMG... tried this 2 days ago, and now I'm making it every day!! My little sister even got into it - now she makes her own (gluten) version. Hoollllly....dangerous! lol!
  18. leadmeastray88
    I went to see my GP today, armed with my Enterolab results, expecting everything but a receptive response. I told her I didn't go back to the GI, because he prescribed me an IBS med and refused to scope me. I told her I wasn't going to settle for an IBS dx. I told her about Enterolab and showed her the results. I explained how I started the gluten...
  19. leadmeastray88
    Yup I definitely think its the tags Thanks so much!!
  20. leadmeastray88
    I tried to update my signature and it says its too long. I've seen people with way longer ones! Has there been a change in how long we can have it? Thanks!
  21. leadmeastray88
    This is my genetic analysis: HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0301 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7) So I know the 0201 is the celiac gene, but the 0202 with the right DQ7 gene can create a celiac gene, am I wrong? Does anyone know of any labs that test for the alpha chain too?
  22. leadmeastray88
    In my opinion, you definitely should. You are showing some 'classic' sympoms of Celiac. But, as Momma Goose said, everyone reacts differently and symptoms are all over the radar. Definitely get the blood testing done, and you have to be eating gluten for them to be accurate. No matter what the tests show, a good strict gluten free diet is the ultimate...
  23. leadmeastray88
    Most definitely! That was the first thing I noticed the first time I was glutened after being gluten free for 3 weeks - mouth sores. That's how I know now when I've eaten something I shouldn't. And it's usually followed by heartburn/stomach pain. Just so you know - Blood tests are terribly inaccurate, and they won't detect if you're simply gluten...
  24. leadmeastray88
    Just to be clear - are you getting a colonoscopy to check for things other than Celiac? Because they can't diagnose Celiac through a colonoscopy, only an endoscopy. You have already been diagnosed Celiac, so there's no second guessing that. If you're concerned that there's something else going on (besides other food intolerances, like veggienft said) then...
  25. leadmeastray88
    As everyone here has already said... Consider yourself lucky! It takes an average of 11 years for people to get a proper diagnosis of Celiac! You don't have to undergo an invasive procedure to get a diagnosis, when positive bloodwork is really all that is needed. It's pretty clear to me that that is what it is - you have a first degree relative...
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