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roxnhead

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by roxnhead

  1. roxnhead
    Hello, I also have had severe muscle weakness so much so that my nuero was thinking myasthenia gravis(negative blood test). What I did find out is that is caused by carbohydrates which just sounds crazy I know. We still haven't figured out why? It appears to be very unusual.So if I stay no-low carb I can have muscle strength. If I eat carbs my muscles...
  2. roxnhead
    HI ALL, I ALSO COME FROM NORWEIGIAN ANCESTRY! MY MATERNAL GRANDMOTHER WAS 100% AND MATERNAL GRANDFATHER 50%. MY FATHER'S PARENTS IRISH/DUTCH/SWEDISH--NORTHERN EUROPEAN. MY ANTI-GLIADIN WAS THE ONLY POSITIVE BLOOD TEST. MY ENDOSCOPY'S (2) WERE NEGATIVE FOR CELIAC BUT SINCE GLUTEN-FREE DIET IS WORKING G.I. CONFIRMS LATENT CELIAC. DIAGNOSIS HAS ALWAYS...
  3. roxnhead
    Yeah I just checked my VSL#3 DS- probiotic it has maltose--I've been checking and it sounds like gluten to me--I continue my search Donna
  4. roxnhead
    Hello all! My latest test results are in and my anti-gliadin is a high 97-this is my only positive "celiac" test. I know I ate the pumpkin custard from a pie(stupid) last month and believe this is what glutened me. But why when I was eating all the gluten I wanted my test results for anti-gliadin were only 79-high. How can my reaction be so high when...
  5. roxnhead
    Heya, So many months ago when I first went to see my nuerologist which is also an Integrative health center(naturopath) he stated that all of my past health issues are due to Iodine deficiency. The cervical cancer, thyroid-Graves, Auto-Immune, High Blood Pressure iodine deficiency can all be directly the cause for my illnesses. He then had testing...
  6. roxnhead
    Ali, How does one know if they are too acidic or alkaline? What testing is done if it is not blood? As always its encouraging to hear your thoughts. You are always asking why? This is just like myself, I do not accept the status quo. There must be some reason, deficiency, problem with the way our digestive system is working/not working that leads to...
  7. roxnhead
    Hi Everybody, I just wanted to reply to my original post. I am sleeping much better these days. It appears carbs are my enemy. If I am carb free I am able to sleep. If I eat gluten, grain, mold foods, casein, carbs I will not be able to sleep. I experience restless legs also, but not if I remain on this restricted diet. One thing I continue to experience...
  8. roxnhead
    Ann, Do you have SIBO? Have you tried rifaxamin for treatment? I am going to G.I. soon for a script. I continue to feel better off carbs and with my probiotics/enzymes supplements. I'm wondering what specific enzyme am I lacking that keeps me from digesting carbs? Could it be the ill health of my small intestine/leaky gut? Is it the location that keeps...
  9. roxnhead
    Thank you all for your replies! I am sleeping much better these days. I do not have the wired / exhaustion problem either. Being gluten-free, dairy-free, mold-free, sugar-free has helped tremendously. My problem with sleep is as soon as I lay down I get night sweat then every 2 hrs or so I awaken same thing. The good news is that I am able to go right back...
  10. roxnhead
    Heya, My diet has evolved over the last year. In Oct/2008 I was dx Latent Celiac so no gluten. My diarrhea and my incredible appetite was greatly decreased! By Nov I was still having head-eye aches-swelling and noted on this web site that 50% of Celiacs have a problem with casein, so no casein. My aches, specifically eyes ceased. Bbq sauce, sausage...
  11. roxnhead
    Megan, Great News! I have been taking Oregano Oil off and on for 3 mos, it gives me cramping/diarrhea! Did you have to adjust to it? I was only taking 1 a day, taking 3@ 2 times a day seems extreme-any side effects? My Oregano Oil is from NOW with 55% Carvacrol. Thanx, Donna
  12. roxnhead
    I am so sorry to hear that you have been dealing with your digestive issues since childhood, just isn't fair. All I can remember as a child is being a glutten-eating like a horse and being extremely thin. I believe I may have had issues then but it didn't manifest itself til after chemo/radiation 2003. My mom always had digestive issues and passed away from...
