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Rebecca's mom

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Everything posted by Rebecca's mom

  1. Rebecca's mom
    Oops - read next post.....
  2. Rebecca's mom
  3. Rebecca's mom
    Your daughter's tTG was 90? I don't know what your lab's "scale" is, but the one that we had run listed anything above 3 as being positive! Regardless of if her IgA came back positive or negative, the tTG number is indicative of intestinal damage. I would INSIST on an intestinal biopsy from her pediatrician. If your daughter has intestinal damage, she...
  4. Rebecca's mom
    I started on a gluten-free diet in May, 2008, after our youngest daughter was diagnosed with celiac disease (I have since realized that the skin rash that I had been battling for 3 years was DH, even though it didn't itch like most peoples' do). I started out at 275 pounds. I am now down to 237 (38 pounds in 10 months!), but you are right about the "shrinking...
  5. Rebecca's mom
    Love all of the different opinions! Then, there are those of us who have our family members tested because they won't start a gluten-free diet unless there are numbers "documenting" that they do, indeed, have a genetic predisposition and/or a higher than normal antibody level that isn't showing up on a blood test yet. My dear hubby was exhibiting all...
  6. Rebecca's mom
    Yes, we have 4 daughters, with the oldest in college, and the youngest having a positive blood test and biopsy for celiac disease in April, 2008. The daughter with celiac disease has Down syndrome, which is why she was screened in the first place - she had NO symptoms, but her numbers were off of the charts! I am wondering if I should go ahead and have...
  7. Rebecca's mom
    Sweetie, Things will get easier the longer that you are on a gluten-free diet - I promise! Have you contacted your local GIG group for a copy of their Restaurant Guide? In the 10 months since our youngest daughter was diagnosed with celiac disease, our Guide has become our "Bible" - we have a copy in each car..... I have found that we eat a lot of...
  8. Rebecca's mom
    Hi all, I am new to this thread. Our youngest daughter was diagnosed with celiac disease in April of 2008 - no outward symptoms, but since she has Down syndrome her pediatrician ran a screen. Her numbers were off of the chart, and she had borderline Stage IV intestinal damage. After doing research, I determined that my skin rash must be DH, even though...
  9. Rebecca's mom

    ARCHIVED Fort Worth

    Rebecca's mom replied to cookiequeen's topic in Doctors

    Howdy from Fort Worth! You might want to go to the North Texas Gluten Intolerance Group's website, I believe they have a listing of several medical doctors in this area. Unfortunately, my experience with GI doctors here in FTW is with pediatric GIs, as our daughter is the one that was diagnosed with celiac disease. However, if you are interested in an...
  10. Rebecca's mom
    Sweetie, Have they tested you for gallstones? I had the same pain when I was pregnant with my 4th child, and thought that it was heartburn - 6 months later, I was having my gallbladder removed because the pain didn't go away after my daughter was delivered. Also, given that you have been diagnosed with POSD, chances are very good that you have either...
  11. Rebecca's mom
    Dear Live2BWell, If you have been diagnosed w/Hashimoto's, there is an EXTREMELY high chance that you have Celiac Disease, as well - the numbers definitely show a correlation between the two conditions. In all of the tests that you mentioned, I don't recall seeing any results for IgA, IgG, tTG, or EMA. If you want to be tested for Celiac, your doctor will...
  12. Rebecca's mom
    You might try looking up "prurigo nodularis". A lot of the people on the forum related to that sound like they may either have celiac disease or gluten sensitivity. I have had these bumps for 3 years now, but since I went gluten-free 2 months ago, they are starting to disappear (thank goodness!). Sometimes they itch, and sometimes they don't, which is...
  13. Rebecca's mom
    Dear Lady Cyclist, I have found what Takala said to be true. If you go on a low-carb, high protein AND HIGH FAT diet, you may find that you aren't tempted to cheat, because you will be full. The thing with a gluten sensitivity/intolerance is that your body isn't absorbing any of the nutrients that you feed it, so you will continue to feel hungry - your...
  14. Rebecca's mom
    Well, after putting a question out there about problems with vinegar (in my case, EXTREME itching), I went out on the Internet and did some research. I ran across an article on WebMD about Airborne Allergies (see page 4 on the topic) that mentioned that some people show signs of a mold allergy reaction when they eat foods with vinegar in them. Who'da thunk...
  15. Rebecca's mom
    Dear Netzel, Has your wife been screened for Celiac Disease? Our youngest daughter, Rebecca (age 7), has Down syndrome. She had absolutely NO SYMPTOMS whatsoever. However, her pediatrician has a stepdaughter with DS, and when she was diagnosed with celiac disease last year, he started doing a lot of research on celiac disease and found that 1 out of...
  16. Rebecca's mom
    Dear ShayFL, My friends and family have nicknamed me "Little Miss Research", so I went out on the Internet after I posted my question and I actually may have found a totally "off-the-wall" explanation for it. Apparently some people show signs of a mold allergy when they ingest vinegar. Who'da thunk it? These same people seem to have an allergic...
  17. Rebecca's mom
    Hi there, all. I am new to the whole celiac disease thing. Our daughter, Rebecca (almost 7) has Down syndrome. Two months ago, as part of a routine well-child checkup, her doctor ran a Celiac Screen on her. He has a stepdaughter with DS who tested positive for celiac disease and after doing research he discovered that 1 in 8 people with DS also has...
  18. Rebecca's mom
    Dear Ivanna, I noticed that you have a child with Down syndrome. Have you had him/her screened for celiac disease? I am asking because our daughter, Rebecca (about to turn 7), also had DS, and we found out that she has celiac disease. She had absolutely NO symptoms, so you can imagine our surprise when her antibody numbers came back off of the charts...
  19. Rebecca's mom
    Sorry, new to this - see next post.....
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