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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tmb

  1. tmb
    Diane, I would say that eating burger meat, unless specifically prepared gluten-free is a good place to start. If you eat burger meat, are you also eating sausages etc. Any mixed or processed food is somewhere gluten is often found, even before you look into things like toothpaste, cosmetics etc. The rigour required to get and stay gluten free is major. I...
  2. tmb
    Let me add my pennys worth here. My experience was mixed as I began by removing candida from my diet, however this was just a side issue. Gluten compromises the gut and allows candida to overgrow, it can also cause lactose intolerance. I agree with all the others comments that people are different, heal at different rates, have different reactions. My suggestion...
  3. tmb
    Hi gluten-free A, thanks for the comments. My skin was also aggravated by eating cashew nuts, so these got dropped from my diet. To stop the itching I used a herb called Sasparillo, and it also operates as a blood cleanser. This worked really well after a few days to stop the itch, and I used pawpaw cream on the lesions. Also used a mix of almond and jojoba...
  4. tmb
    I think the issues that celiacs experince from family and friends around a basic 'just do not get it', is actually multifaceted and we end up getting short-changed at every turn. It is a complex condition and not as visible as many other - heart attacck, stroke etc that appear to have binary characteristics, and more importantly can happen to others (not...
  5. tmb
    Hi katy, you said this As a suggestion for a food diary (and there are different formats that you will find if you google the internet), the one that works for me looks something like this. I use MS Word table and set up a symptom diary of very possible symptom I experience, skin, gut, energy etc, and take a checkpoint as at my start date. I make my...
  6. tmb
    Hi kkaty, there are direct links between GI and lactose intolerance. The damage gluten causes to the intestine can create other food intolerances, these are often temporary. Lactose is common as if yeast/candida issues. If you have not already used a food/symptom diary, you should do so to see if it is only dairy that causes issues. My own experience of being...
  7. tmb
    Hi Amber, thanks for the perspective. Very sobering the possible impact upon the kids, yet not an easy process to actually do it or even convince the family it is necessary. I want to get the gene testing to give some level of validation. For me it will be enough if they have the genes given their associated symptoms. If they dont have the genes (or me),...
  8. tmb
    This is an interesting coincidence. I suffer from anxiety, not enough for treatment but noticeable. I use exercise and meditation to control and help my mind let things go. My exercise suffers due to side effects celiac and my discipline is not greta with meditation. I have noticed over the past few months that I appear calmer. I imagine that part of this...
  9. tmb
    Hi Amber, apologies for the slow response. My daughter is just on enzymes and not yet on GFD. The enzymes are there as a stop gap measure while we assess the mechanics of going gluten-free for all or part of the family. I know this is a risky approach and my own experiences (I also took enzymes that were very effective for a period) but gluten still in...
  10. tmb
    Hi spunky thanks for the update. I understand that the intestine needs 6 months to replace the lining, so the first 6 months is just a baseline, the other ill effects that have accumulated then take time to recover - up to 2 years I have heard. I have also heard that permanent damage occurs and then some issues will always remain. Some iridologists say they...
  11. tmb
    Hi gluten-free avenger, thanks for the response, I have been away so did not reply earlier. You mention that first symptoms to appear will be the last to resolve. My symptoms might have been complicated by a severe allergy to dust mite that I have had for over 20 yrs (however perhaps this was just another symptom created by gluten). Either way this still...
  12. tmb
    Tjis might seem like a strange question to ask. celiac disease has negative impact upon our health and we all have various negative health as a result. I ask the question because recovery takes a while and symptoms appear to be variable. Which symptom(s) is the most reliable to know if you are successfully going gluten-free, or perhaps there is another...
  13. tmb
    Hi petitpied, thanks for sharing your experience, could you give some more detail on associated symptoms? I guess I am trying to relate overall improvement (thereby proving strict gluten avoidance) to symptoms and it appears that DH is not a good indicator over short periods as it fluctuates. I have been told by a naturopath/iridologist that the healing...
  14. tmb
    I am also 3 months into gluten avoidance. I already knew that I had an issue with candida and had spent several months prior, trying to sort this out. As I got into the gluten avoidance I discovered that cashew nuts and soya were also a problem. My interest is quite how to track the reduction and change in the symptoms and what they mean. Improvement in...
  15. tmb
    I have also been gluten-free for about 3 months. I also had some stages of dropping it out of my diet over a longer period of around 12 months, and when I went back on the reactions were worse. However I also discovered that my itch and rash was linked to other foods that by themselves possibly did not cause the skin to react butu in combunation (probably...
  16. tmb
    I have also been gluten-free for about 3 months. I also had some stages of dropping it out of my diet over a longer period of around 12 months, and when I went back on the reactions were worse. However I also discovered that my itch and rash was linked to other foods that by themselves possibly did not cause the skin to react butu in combunation (probably...
  17. tmb
    Hi Nadine, great things we get tp speak about. Not sure if you ever had responses, or updates on your symptoms, but I will add my own experiences and see if this adds to what we know. I have been gluten-free for nearly 3 months and have noticed changes in stools over the past 4 weeks. Suprisingly I am still not digesting properly, but the color has changed...
  18. tmb
    My experience of the link between celiac and low libido has been similar to many of those posted here. I have been gluten-free for nearly 3 months and although my libido is very low I think it is on its way back. I have not had testosterone tests or shots to improve. My libido started dying a couple of years ago, did some recovery and then in the past 6 months...
  19. tmb
    I am probably too late with this information to assist with the allergy desensitization. However it might interest you to know that a Swiss company called Cytos has been testing an allergy vaccine that requires far less injecting than traditional desensitisation jabs. It is still not commercially available, but the trials have been very positive for long...
  20. tmb
    sam, you said, I assume you know that burgers might not be pure meat but will have gluten products mixed in, if you are eating these as well.
  21. tmb
    roos, I have been strictly gluten-free for 2 months. About a year previously once my skin started causing problems, and I lost weight/digestive problems, I started an exclusion diet. This meant I was mostly free of gluten, yeast, lactose, soya etc. As a diet challenge to eliminiate I began with yeast as it appeared the easiest and there was no doubt I...
  22. tmb
    Justjust, you have been gluten free for around 1 year now. How has your progress been with inprovement in symptoms? Most others on this topic figured that somewhere around 2 months should see the most significant changes. I have been gluten-free for about 2 months (although I had some unwitting experience of being gluten-free when I eliminated most foods...
  23. tmb
    Hi Deb, thanks for your response. I hvae been away and missed your response as I am still learning my way around this forum. I see that diagnosis for Dermatitis H is also seen as an affirmative for celiac disease and/or GI. Although it can indicate something else, in conjunction with other symptoms (GI etc) it is considered to be definitive. As you say...
  24. tmb
    Hi Deb, thanks for your response. I hvae been away and missed your response as I am still learning my way around this forum. I see that diagnosis for Dermatitis H is also seen as an affirmative for celiac disease and/or GI. Although it can indicate something else, in conjunction with other symptoms (GI etc) it is considered to be definitive. As you say...
  25. tmb
    I see this thread has been inactive for a few years, but I thought I would add my experiences with gluten and cold water hives. I have been reacting to cold and cold water for around 12 years. As I lived alongside a cold sea (10 centograde) and spent quite a bit of time in it, I noticed swelling, redness and itching of the skin. I tried various remedies,...
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