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Rebecca's mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Rebecca's mom

  1. Rebecca's mom
    I've been gluten-free since April, 2008, and went to see an ocular plastic surgeon today, because my right eyelid has started to droop. I was *this* close to getting an eyelid lift covered by my insurance when she said that she needed to do one more test, "Just to be sure". Well, wouldn't you know it, I "failed" that test, and now I have an appointment...
  2. Rebecca's mom
    Thanks so much!
  3. Rebecca's mom
    I just went to the link for the listings of local Celiac Support Groups, and the last state listed is Montana. I am pretty sure that there are local support groups in the states that begin with the letters N-Z; is a page just missing, or am I going crazy?
  4. Rebecca's mom
    Just out of curiosity, what made you look at Celiac Disease in the first place? I do hope that you are able to find some answers to your questions, but even if your test results come back negative, you might want to give a GFD a try. I don't know if the WLS will affect your test results or not - it might be something to ask your GI and/or PCP. At the very...
  5. Rebecca's mom
    I haven't noticed a problem with citrus fruits, but I haven't eaten any in a while - it will be interesting to see what happens. It appears that - in my case, at least - I personally am having a reaction to the Aspergillus mold that is used during the manufacturing of "food grade" citric acid. I have a similar reaction to vinegar, as well - apparently some...
  6. Rebecca's mom
    I am so glad I ran across this thread - I've been having reactions to canned pineapple, and I couldn't figure out what could have been causing it! I have a different "reaction" from most people - I start itching uncontrollably when I accidentally ingest gluten, and it doesn't take much at all. I also have been having problems with an ingredient called ...
  7. Rebecca's mom
    Yes, high-fat is VERY important, and I ran across an article just the other day while researching diabetic information because my DH is pre-diabetic. If you will go to Open Original Shared Link there is an abstract for a study which was just completed which shows a very compelling connection between diet drinks and not only a significantly high risk of developing...
  8. Rebecca's mom
    Our family has been gluten-free for the past year, and I have lost 40 pounds without even trying, simply by eliminating gluten from my diet. I have found, however, that I have to limit the amount of GRAINS that I eat - I eat potatoes and corn (to me that is a vegetable) with no problem whatsoever. I also have found that in order to LOSE fat, a person...
  9. Rebecca's mom
    It would really depend on how much damage might have been there to begin with. Our youngest daughter was diagnosed a year ago with both gliadin and tTG numbers >100 (pretty high for a 7-year-old). At her last check-up a couple of weeks ago, her tTG was 6 (<5 is negative for villi damage). Generally, the higher the tTG number, the longer it will...
  10. Rebecca's mom
    Have you looked at the Dermatitis Herpetiformis forum? The itching is a "classic" symptom of this skin rash, which is 100% correlated with Celiac Disease, regardless of your bloodwork results.
  11. Rebecca's mom
    Our youngest daughter, Rebecca, was diagnosed 1 year ago with Celiac Disease. Her tTG number was >100, as was her anti-gliadin number. She had Borderline Stage IV damage to her intestines. She had NO symptoms - none. The only reason that her celiac disease was "caught" is that she has the most awesome pediatrician. Rebecca has Down syndrome. Her pediatrician...
  12. Rebecca's mom

    ARCHIVED PCOS And Celiac

    Rebecca's mom replied to Eliza13's topic in Doctors

    The bloodwork will only tell you if you have almost TOTAL villous atrophy, not mild - many people (myself included) think that ANY degree of villi damage warrants going on a GFD. You may simply be Gluten Sensitive (I think they are starting to use the term Non-Celiac Gluten Sensitivity [NCGS] to describe this). However, if you feel better on a GFD, then...
  13. Rebecca's mom
    You may want to check out R.O.C.K. (Raising Our Celiac Kids) - I think they have a website. Also, Woodbine House Publishing puts out a lot of books on different topics for kids with specific health issues - Down syndrome, Autism, ADHD, Celiac Disease, etc. - you may want to ask to be put on their mailing list and request a catalog from them. Our youngest...
  14. Rebecca's mom
    This isn't something that adults usually have to worry about, but most people forget that Play-Doh has wheat in it. If it gets on a child's hands, the hands go in the mouth, and they get a gluten reaction for no APPARENT reason. Same thing goes for sheet rock and joint compound - which our family found out the HARD way last month while doing a home renovation...
  15. Rebecca's mom
    I had the same problem - don't know what might help "internally", but I just went out and bought some really "strong" clear nail polish (Sally Hansen's Triple Strong Advanced Gel Nail Fortifier) and have been using that for the past month or so. It has helped a lot. Just about any nail "strengthener" should work - and I am NOT a nail polish kind of gal...
  16. Rebecca's mom
    Thanks for confirming that for me - I was starting to think that people might think we were perverts or sex addicts or something like that...... It's good to know that other people have had the same experience, but again, how do you tell people about that? It's not as if it would come up in polite conversation, you know? Maybe some medical professional...
  17. Rebecca's mom
    Most people don't know that Play-Doh and sheet rock (DH and I found THAT out the hard way a couple of weeks ago!) have wheat and/or wheat starch in them. It may well be that she is coming in contact with some seemingly innocent substance at home and/or school which is triggering her hives. You may also want to check the ingredients in the hand soap that...
  18. Rebecca's mom
    A couple of years before our youngest was diagnosed with celiac disease, she got what we thought was ringworm on her scalp a couple of times. It itched like crazy, and because her hair broke off in those areas, her pedi diagnosed it as such. He said his daughter got that a lot as well - both of them have Down syndrome, so I thought maybe they were simply...
  19. Rebecca's mom
    At the same time that you have a blood test run to check for Celiac, you will want to have a skin biopsy done by a dermatologist WHO KNOWS HOW TO TEST FOR DERMATITIS HERPETIFORMIS. If the biopsy for DH comes back positive, it won't really matter what your blood tests say - a diagnosis of DH automatically means that you have celiac disease. All of my bloodwork...
  20. Rebecca's mom
    Yes, both my husband and I experienced improvements in mood (and desire) as well. And, oh boy, can we each tell if the other one has accidentally gotten "glutened", simply by the surly attitude / behavior.......
  21. Rebecca's mom
    I didn't know if anyone might know where I can find an answer to my question. Recently, I have had a reaction to a couple of foods which I thought were gluten-free (I read the label and didn't see anything which set off warning bells). When I looked at the labels on these foods, there was an ingredient which I don't recall seeing on any other foods - Natamycin...
  22. Rebecca's mom
    I am wondering who we would need to contact to see if it would be possible to "add" a forum subject. I am sure that a lot of people have questions about "intimate" issues (sexual, physical [non-sexual], emotional, etc.) after a celiac disease diagnosis, but there isn't a place that exclusively deals with this issue, and it isn't easy to find answers to some...
  23. Rebecca's mom
    Thanks for the laugh - I appreciate it!
  24. Rebecca's mom
    Well, he wasn't having any "problems" before, we just noticed an "enhancement", if you will. I guess it was just a matter of middle-aged equipment vs. young-adult stuff...... He hadn't gotten to the point that he was going to need to ask for pharmaceutical help yet, either. If he ever sees this, I am going to be in so much hot water.....
  25. Rebecca's mom
    Thanks for the laugh (and the confirmation)! That's interesting about brussels sprouts - good information to have - You know, I bet we could get restaurants and food manufacturers to go completely gluten-free in a matter of mere weeks if people (men, especially!) knew that this could be a "benefit" of a gluten-free lifestyle........ Teresa K.
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