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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    Nobody has any input??
  2. leadmeastray88
    I was wondering how many people actually use gluten free makeup and shampoo and creams, etc. Is it really common for a person who is gluten-sensitive to have a reaction to products containing gluten? And - can you have a reaction to it by absorbing it through your skin, or do you have to actually ingest it?? Thanks!!
  3. leadmeastray88
    Wow...I am so sorry you are having so many health problems! I am also a 19 year old female and I can understand (and sympathize) with the frustration you must feel. The only thing I can say now is that you're obviously having this gut feeling about it not being Celiacs. Usually, your gut is right. I think you should really try and insist the testing to...
  4. leadmeastray88
    Hi there! First off, you haven't really been diagnosed. A diagnosis requires a positive blood test, a positive upper endoscopy that shows blunted villi in your intestine, and for some doctors, a positive dietary response. Just because your gyne said 'try the gluten free diet', doesn't mean you have Celiacs! Secondly, if you decide that you want...
  5. leadmeastray88
    No, it's not. I'll have been on the diet for 2 weeks next Tuesday and I am actually feeling the same, if not a little worse. The only reason I did this was because my surgeon REFUSED to scope me! If you can stand to wait for the biopsy then you should! You can't get it if you're gluten free because then you risk getting a false negative.
  6. leadmeastray88
    Hi there! First off, I'll mention that my story is a lot like yours. I also thought I was on to something since I haven't been feeling well following a traumatic abdominal surgery 2 years ago, and like you, I had negative bloodwork as well. Once you've been here awhile ypu'll notice that many people who get diagnosed with Celiac have negative bloodwork...
  7. leadmeastray88
    Hi there, First off, it is highly unlikely that you don't have Celiac disease - the bloodwork is very definitive when it is positive - there are almost never false positives. The damage in your intestine can't always be seen with the naked eye. Wait and see what they say once they take a closer look at the biopsy. You can also have elevated levels...
  8. leadmeastray88
    I am in the exact same boat as you as we speak. I started a thread like this in the 'Coping' section. The first few days I felt great - now it's just a little over a week since I started and I feel terrible. I'm starting to second guess myself but everyone here has been telling me to keep with it so I'm trying! I'm anxious to get the tests from Enterolab...
  9. leadmeastray88
    I ordered the tests from Enterolab myself, because my surgeon refused to scope me and I'm sick and tired of waiting around. I don't want to wait another 6 months to get into a gastro when these tests take 3 weeks to get back. I ordered the gluten sensitivity stool panel, the gluten sensitivity/celiac gene panel, the milk sensitivity panel and the malabsorption...
  10. leadmeastray88
    That's so nice, thank you for the encouragement It has been very frustrating lately - I can't even describe it. And my lab hasn't arrived from Enterolab yet which is making me very anxious! Hopefully in the next couple weeks I'll have some answers.
  11. leadmeastray88
    Thank you for those links to those other threads - I know the questions around here can get somewhat repetitive, so I apologize A food diary - that sounds like a good idea! I think I'll try that. Thank you both for your responses.
  12. leadmeastray88
    Its been exactly a week today that I started gluten free, and while I felt great in the beginning, I felt terrible last night and feel terrible again today. I have bad stomach aches and cramping again. I'm trying to be as careful as I can with cc as I am living with my family who is not gluten free, and am sticking to simple foods, as well as cutting our...
  13. leadmeastray88
    Don't give up! I, like you, am still living with my family and have recently started a gluten free diet. I am the only one in my house who is eating gluten free and although I have an extremely supportive mother who has been nothing short of extraordinary through this whole thing, the fact is, food that contains gluten is still being prepared in the same...
  14. leadmeastray88
    Mine took about a week to return the Celiac test, 2 days for the rest. You'll probably get them by today or tomorrow. I know its hard to be patient Good luck!
  15. leadmeastray88
    Hi there Your symptoms could definitely be attributed to Celiac, which is one reason why its so hard to diagnose. The symptoms can be very similar to IBS/Colitis/Chrons/GERD, or some people have no symptoms at all. I, like you, have constipation instead of the 'classic' symptom of diarrhea. There really are no 'classic symptoms' anymore. WHat you're experiencing...
  16. leadmeastray88
    Thank you - thats what I was really looking for
  17. leadmeastray88
    Hi there! I myself have never had the endoscopy, not yet anyway. Here's the thing about blood tests and biopsies: Blood tests can have false negatives, but NO false positives. The reason being is that some Celiacs don't produce IgA antibodies, and are therefore IgA deficient. These antibodies also won't show up in the bloodstream if there isn't significant...
  18. leadmeastray88
    Okay thanks! Thats what they said on the site. What about how long it took for the tests to get to you after your ordered them? Anyone?
  19. leadmeastray88
    Hi there! Try Enterolab! www.enterolab.com They do the gluten sensitivity and gene testing through stools and cheek swabs. I just ordered yesterday! *Note that they test for gluten sensitivity, NOT Celiac! They can't diagnose if you have Celiac's, just if you have a sensitivity. But what's the difference - the treatment is the same anyway. The best part...
  20. leadmeastray88
    Hi guys, I placed an order last night for Enterolab's complete gluten sensitivity/gene panel with milk sensitivity included. I live in Canada, and I was just wondering how long it took for the tests to be sent to you? A couple days? A week? Also, they say they'll email you the results in 3 weeks - is that how long it took to get your results...
  21. leadmeastray88
    A few weeks ago I had some testing done to check for parasites, as my surgeon said he'd like to rule that out before we talk scopes. I thought that was fair, so I did the testing. I got my results yesterday - they were negative for parasites. I was relieved and was looking forward to talking scopes, when he told me "I think you have IBS. You're too young...
  22. leadmeastray88
    When I went to get my blood tested for Celiac's about a month ago, they only took 1 vial and the results were negative. I have no idea which antibody they tested for, all they said was that it was negative. Is 1 vial enough to cover all the antibody bases associated with Celiac's? Could someone tell me exactly what to ask for to do a 'complete' Celiac...
  23. leadmeastray88
    I was hoping someone who has Celiac would chime in by now.. I myself am still going through the diagnosis process, but from everything I've learned thus far is that there are false negative blood tests, but no false positives. Therefore, if your blood test is positive then you most definitely have Celiac's, you can rest assured! The problem with the...
  24. leadmeastray88
    You're welcome She ended up having a positive biopsy when she was 11 and positive reaction to the gluten free diet. She also has Type 1 diabetes, which she was diagnosed with when she was 2. I am also contemplating being tested for diabetes. Yes, removing soy and dairy from your diet at first would be smart, as you need to give you villi a chance...
  25. leadmeastray88
    No not at all!! She was just giving refernce to your previous post so people who didn't see it can catch up No worries!!
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