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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    Yes, but you failed to mention what your results were. Twice
  2. leadmeastray88
    Unfortunately, you're in a bit of a pickle. 5 weeks gluten free may have been enough to change the antibodies in your blood. Even if you cram gluten down your throat for a week, there's a chance your bloodwork will be a false negative. 5 weeks may have also been enough to heal your 'flattened mucosa', although everyone heals differently. I really don...
  3. leadmeastray88
    I find whenever I get glutened, I feel better when I take an anti-spasmoidic pill (I get severe stomach cramps) that is gluten-free of course, Buscapan is gluten-free. My doctor prescribed it for me. All of the other suggestions are great too - hot tea, lots of water, heat packs, a lazy day...all sure to help you feel better.
  4. leadmeastray88
    Yes!! I know when I've been glutened because I get really painful canker sores. It's the tell-tale sign for me.
  5. leadmeastray88
    Jason- Have you ever heard of Zija? www.drinklifein.com Its an amazing natural supplement drink - tastes like green tea - not only helps with nutritional deficiencies it also sooths your gastro tract and aids digestion. I have tried it and love it. Maybe it will help you? P.S. I swear I'm not affiliated!
  6. leadmeastray88
    That's great LIS_Guy, I hope the endoscopy reveals some answers for you!
  7. leadmeastray88
    Wow! Thanks for this Shay, I have HLA-DQB1*0301 so I will be getting my thyroid tested next week (hopefully)! Many thanks!
  8. leadmeastray88
    Thanks so much guys for your replies Quick question: HLA-DQB1 Molecular Analysis, Allele 1 0202 HLA-DQB1 Molecular Analysis, Allele 2 0301 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7) What does the "subtype" mean? 2 and 7, does that mean I am DQ2 and DQ7?
  9. leadmeastray88
    I'm wondering HLA DQ2 what? DQ2 in general or are there specific DQ2s that associate with the disease?
  10. leadmeastray88
    UPDATE: Dr. Fine and I have been emailing each other back and forth all day. He has noted that a couple of months ago they discovered that DQB1*0202 can exacerbate the effect of an associated 0201 gene, and/or is also present in about 1% of Celiacs. He said they will be making the distinction in the coming testing. Still, the litterature Jestgar...
  11. leadmeastray88
    That's so great! Thanks!
  12. leadmeastray88
    Thank you so much - all of those articles were so helpful. I forwarded the link to Dr. Fine so it'll be interesting to see what he says
  13. leadmeastray88
    I've been so curious about genetics lately, reading all the gene threads on here, especially since finding out on Kimball's website that DQB1*202 can be associated with Celiac if encoded by alleles DQA1*0501 or DQA1*0505. I tested with Enterolab and they found DQB1*0202 and call it a "gluten sensitive gene". I e-mailed Enterolab and asked how they...
  14. leadmeastray88
    If your mom has the celiac gene/s, then yes, you have a 50% chance of having the gene. If you have the gene, you are more likely to have it than not. Some people need a 'trigger' for their bodies to start reacting and showing symptoms. I'm not an expert on genetics but I'll bet someone else will chime in soon. Good luck!
  15. leadmeastray88
    Welcome! Yes, those symptoms could definitely be pointing to Celiac. The problem is that the symptoms are so vague that they can also be attributed to many other ailments. Which blood tests did you have run? You should get a copy of the results and post them here. Some doctors don't order the full Celiac panel: IgA IgG tTG Total IgA ...
  16. leadmeastray88
    Yes there are many people who have posted here that have tested negative on Enterolab. I don't think you should be so surprised that your DH tested positive, I have two gluten sensitive genes so that means each of my parents carry the gene. Coincidence? No, it just so happens that they each carry the gene and married each other. I poke fun at them and...
  17. leadmeastray88
    I agree with happygirl. The tTG antibodies are very specific to Celiac, so you should definitely go for the biopsy to confirm. No matter what the results are, you should try a strict gluten free diet for a few months and see if your symptoms improve. Don't go gluten free until after the biopsy though! Otherwise you may get a false negative. Your symptoms...
  18. leadmeastray88
    Nice to meet you!
  19. leadmeastray88
    Thanks so much for this info - so helpful! Is it possible to request to sanitize the steam wands? This is good info coming from someone who works there!!
  20. leadmeastray88
    Ohh boy! Well thats exactly the way I felt too so I guess I'll take it from you to not take that chance ever again!
  21. leadmeastray88
    Thank you for all your responses. Momma- I can't pinpoint if there was another possibility that I had gotten glutened during the day, I never eat out and only make my own food. Starbucks is pretty much the only place I go to buy anything I consume and it's always the same thing and I've never had a problem until now. Bea- As for the caramel...
  22. leadmeastray88
    I was doing a Starbucks run a few nights ago on my way to my boyfriend's house, and decided to pick a Pumpkin Spice Latte. I've been going there for a long time, and looking at the other latte ingredients I thought this one would probably be safe. I think I was wrong. About an hour later my stomach starting hurting really bad and then the gas came and...
  23. leadmeastray88
    I had the Enterolab testing done and my results were positive as well. I had a negative tTG blood test prior so when the GI refused to scope me, I had no other option. Enterolab supported what my doctor and I believed already to be true - that I had a problem with gluten. Whether it is Celiac or just gluten sensitivity/intolerance doesn't matter, the treatment...
  24. leadmeastray88
    Hi Tamito, The previous poster is right. Celiac is an autoimmune disease and if you were diagnosed years ago, then yes, you still have it. And if you think about it, you DO have symptoms: thyroid, headaches...those are all typical of Celiac. You can't outgrow Celiac. Just because you are not 'feeling' any gastro related symptoms does not mean you aren...
  25. leadmeastray88
    Yeah, don't believe that for a second. Me being B12 deficient is what helped lead my GP to Celiac. Don't be too hard on your gastro, like people here have said it's so hard to find a doctor who will actually listen nevermind actually run the tests - and he is running the tests for you so I think you should wait and see what happens. No you don't need...
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