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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Snow Angel
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ARCHIVED Does It Sound Like My 20 Month Old Could Have Celiac?
Snow Angel replied to TJ060306's topic in Parents, Friends and Loved Ones of Celiacs
Janelle...I have to add my 2cents.. not necessarily celiac related Might want to follow up with this, preferrably with an immunologist who knows about hypogammaglobulina..You can get good doc referrals from Open Original Shared Link if you call/email them., (they have a forum too) ...I am not familiar with pediatric ranges, they are lower than adults... -
ARCHIVED Support Group In Enfield, Connecticut
Snow Angel replied to Kat25's topic in Introduce Yourself / Share Stuff
Sinenox, A New Haven Group...Really??...Let me know..i'm 5 min away. edit: I see it in the meetup area...i'll catch up there. -
ARCHIVED Tazo Organic Iced Greentea
Snow Angel replied to dksart's topic in Gluten-Free Foods, Products, Shopping & Medications
jerseyangel, ..I've had their Wild Orange & Earl Grey since celiac so far so good ..but on their website it says (and ofcourse I just rechecked 1min ago) The first two are bagged teas, last two bottled. So the customer service rep is right about the Organic Ice Tea. But either the rep is wrong or the website is, about the 2 filterbags..... -
ARCHIVED Can Some Please Explain Dh?
Snow Angel replied to Nikky10's topic in Dermatitis Herpetiformis
You welcome, maybe your reaction is for another reason or barley feels different then wheat.. idk... I haven't figured it out & probably never will.., but unfortunately if you can't eat gluten then you can't trust any prepared food or DRINKS. (so far bottled water hasn't done me in Yet!!) I just hope it goes away for you. -
ARCHIVED Help! Can't Find Fexofenidine!
Snow Angel replied to gflooser's topic in Gluten-Free Foods, Products, Shopping & Medications
In the US, Teva's Fexofenadine was listed as safe a/o 02/07 in Wheaton Support Group list. You can get a copy here. Open Original Shared Link -
ARCHIVED Can Some Please Explain Dh?
Snow Angel replied to Nikky10's topic in Dermatitis Herpetiformis
Some green tea is gluten free, some is not...check your brand. I have read some have barley but I think that is in restaurants. I don't know what it is in tea that would be gluten otherwise. He is my current list of gluten-free teas. I have checked the websites just recently. Tazo Tea 10/08 All of our teas are gluten free, except for the following: Green... -
You can go to the Catholic Family Services Centers around the country, they provide very reduced fee therapy, for low income. I know someone interning there who also does an eating disorders group. You do not have to be Catholic or religious to use their services.
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ARCHIVED Ladies, What Facial Wash And Moisturizer Do You Use
Snow Angel replied to cat3883's topic in Coping with Celiac Disease
I use grapeseed oil to remove makeup (so cheap), & I use my coconut oil for a moisturizer. -
ARCHIVED Equipment Shared With, Same Equipment As, Same Plant As
Snow Angel replied to Arizona Gary's topic in Gluten-Free Foods, Products, Shopping & Medications
I did try TJ's corn chowder this weekend and had mild gluten symptoms (dh & bloat) from either that or CC in my home. They follow "good manufacturing practice" so its really hard to tell. I am tempted to try it again when my BF's not home touching all my stuff with his gluteny hands. I always stock in their lentil and veg. chille, ate it forever, now... -
I am in college again (I'm probably alot older than what your looking for) ... can I add my 0.02 ? I have never trained at competition level but was athletic until I got too sick....I think adding a section about how to cope when family, friends, coaches, team meambers, dr's, think you have excercise induced anorexia (or eating disorder in general)...
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No need to wait, just eat alot of Wheat ..bread, shredded wheat, cream of wheat, wheat farina, add wheat germ (yuck) you'll be itchy, flaring and miserable in no time at all. I have read here that consuming iodine will help bring it out. I never bothered to biopsed my rash ...I figured out what it was the first time I went gluten-free for gastro...
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scully...I found this site really helpful (8 whole pages of pics) Open Original Shared Link It shows many variations of DH rashes in regular people. Mine is exactly like pics 72-74, of the womans upper back, shoulders, both upper arms & I have all those lovely hypopigmentations left behind too. It is hard to see in pics but your scratched up red...
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ARCHIVED Cross Contamination - 3 Musketeers?
