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ashlee's mom

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  1. Hi, I homeschool our daughter. We really feel is is the best option for our family, not just because of celiac disease, but it certainly makes that easier too! My suggestion would be to see if there is a homeschool group in your town, talk to other parents and decide if this is something you are interested in. I would be happy to answer any questions for...
  2. Well, I just sent a Thank You e-mail to Chick fil-a. They aren't in our town yet, but I can hope they come to, and I will make sure we stop by when we are out. I figure it is important to make sure they remember how many customers depend on their gluten free menu!
  3. Wow, I just saw all this on Yahoo last night. Thank you SO much for pushing this issue so much. Of course my 6 YO was devestated to learn she couldn't eat there anymore. I will have to make more fries and hashbrowns at home, but that isn't the real issue. That was one "normal" thing she still had! I get so mad knowing that for these past 2 years she...
  4. My daughter had her bone age test done when she was almost 4 and it showed she was just over a year behind I believe. At the time we were taking her to an endocrinologist to check for growth hormone since no one thought it was possible to be celiac disease. She was actually diagnosed about 6 months later though. She has been gluten-free a year now and...
  5. I was VERY impressed with these biscuits! They actually rose! The texture is still a little different from wheat biscuits, but they were the best we have tried so far! I got the recipe from Shari Sanderson's Incredible Edible Gluten Free Food for Kids. We use a lot of things from there! I use a Kitchen-Aid to mix it all. The dough did come out very...
  6. Hi, I just noticed this on the Forbidden list, and was wondering if anyone could help me out? I googled it and I read that it was an individual plant, so I don't see why that would contain gluten. I am actually checking because I am wondering about trying to find a cheap replacement for my pet's foods. I don't let my daughter feed them, but I am wondering...
  7. Gillian, I am SO glad you asked this question! I have been so confused about this for the past year! My daughter was diagnosed in March of 04 and I printed up my lists then. Mine also lists Gum Base as a definate No, and so I haven't been able to figure out how gum could possibly be OK! I have heard that Wrigley's gum is gluten-free, but since it...
  8. How frustrating! Yeah, I think you do have to get medical records and test results from the Dr. who ordered them. Personally, I get tired of all the privacy protection with medical records. Really, I don't care if anyone see's my test results! It just makes it a pain to get your own records! I think adjusting her diet on your own sounds smart. I think...
  9. Merrie' So, how did the appointment go yesterday? Did you find anything out? I hope it helped and Chelsea is at least on the path to an answer. Michelle
  10. Yes, it sounds like the doctors have spoken. That is really good, they seem to believe each other when one says there really is a problem! I'll be waiting to hear what they have to say! Michelle
  11. Well, that is a relief, I was afraid she was hallucinating! I don't know, I would think it is probably Celiac and for some reason she is a hard case to diagnose. If you know it is autoimune, and the symptoms match, it really seems to point to it! Someone on this board was mentioning autoimune disorders running in the family somehow. We don't know of any...
  12. That is funny! My kids saw Dr. Dahlquist, but we just really clicked with Dr. Mandi. I also know Kay Green, we talked about adoption stuff, and she mentioned that she went to church with Dr. Dahlquist too! Our pastor's wife had told me about Kay when we first started looking into adoption. Here I was getting so homesick! We moved to East Texas this past...
  13. Thanks Bridget, I called and they told me they were gluten free. I am wondering though if we need to worry about cross contamination there. What if in the Pharmacy they fill a prescription of a medication that contains gluten, then filled her prescription? I don't know if that is too far fetched or not! I may be grasping at straws! I finally got everything...
  14. AAGH! I feel your frustration! So did they just run the second blood test at the same time as the second biopsy? How confusing! The AHA test that was positive was just for an autoimmune disorder in general, is that right? I have also heard to make sure the lab is done at a recognized lab. Since Ashlee's came back positive before I even read that, I...
  15. Jess, What brand of ketchup was it? Heinz 57 is gluten-free, so I just thought I would mention that. Otherwise, it seems like your little girl could very likely have Celiacs. As for whether or not to deal with the testing, it just depends on a lot of different things. First of all, as far as the testing, I was worried about the biopsy, but Ashlee...
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