  13. roxnhead
    My medical history is long! I had Cervical cancer in 2003 it was treated succesfully with both chemo/radiation therapy. Later that year I developed food poisoning but we blamed the bloody diarrhea on radiation enteritis-received argon-plasma therapy successfully. Since this time I have always had diarrhea til present but assumed it was the price I had to...
  14. roxnhead
    This is such a great article! It covers SIBO very well. I feel very fortunate to have a forum that educates-Thank-You so much for your hard work! I am classic SIBO- radiation enteritis, B-12 deficiency, carbohydrate malabsorption, increased bowel transit time-dx-auto-immune hyperthyroid,latent celiac,sjogrens. Have you read A New IBS Solution -Bacteria -...
  15. roxnhead
    Questions about coconut Oil? I purchased my first jar of extra virgin cocunut oil, suggested use 1 tablespoon 2 to 3 times daily. I know I can cook with it as an oil but how else does one eat it. I am on a SCD/Paleo diet and trying to decrease fruits. Any Suggestions? Donna
  16. roxnhead
    You sound alot like myself. I suggest looking into SIBO(SBBOS) or candida.With both conditions you react to mold-vinegar. Specifically nuero-numbness- tingling,eye sensitivity,ringing ears,brain fog just to name a few!
  17. roxnhead
    I was dx Celiac in 10/08, since then I have eliminated all gluten from my diet. I was still having trouble with eye-kidney- head aches so I eliminated Casein. I am extremely sensitive to mold in foods, so I have eliminated mold foods. Now it appears that carbohydrates are my problem. So, I am now on a Grain -Gluten-Mold-Casein-Low Carbohydrate Diet! My Naturopath...
  18. roxnhead
    I have only been gluten-casein free about a week now. (I've started yawning again.) My problem has been that I'm just not tired-in fact I'm wide awake sometimes I only sleep 3 hours a night. The next day of course I'm washed out! Very fatigued! RLS stocking feet-hot legs-it seems as soon as I start to fall asleep I get a hot-flash/nightsweat then I get up...
  19. roxnhead
    I've only been gluten-free a couple of weeks but I can't believe the difference. Brain "fog" "haze" "goofy-drunk" absolutely unable to think- is how gluten-casein affected me. I still am in a fog, but each day I am getting better. It amazes me how bad it was and how calm-reserved I was in response. I definetly feel that a sort of apathy-is part of the disease...
  20. roxnhead
    As the new kid I can't help but agree with Jenny. Having something to test for foods that have "flavorings"or "spices"or ? So many names and definitions- terms for gluten. Anything that would make this sometimes daunting task easier is really appreciated. Also, whole foods are great but we are already limited to what is safe for us to eat why would I...
  21. roxnhead
    I am feeling much better after going both gluten-casein free! I will be going to a new Dr. soon that is an alternative/integretive/complimentary I'm hoping that he will advise me on the nuero. I've been to one already quite dissapointing! Must admit it has been a challenge to go casein-free. My symptoms that were recurring that I thought were gluten caused...
  22. roxnhead
  23. roxnhead
    HEY! I HAD B-12 DEFICIENCY-SAME SYMPTOMS-HAVE IMPROVED DRAMATICALLY WITH INJECTIONS! JUST A THOUGHT--HAVE YOU BEEN TESTED FOR VITAMIN DEFICIENCY'S?
  24. roxnhead
    HELLO, I'VE NOTICED THAT QUITE A FEW OF YOU HAVE CASEIN INTOLERANCE AS WELL! I'VE BEEN TRYING MY BEST TO BE GLUTEN-FREE, BUT STILL FEEL---STRANGE. I BELEIVE THAT MY PROBLEM MIGHT BE CASEIN. I'VE HAD ALL ALLERGY TESTING DONE-ALL NEGATIVE. HOW DOES ONE GET TESTED FOR FOOD INTOLERANCE-SIMPLY ELIMINATION DIET---OR? ALSO-MY SYMPTOMS ARE MORE NUER0- EYE PAIN...
  25. roxnhead
    Hello Everyone! New here, although I've been reading post for awhile now. I was pre-diagnosed as a Celiac thru my blood test (all negative) with exception IgA Gliadin Ab IgA 79 High( Normal 11-17). Just received results from biopsy and they were Negative! G.I. said I do Not have Celiac disease. I asked him if this means I am gluten sensitive because...
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