Snow Angel replied to henny's topic in Gluten-Free Foods, Products, Shopping & Medications
I had some bloating and mild D on two ocassions I ate them and couldn't rule anything else in. I had purchased it with coffee in the snack bar on campus , the 2 thing I can eat there- well just 1 now, coffee. Thought maybe it was the coffee but i drink mine black & it doesn't happen when i drink coffee w/o the three musketeers. So yeah i had suspected... -
ARCHIVED Gluten Free Fish Food?
Snow Angel replied to henny's topic in Gluten-Free Foods, Products, Shopping & Medications
Absolutely..lol -
ARCHIVED Gluten Free Fish Food?
Snow Angel replied to henny's topic in Gluten-Free Foods, Products, Shopping & Medications
henny ..I have 2 tanks running right now and I'm worried about the same thing. One of the people (Ed) on my tropical fish boards makes fish food, alot of the members say their fish LOVE it. I haven't ordered it yet..its next on the list. Open Original Shared Link He hates wheat gluten, not good for fish. This is on his site -
ARCHIVED Provigil Still Has Gluten In It
Snow Angel replied to Mtndog's topic in Gluten-Free Foods, Products, Shopping & Medications
I reacted to Provigil too, didn't notice until I went gluten-free, I take it PRN, every time I took it Chronic D ...days I didn't take Provigil NO D !! Trust the body ...the body knows. I just this week had my doc switch me to Adderal. Much Better. -
ARCHIVED Misinformation On Dh Website
Snow Angel replied to Fiddle-Faddle's topic in Dermatitis Herpetiformis
Annie closed it ..I can't say I blame her. Open Original Shared Link -
ARCHIVED Toppings For Crackers
Snow Angel replied to sugarsue's topic in Parents, Friends and Loved Ones of Celiacs
At 6 yrs old I would want "fluff" , look at the Smuckers Marshmallow Topping... they say its gluten-free...I don't know about CF. Open Original Shared Link or you could try the Ricemellow which is vegan & gluten-free, ...you didn't say you wanted healthy -
ARCHIVED How Long Does Blood Testing Take?
Snow Angel replied to Presto's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
We don't know if your IgA deficient, I have 5 IgA & still made 5 antibodies to tTg IgA. I know what all of them are up to...lol You might have had a shot showing tTG IgG after a month, (it may be still high - idk), but IgA goes down real quick. It is very sad when the patient knows more then the dr. You should find a competent gastro, they can see other... -
ARCHIVED How Long Does Blood Testing Take?
Snow Angel replied to Presto's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Call the lab - they can fax it, mail it or tell you on the phone (get ranges). I cc myself on all my labs so they get mailed to my house...the quest near me say's I can stop in and pick up a copy of the report, but I haven't needed to do that. -
ARCHIVED Stomach Cramps?
Snow Angel replied to mosaicmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi mosaicmom, I tend to agree with happygirl, when I did my trial diet, I found I could no longer eat many of the raw veggies ..can't do apples either...Must just be too hard on my system right now as i'm too new at this. -
ARCHIVED Misinformation On Dh Website
Snow Angel replied to Fiddle-Faddle's topic in Dermatitis Herpetiformis
I have read there a little for several weeks now and I believe its because he found he's not Celiac...or believes that to be the case anyway...I really hate the arguing over there..awesome post Fiddle Faddle. -
ARCHIVED New Celiac Getting Biopsy (long)
Snow Angel replied to Snow Angel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi mftnchn, We did run some of those you suggested but we never did the culture stool or the O & P w/ giardia. Never looked at residues either ..what is that one called..? I did tell them my poop was green sometimes from the bile. They said it was because of fast transit time. haha. h.pylori = not detect. These are my typical Vit D levels, even... -
ARCHIVED New Celiac Getting Biopsy (long)
Snow Angel replied to Snow Angel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ravenwoodglass... thats a good idea, I think your right and I am just being paranoid, I have come so far in this, I need hand-holding and re-assurance. Thank you happygirl ! it is nice to 'officially' meet everyone .. oh neesee thats terrible, but it does make me feel better to know that it's possible to still show damage and get an accurate... -
ARCHIVED New Celiac Getting Biopsy (long)
Snow Angel posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I'm finally coming out of lurk dome... been here a few months. History: I had my Doc test me for Celiac after I finally tried a 7 day gluten free diet ...I had removed all other food types over the last 15 or so years ..and never thought about this one. The first time lab only ran IgA for celiac panel and found IgA deficiency, < 5. I went...