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utahlaura

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by utahlaura

  1. utahlaura

    Happy birthday and may God bless you today!

  2. utahlaura
    That's just the enlightenment I was going to get. I thought I was getting a lot of colds and they lasted longer that say if my husband caught it. So the Celiac can cause this. Such a bummer, huh?
  3. utahlaura
    I know Celiac disease is an "auto-immune" disease, but why? What's up with that? Does that mean I can have a hard time with infections or getting over colds too? I don't know what the auto-immune dangers are.
  4. utahlaura
    Yeah! Hurray for buckwheat! Right now, it's the only grain product I am always safe with. The buckwheat cereal you mentioned is a staple of mine when I need a good carb fix! Also, I've been able to bake with buckwheat flour. ( The cheapest way to get it is the 100% buckwheat pancake flour..not the "mix") I use buckwheat flour in place of wheat flour to make...
  5. utahlaura
    I've been gluten free for three months after my biopsy diagnosis, but still can't touch milk, soy or corn products. Any of them. I read that casien may be the culprit with me. Geeze! How bad can this get, anyway? I thought celiac was bad enough. Anyone know about the casien thing??? Help!!!
  6. utahlaura
    I'm in the in the initial healing process, and I know it's supposed to be hard. Been diagnosed by endoscopy biopsy. Eating non- gluten of course, bit still have WAY too much trouble reacting to many non-gluten foods. Such as fruit or anything sour...any starchy veggies...milk products. And can I please ever make a non-gluten baked good that I don't react...
  7. utahlaura
    I'm on fish and vegetables and buckwheat only right now. I can't even do rice ar any grains at all. No starches. No fruit. Almost no fats ( common dietician says) Lactose intolerant, of course. Absolutely no strong flavors of any kind. But then I'm just beginning the healing process and am grateful just to out of the IV clinic finally! I really wish I...
  8. utahlaura
    I can tolerate any really sweet wine but just a terrible reation to a dry wine. huh. Sour fruit does the same thing. What makes things sour anyway???
  9. utahlaura
    The first couple of healing months for me have been absolutely awful! I of course react to gluten, but aslo to so many foods that are non gluten. Trouble with fats ( dietician ays that's common) lactose intolerant. The only grain I can tolerate at all is buckwheat ( not really a grain but a flower) Natural and artificial flavorings absolutely throw me down...
  10. utahlaura
    Oh sure! That's a celiac thing. I get dizzyness, loss of balance, ringing in the ears, extreme irritability, disorentation,numbness and neuropathry in the extremities, and bone and joint pain all accompanied by extreme sleepiness and exhaustion. But you can't lay down cause it makes it worse. AAAUUGGHH!!! My reations always get better in sequence. First...
  11. utahlaura
    I can really relate!!! Isn't this "healing process" the most confusing anf frustrating pain in the butt??? AAUUGGHH!!! Good luck to us "healers" and especially God speed!!!
  12. utahlaura
    My IGA tests were inconclusive so my gasroenterologist told me to eat gluten foods for a week before blood testing again because being gluten free for even a couple of weeks will make the antibody test negative. I made it four days and I was DONE with that!! The IGA test came out negative so he decided to schedule the endoscopy biopsy. There is absolutely...
  13. utahlaura
    I had two IGA tests that came out normal, but then my endoscopy biopsy tissue test for villi damage showed quite a bit of "stubbing" and confirmed Celiac. My gastroenterologist ( which I chose for his expertise on this) said that there is such a thing as non- antibody Celiacs. That's why my reaction symptoms are mostly neurological instead of the stomach...
  14. utahlaura
    I've just stared my healing process, so I still get reactions lots of times unexpectedly for various reasons. The first thing I'll always get when I start a reaction is a buzz or hiss in the head. If it's a bad reaction this hiss can be very loud! Does anyone else get this? Also it's the last thing to go away..lasting often into the second day ( a bit less...
  15. utahlaura
    I was just diagnosed a month ago and have been gluten free of course, but there were still tons of other things I reacted to cause I still needed to heal, I guess. Trouble is, even though I've been gluten free for a month now, a lot of the things I could tolerate a month ago I react to now.....dairy, olive oil, rice, fruit...stuff I could eat before. Now...
  16. utahlaura
    I was just finally diagnosed with celiac after my endoscopy biopsy. I was actually relieved to be finally verified as to what I already knew was wrong with me after about a hundred hours on the net and scientifically done food experiments on myself. ( seems you practically have to diagnose this disease yourself sometimes.) Finally ended up at a gastroenterologists...
  17. utahlaura
    Yeah! Potatoes and tomatoes both! Especially tomato juice. I was able to have tomato juice for a while till this whole gluten intolerance thing got so full blown. Now..NO tomato juice! I thought it was because it was made from "concentrate" A Celiac "bad foods" site I found listed tomato puree or tomato paste on the bad list. Could this be the tomato juice...
  18. utahlaura
    Actually, now that you mention it, I have been 100% sure of being gluten intolerant for a couple of months now. Since three different doctors were clueless, I begain my own research on food intolerances. None matched my symtoms till I hit on gluten intolerance. It matched exactly!!! Finally! So I began the very careful introduction of gluten free...
  19. utahlaura
    Thanks so much, you guys for responding so fast. trouble is, though, this drug is very new and "advanced" There are no substitutes at least for me and of course no generics yet. But what about the potential damage thing? Is just this tiny little bit going to harm me? I'm 99% sure it's a gluten response. You get to recognise those pretty well after al while...
  20. utahlaura
    I've read the mention of nightshades several times already on this site and have no idea what this is...can someone enlighten me?
  21. utahlaura
    I've heard of this, but what causes it and what can it cause???
  22. utahlaura
    I'm not all healed up yeat and am still eating carefully and in bits theses days. I notice, though, when I have to take one of my regular meds ( a big honkin' horse pill) that I have a slight but definite reaction to the filler in it. The reaction isn't horrible like a full blown one, so that's not my main concern. Here's my question, though. Especially...
  23. utahlaura
    I may be wrong about this, but I've read that all boullion is on the "bad" list. I checked my beef bullion cubes in the cupboard and sure enough they are loaded with gluten ingredients. Perhaps gluten free boullion is available or perhaps just canned "stock" is gluten free? But I definitely know mine contained various hydrolyzed ingredience and modified vegetable...
  24. utahlaura
    For some reason right now it takes me almost exactly 20 minutes to react to gluten.
  25. utahlaura
    I was reacting to so many different things for a while..even some proteins and some dairy. I fasted for a week ( no kidding!) and began introducting gluten free ( positively) fresh veggies mainly. I did so well that after a time I though.."Huh, maybe it was all in my head, or I had salmonella poisoning or something. lol! So I did the acid test! I actually...
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